I have been having problems finding a doctor who can or will treat my rare condition, and I hope someone can help.

·I am an 18 year old, living near London in England.
·For my body, masculinity and my sexual organs, I have had a delay in development. And my hormones are not normal for an 18-year-old. I have had a constitutional delay.
·My growth ratio is very off, my trunk (mid-section/body) is 4 inches short. Making my arms and legs as long as a person who is 6ft2, whilst I am only 5ft10. My spread is 4 inches longer than my height.
·I lack primary sexual development and have not had any growth since 12 years of age.
·I have no sexual function, and have not developed secondary sexual characteristics. There is very little male development of my sexual organs, face and body.
·I have had hormone tests and I have excess E2 levels by a factor of 2 and marginal testosterone levels.
·I was able to do a fertility test, and it resulted in a 2% viable level, my spermogensis is marginal. I only consisted of 2% functional sperms.
·My condition is causing me considerable emotional problems, as I lack the development of my peers and have a disproportionate body.

I cannot be seen by a general endocrinologist, student, intern or a recent resident. This will not solve my problem.

I have not been able to find an endocrinologist to help me with my condition, as most adult endocrinologist specialists do not deal with growth issues. Since a pediatric endocrinologist commonly treats these issues, I am seeking one that can take my case. But I am 18, and pediatric endocrinologist care for children under the age of 16. Does anyone here know one who may specialize in my case regardless of my age?

I am seeking an, "Endocrinologist with a professional focus on adolescent constitutional delay & delayed puberty with a lot of experience.” My body has never left adolescence and I need treatment before my final growth years are over. Does anyone know of one really experienced and rated doctor?

I have serious problems with my body and I wholeheartedly believe that I need to be seen by an endocrinologist who has a speciality in growth problems. I need to urgently see a growth/delay specialist. My situation is rare and that I need to see and be under the care of someone who consists of a lot of experience. I need to see an endocrinologist who has years of experience within constitutional delay, growth problems and pubertal delay.

My primary care doctor is trying to find a doctor to help me, but so far she has been unsuccessful. I have been consulting an American pharmaceutical researcher who specializes in endocrinology and have learned that I need help with my development problems as soon as possible. If you can, can you please send me a referral to a genuinely top, experienced and caring doctor within London or whichever location it may be, that can help?

(I am seeing my doctor, but I must do my own research to help myself. This way I can ask my doctor to get me in contact with the doctor(s) I find).

Please, I am terrified...