DX: fibromyalgia, chronic fatigue syndrome but I'm in pain! Posted: 10-02-07 23:49pm
Hi, my name is Kim and I am 49yrs old.
Yes, this year will be the BIG one!
My story officially began Jan 2007 with a
sinus infection. Two courses of
antibiotics, still no better. Strange and
debilitating symptoms began to follow to
include the following: Severe fatigue (bed
bound for most of 6wks, felt like I was
walking through cement) fullness &
pressure throughout both ear canals (the
strangest feeling I have ever felt)
Burning on the tongue and roof of my
mouth, burning sensation throughout back
area by lungs, pleuritic chest pain with a
feeling at times of my chest being
squeezed so tight. Left leg, foot, toes,
tingling & numbing sensation at times.
Leg sometimes feeling like it is dragging.
Back of my skull, neck feel achey, almost
like a toothache.
I was seen many times by gp, who
eventually dismissed herself from this
case due to my symptoms becoming to
complex, and out of her league. Multiple
labs drawn with a few elevated area like
sed rate, white count. high epstein barr,
positive Herpes 1 (which would explain why
I had developed a nasal lesion during this
flare) neurology ordered brain mri (lesion
left frontal lobe)-dr. say's nothing to
real concern ourselves with. Report read
?migraines (I have never had one) or ?
demylinating disease. We were batting a
zero clinically, so I discussed with those
md's who were treating me about going to a
teaching hospital for evaluation. All
were in aggreeance. (Could it be I was out
of there hair for awhile) Awful how e
think when we are not well isn't it?
Anyway, set out from las Vegas to
Cleveland Clinic with my husband. Repeat
of all the blood work that had been done
in vegas, no other testing to include any
diagnostic workup was ordered.
consulations w/rheumatology, internal med,
ent- The final prognosis was ?
fibromyalgia, chronic fatigue syndrome.
Currently I am back to work, continue to
take narcotics and motrin to get through
my day without pain in the neck, and
assist with masking other symptoms. I do
not mean to come across like I take these
drugs around the clock, but it is
concerning that even a couple a day, every
day, could become a dependent resource to
seek relief. Pain mgt physician has
recently done cervical epidural injections
for the diagnosis of cervical stenosis
found early in my illness on MRI. I do
not believe in my heart that what I have
is fibromyalgia. I will of course give
the doctors the benefit of the doubt and
continue taking a newly introduced
medication called Lyrica- if any of you
out there take this drug, maybe you can
share your experience with it. I just
have no one to real communicate with about
these bizarre and concerning symptoms. I
have read some testimonies on this site,
that allow me to feel I fit in a little.
Whatever this is, may take time to
finalize a diagnosis...I just wish it
would come sooner so I could get the right
treatment to help me function....Thanks
for reading. Kim
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4346 Location: post falls, id usa
Thanks: 93
Thanked:63
Posted: 10-07-07 16:44pm
I really hope that you find answers. YOu
do fit in here. You will have friends
here. if you evr need anything just ask.
if you need to vent--vent this is the
place to do it. and please share your
successes with us too so that we all can
have hope.
