My doc called all around the city to find me a place that specialized in TMJ. So I'm good there. It's like having a personal trainer, my arms are getting toned up, if nothing else! My TMJ is so bad I already have a lot of your problems. I gave up trying to work, but I am fortunate that my husband has good insurance. Sorry to hear you are having such a rough time. Hang in there.
Actually loosening up my neck has stopped the progression of my symptoms. I don't get dizzy anymore, at least. Can you ask your doc for something to help you sleep? I take Lunesta, the pain is usually worse at night. I also take pain meds, I don't mind taking meds when I need them. They help A LOT.