I am a 23 year old female that was
diagnosed with the genetic blood clotting
disorder Leiden Factor V 3 years ago. I do
not have much information on this so I was
wondering if anyone as heard of this and
has some info on it. I have been having a
lot of pain and spasms in my legs and feet
and I have been wondering if this could be
related. I have only had one clot and it
was not in my leg. Please help!
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tedsgirl
New User, Becoming EHEALTHy
Joined: 29 Sep 2007 Posts: 1
I Have Factor V Posted: 09-29-07 21:31pm
Hi AshleyHalby,
I am 21 and also recently found out I have
Leiden Factor V because my 50 year old
father had his first blood clot so I was
tested since it's hereditary. I have no
symptoms. I did see a hemotologist who was
very re-assuring and helpful. He said make
sure not to take long car trips (more than
2-3 hours) without getting up to walk
around. Also, see a doctor if you get any
lumps on your legs as they could be blood
clots going to your heart (like my dads
almost did). One personal word of advice:
If you are going to need new health
insurance, do not get treated for Factor V
for 6 months before you sign up, or they
will deny you as a pre-existing condition
for every type of independent long term
health insurance (Blue Cross Blue Shield,
United Healthcare, etc.). However, Blue
Cross will cover every other health need
under short term care for 6 months.
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lvnwgout
New User, Becoming EHEALTHy
Joined: 22 Oct 2007 Posts: 6 Location: Phoenix, AZ
Leiden Factor V Posted: 10-29-07 18:04pm
HI Ashley,
My husband suffers from Leiden Factor V as
well as his daughter. He learned about it
when he was diagnosed with cancer 10 years
ago. He had his two children tested and
his 20 year old daughter found out that
she has the gene mutation also. There is
only one really good site that you can go
to to find out more about this hereditary
disorder and it is http://www.fvleiden.org/
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lvnwgout
New User, Becoming EHEALTHy
Joined: 22 Oct 2007 Posts: 6 Location: Phoenix, AZ
Leiden Factor V Posted: 10-29-07 18:12pm
Sorry I accidentally hit enter.
He has had a clot in his lung from the
canser surgery and almost died. He is now
duffering from Deep Vein Thrombosis or DVT
and is on cumadin.
I also want to make sure that you two are
aware that you are at more risk of
clotting if you take birth control pills.
Most doctors know about FVL but are not
fully aware of some of the dangers of this
mutation. I ask that you both please do
alot of research on your own because
unless you have a really good doctor they
will not do the research for you.
