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Are Gambit Neuro Test Conclusive?

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CarolDiane Extremely eHealthy
September 23rd, 2007
New to this disease. Already R/O Parkinson's and alzhiemers. MRI w/wo contrast showed white matter leisons remarkable for MS. Also, L-Spin had a hurniation in L-1,2,3, with some narrowing. I think that may have been from a fall I have on my cyxics bone several years ago or does that corrilate with MS? neve conductiong study came back abnormal on left side arm and leg. Numbness and tingling, yes. I have all of the ten symptoms and have had for about 3 years. Just never addressed it.
Now my question is, I have opted not to have the LP. Reason being, through my research and asking veterans of this disease, I find that most if not all come back inconclusive and negitive. So, I say why put myself through that with all the rest of my illness ( and I have plenty on my plate).
Is the gambit of Neuro testing and the showing up of what matter leisons enought to go on. Can I just leave it at that and go with the flow and just keep learning and understanding to deal with it?

Thanks Doc Wink
MsSky
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TaoWarrior
replied September 23rd, 2007
From What I Know
From what I know which is not all that much the LP would just be to confirm the diagnosis from the MRI, there are a couple other things that can leave MS like leisions and the LP will show that it is not them. I know they can also do an evoked potential which I don't know anything about since I did not get it done.

The LP is usualy not too bad, granted mine was, but friend of mine has had 4 and they were all fine so if your doc thinks you need it to determine what is going on for sure then get it. 1 LP is better than a bunch of avonex shots you don't need.
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CarolDiane
replied September 23rd, 2007
Extremely eHealthy
He Did'nt Seem to Care
Hmmmm, He was just going to go with the neuro studies and not mention the Lumbar Pucture. It was not untill I had a falling out with him LOL, basically faxed him and told his a$$ off because he was going to leave the room acturally left the room saying when I said "Hey, what about my test results", He says, Oh don't worry, nothing serious". Was glad I had the background and could read my own reports. I was livid to say the least and Monday I am calling for a new refferl. Yep, he is fired. He was not going to tell me I had MS, I had to read it for myself! All test coming back pretty much positive for the disease. After all, white matter leisons don't glow for nothing. Rolling Eyes So, Monday I start shopping for a new Neuro. I'm Ok with the MS. I just don't want him to manage the care. Wink

MsSky
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TaoWarrior
replied September 23rd, 2007
Well I'm on my second neuro also and looking for a third.

Although I'm not looking that hard anymore. My current neuro and I did not start off well but she is a specialist in MS and her office is close so it has been convienient plus her nurse is awesome so I have just sort of put up with her but after a couple battles of will I think we can work together. The first one is the one that told me I didn't have MS then when I relapsed again and I found out that had he dx'd me back 3 years ago I could have been on treatment all this time and maybe saved a relapse or two. Screw that!

i can't belive he wouldn't give you your dx with all the info, thats crazy. Good Luck finding one who cares.
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CarolDiane
replied September 24th, 2007
Extremely eHealthy
Hey There
I almost want to say hi "girlfriend" LMBO.....We will carry this conversation over to the other side OK. I will be around sometime this afternoon. Wink Got a Doc appointment at 11am Eastern Time. Cya on the dark side of the moon.

MsSky
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