New to this disease. Already R/O Parkinson's and alzhiemers. MRI w/wo contrast showed white matter leisons remarkable for MS. Also, L-Spin had a hurniation in L-1,2,3, with some narrowing. I think that may have been from a fall I have on my cyxics bone several years ago or does that corrilate with MS? neve conductiong study came back abnormal on left side arm and leg. Numbness and tingling, yes. I have all of the ten symptoms and have had for about 3 years. Just never addressed it.
Now my question is, I have opted not to have the LP. Reason being, through my research and asking veterans of this disease, I find that most if not all come back inconclusive and negitive. So, I say why put myself through that with all the rest of my illness ( and I have plenty on my plate).
Is the gambit of Neuro testing and the showing up of what matter leisons enought to go on. Can I just leave it at that and go with the flow and just keep learning and understanding to deal with it?
From what I know which is not all that much the LP would just be to confirm the diagnosis from the MRI, there are a couple other things that can leave MS like leisions and the LP will show that it is not them. I know they can also do an evoked potential which I don't know anything about since I did not get it done.
The LP is usualy not too bad, granted mine was, but friend of mine has had 4 and they were all fine so if your doc thinks you need it to determine what is going on for sure then get it. 1 LP is better than a bunch of avonex shots you don't need.
Hmmmm, He was just going to go with the neuro studies and not mention the Lumbar Pucture. It was not untill I had a falling out with him LOL, basically faxed him and told his a$$ off because he was going to leave the room acturally left the room saying when I said "Hey, what about my test results", He says, Oh don't worry, nothing serious". Was glad I had the background and could read my own reports. I was livid to say the least and Monday I am calling for a new refferl. Yep, he is fired. He was not going to tell me I had MS, I had to read it for myself! All test coming back pretty much positive for the disease. After all, white matter leisons don't glow for nothing. So, Monday I start shopping for a new Neuro. I'm Ok with the MS. I just don't want him to manage the care.
Well I'm on my second neuro also and looking for a third.
Although I'm not looking that hard anymore. My current neuro and I did not start off well but she is a specialist in MS and her office is close so it has been convienient plus her nurse is awesome so I have just sort of put up with her but after a couple battles of will I think we can work together. The first one is the one that told me I didn't have MS then when I relapsed again and I found out that had he dx'd me back 3 years ago I could have been on treatment all this time and maybe saved a relapse or two. Screw that!
i can't belive he wouldn't give you your dx with all the info, thats crazy. Good Luck finding one who cares.
I almost want to say hi "girlfriend" LMBO.....We will carry this conversation over to the other side OK. I will be around sometime this afternoon. Got a Doc appointment at 11am Eastern Time. Cya on the dark side of the moon.