Genetic Disorders Forum - G6pd
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G6pd

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Medical Questions-> Health Forums -> Genetic Disorders -> G6pd
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jazi

New User, Becoming EHEALTHy
Joined: 23 Sep 2007
Posts: 2
G6pd
Posted: 09-23-07 11:39am

Hi all,

My son is G6PD defficient and i read that all soya products are to be avoided.

Now most foods have some sort of soya in them including chocolates (which have soya lecithin in it), so i would appreciate if someone can elaborate on this as to which soy products are to be avoided and which are ok.

Thanks.
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blue_devilette

New User, Becoming EHEALTHy
Joined: 04 Sep 2008
Posts: 1
G6PD
Posted: 09-04-08 08:21am

Hi Jazi,

My 2 daughters are G6PD positive and I have been spending time surfing the internet for dishes I could prepare for them. My husband and I are giving my oldest daughter (she's a year and 3 mos old) small quantities of chocolate cookies though it says in the package that it has soy lecithin and she's not having any negative reactions though we don't want to assume that she can eat plenty of chocolates because we are still worried that it may have an effect on her. The food that we really don't give her are the following: anything with soy sauce, beans, bittergourd and chips that has soy.
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jazi

New User, Becoming EHEALTHy
Joined: 23 Sep 2007
Posts: 2

Posted: 09-04-08 11:18am

hi there,

thanks for the reply. its been over a year since i asked this question and you're the first to reply so really appreciate it.

i have been doing some research myself as well over the last year on the internet as the doctors here in Pakistan couldn't provide me with a satisfactory answer to my query but to no avail. seems that most sites are concentrating on lisitng medicines and are not sure themselves of how soya affects the g6pd affected.

what i have been doind personally is that i don't give him anything which is purely based on soya. chocolates i don't restrict and he even drinks chocolate flavoured milk. soy milk or soya sauce in chinese food is something that i strictly avoid.

he is 2.5 years old right now and i don't know what i'll do about chinese food once he gets older. i guess i'll have to talk to the chefs around town.

another story that i read on the internet was about a guy in his forties who was g6pd but didn't know and he ate fava beans all the time since childhood but had a reaction late in life and died. the point the expert was trying to make is that a g6pd event seems to be dependent on other factors as well including stress level as this guy didn't experience any problems till his forties even though he was consuming fava beans for ages.

anyhow all i have learned is to be as careful as i can be and let my son enjoy himself and live his life and not bog him down with dis or dat.
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