Hi i am new to this forum

I have had attacks since 2000 so 8 years i had 7 attacks in 2007 but my Amylase are not always high?i have been refered to a london Hospital as they thought it was panceras divisim, they now think its Chronic panc. They are looking at doing an ERCP to cut the bile duct Etc has anyone had this done. i am fed up of waiting for the next attack if you no what i mean x maxxi

I too, have chronic pancreatitis. I developed it post-op after emergency surgery for a bowel obstruction. I have had it for over 10 years. I did have the ERCP done. It seemed to help some, but I still have it. My attacks are much less severe and I don't always have an elevated amylase. Now, when I have a flare-up, I go on bowel rest for a couple of days and it resolves itself. I am afraid that time has done me more good than anything else. Angie: how did your procedure go? I hope that if you did develope post-op pancreatitis that it was temporary. I have been diagnosed since that time with autoimmune pancreatitis. Maxxi: has anyone checked you for this problem? My best advice: listen to your docs and do not let them downplay your problems. Above all, listen to your body; you probably can tell when you are developing a flare-up. For a long time, I could not eat anything with fat in it. I stayed away from these foods for a long time. Eventually, I could eat it again, but not ALL OF THE TIME. I had a CT on my pancreas today; I can tell that I am on the verge of a flare-up. Tomorrow, I will probably rest all day. I have had to stop working because of the problem. I have to stay away from stressful situations because if I don't, I flare up. Good luck and God bless.

Hi Bushcat,

No one has checked me for autoimmune pancreatitis? how is this done blood test.

I went back to the Hospital and he wants me to have a EUS and i have had lots of blood work to include test for the CF Gene, i was also diganosed with Celiac in jan this year

He said it could be all linked

Did you have a EUS and if so what was the outcome

Thanks Maxxi

My wife had her galbadder out 14 month ago. She stayed in the hospital nine days with pancreatitis after they did a ERCP. She had four ERCP since then with a SOD. she had two CT and is going for another one. She still has pain and can not eat without pain. She has been in a hospital three times because of this. She also looks sick and was never sick before this galbadder surgery. Her pancre numbers and liver numbers are always high. Is this cancer. The doctor said he don't know. Jack

Hi Jack37

HOW IS YOUR WIFE GETTING ON , tHIS IS A FRUSTRATING ILLNESS.

i HAVE JUST GOT OUT OF HOSPITAL AGAIN 3RD TIME THIS YEAR. I HAD MY GALLBLADDER OUT IN 2005 SINCE THEN I HAVE BEEN WORSE WITH PANCREAS ATTACKS, mY AMYLASE ARE NOT ALWAYS HIGH BUT PAIN IS STILL THE SAME.

THANKS MAXXI

Hi Jack37

HOW IS YOUR WIFE GETTING ON , tHIS IS A FRUSTRATING ILLNESS.

i HAVE JUST GOT OUT OF HOSPITAL AGAIN 3RD TIME THIS YEAR. I HAD MY GALLBLADDER OUT IN 2005 SINCE THEN I HAVE BEEN WORSE WITH PANCREAS ATTACKS, mY AMYLASE ARE NOT ALWAYS HIGH BUT PAIN IS STILL THE SAME.

THANKS MAXXI

SHE IS STILL HAVING PROBLEMS.....LIVER AND PANCREAS NUMBER STILL A LITTLE HIGH. SHE WAS IN THE HOSPITAL THREE TIMES THIS YEAR FOR PANCREAS ATTACK. LAST ERCP THEY CLEANED OUT THE BILE DUCTS AND PUT TEMPERARY STEND IN THERE. THEY ARE OUT NOW. SHE IS ON A NO FAT DIET ETC. STILL HAS PAIN AFTER SOME DINNERS. I ASKED THE DOCTOR IS THIS CANCER AND HE SAID HE DID NOT KNOW. I FEEL THIS IS ALL BECAUSE THEY OPERATED ON A FILLED GALLBLADDER AND DID NOT WAIT TILL IT EMPTY OUT. BEFORE THIS SHE WAS VERY HEALTHY.

because of the gallbladder problem they had her get a few cat scans. Well now the last one showed a nodual on her lung. It is about 3mm. What is this all about. This is some thing new. Her dad died of small cell lung cancer. Is this cancer. Anyone know anything about this. The doctors are on a wait and see. Should we go to a big city for this.???

Well, they want to do another ERCP on her. This time they are putting a stend in and will be doing another one in a month to take the stend out. Her liver number are high. Does anyone know what going on. Is this cancer or what??

Hey Jack , I hope things are better and you know more by now. I would not wait and see with the nodule on the lung because if it is cancer waiting just gives it time to spread. They can do a biopsy to see what it is. They also can do a scan for cancer its called a PET scan or something like that. With that test they give you a contrast dye by iv and then do a CT scan and the cancerous areas will light up. I would consult with another GI doc if you do not feel like your getting the answers you need or good care. You need to be able to trust your medical team.

Steph

Jack,

I have the same problem that your wife has. We have had identical things happen. Gallbladder removed, developed SOD (Sphincter of Odd) and then an ERCP. I am still having pain and am under pain control. Please be aware that there are NO KNOWN causes of Cancer related to SOD or Chronic Pancreatitis. So I don't believe your wife has cancer due to her pancreas but try going to St. Louis, MO to MTEC (Midwest Therapeutic Endoscopy Consultants.

God Bless you and Your Wife. COntinue to stick by her side, she really needs that.

Hope all gets better,
Mo'