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Long Term Swollen Lymph Nodes... Lymphoma? (Page 1)

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Hi Everyone,
My name is Kristin and I'm a 17 year old female. My lymph nodes (where my jaw meets my neck, I believe Submandibular) have been swollen for as long as I can remember, several years at least. I never thought much of this until a little over a month ago, when I noticed new swelling on the underside of my chin (not sure what this one's called). These three swellings are painless. It was then that I began researching lymphoma and registered that there might be a problem.
Some background: When I was a baby, I got frequent ear infections and had to have tubes implanted in my ears. These were taken out long ago and I haven't had problems with my ears since. I have not had regular medical involvement in my life. My insurance situation is weird and my mom has always had a "deal with it yourself" mentality about these things, so I rarely saw a doctor. I last went in the spring (for the first time in years) for irregular periods. My periods had been regular up until about 8 months prior to the appointment. The doctor observed my swollen lymph nodes and suggested bloodwork, but my mom was opposed to that idea. My periods evened out again shortly after, and nothing became of it.

The size of the nodes in my neck has remained constant the past few years. They're definitely swollen, but the swelling has not fluctuated at all. When I found the new one in my chin, I began to freak out. I just started this month at the University of Michigan, where I get free health service. I went in to the health center a couple days after the semester started to get a brief consultation. The doctor briefly examined me and suggested I see the ear, nose and throat specialist, who is not available until this coming Monday (the 24th). I will see him then, but, unfortunately, I got sick with a nasty cold a few days ago, so I'm afraid he will not be able to target the problem while I'm suffering from an infection that would cause my lymph nodes to swell anyway (even though my nodes were swollen long before the infection). I have been obsessing over this for a while now, and just want answers/to be able to rule out the really scary stuff. If he cannot find the problem due to my sickness, I will probably request bloodwork or a biopsy anyway, just to put my mind at ease.

Meanwhile, I was hoping you could give me your thoughts of my situation. Does it sound like it could be lymphoma?

I really appreciate any input.
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First Helper cherryhot2300
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replied September 20th, 2007
I'd just like to add that the nodes are probably about the size of a nickel (but slightly oval shaped) and don't protrude very much (not visually detectable). I wouldn't call them hard. I can't really tell if they're "moveable," but there seems to be some give when I press on them. Perhaps that clarifies a bit.
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replied October 4th, 2007
Extremely eHealthy
Hi!
Sorry for the delayed post!
I guess you've already seen the ENT doctor. Can you, please, share with us the new informations?
I wanna ask you if you are feeling the glands as very firm, rubbery-like?
Do you feel numbness on your face?
Do you find your mouth dry?
Are you having other symptoms such as: tiredness, nigh sweats, weight loss, itchy skin?
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replied February 15th, 2013
Hi, I was looking on here because I've got swollen lymph nodes on my ndck kind by my ear. It's been like this for a while now. I had gone into the hospital for something else but asked the dr about it. They have me a shot of antibiotics and the swelling want down. Came back about two weeks later. Now it's usually swollen more often than not and its so uncomfortable! It feels like I need to crack my neck in the spot it's in but it won't crack. It's such a pressure-filled ache. Ugh it's awful. But anyway I had seen what you said, and the night sweats,tiredness, and possibly weight loss are me. I say possible weight loss because I don't weigh myself and over the past couple months my boyfriend says I've lost weight but idk. I've always been very petite, always less than 100 pounds. The swelling is consistent with headaches and my tonsils being swollen. All my life I've had doctors tell my I've got "extraordinarily large tonsils for such a small person. You should really have these removed." But my family could never afford to have it done for me. Idk reading about these things on the Internet terrifies me, cause its like you've got a minor scrape on your knee but you're dying..idk they make it seem like everything is waay worse then it actually is. I know this post is waay late and mega long but I hope you can find the time to get back to me.
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replied October 4th, 2007
The ENT wasn't very helpful... He immediately was going to stick a probe thing down my throat through my nostrils. He numbed them before even asking me any questions or examining me. Then he started feeling around and said quite quickly that he didn't feel lymph nodes. That some are just more palpable than others. This makes sense regarding the submandibular ones, since they're symmetrical and have been like that forever, but it doesn't explain the new swelling under my chin. I asked him about that and said it was probably just the result of an infection. I hadn't been sick for a long time previously, and it's been swollen for 2 month now. I'm thinking about asking for a second opinion.

The swelling under my chin feels rubbery. It's easy for me to push it up. I don't have any other symptoms. Nothing feels numb and my mouth isn't dry (i asked him about swollen salivary glands but he said that because i don't have that symptom, it probably isn't), but the lower part of my face almost feels like it's sagging. It also feels like there is more space under my tongue, probably because the swelling is directly below and dragging it down a bit.

I don't know if that provides any clarity. For a while I even considered the possibility of it being a fat deposit, since I did gain a little weight over the summer, but I've lost the weight and then some since then, and it's still there. Plus it doesn't really feel like fat.
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replied October 5th, 2007
Extremely eHealthy
Hi Kristie_chick
I'll suggest you to seek a second opinion, even third if you need to get an answer for your symptoms.
In a meantime, I'll try to find some helpful information for you and I'll write to you immediately.
Thinking of you!
Marija
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replied October 7th, 2007
thanks so much. i truly appreciate it! i'll make another appointment in the near future.
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replied August 24th, 2009
hey,
i'm 17, and i've been having the same problem with my lymph nodes in the same spot, just not under my chin. their going to be there for almost a year now, and it all started once i had mono. my mom wants to take me to an emt so she made an appointment for today, but you saying it wasn't helpful kind of scares me. please keep me posted.
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replied August 27th, 2009
I am 35 and the doctor has noticed I have swollen lympth nodes in my jaw, neck and under my arms have had it for over a year that we noticed anyhow and they aren't getting bigger but never go away. Have had ultrasounds to confirm and they simply don't know why. Went to an ENT they turned me away said they were enlarged but not a lot and I was not worth his time. I sometimes feel the one under my right arm pit as it sometimes gets milfy sore. Anyhow....they initially thought this was all caused from a bad tooth that the dentist broke his drill bit in they ended up taking out the tooth but the symptom never went away....I wish i knew what it was and want to push the fact that this is not normal. They admit it isn't and leave it at that.....gggrrrrrr......I have four kids to look after and sometimes get scared i won't be here one day for them!!!!
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replied September 8th, 2009
Okay so I've had your exact same problem. I had mono for about a year and a half three years ago. Since then the swelling in my lymph nodes of my neck haven't gone down. I've been prescribed about every antibiotic available today and a year ago my doctor made me an appointment with an ENT. My ENT set up a date to get my tonsils removed and said it would help. My surgery was in April and my lymph nodes are still enlarged. I've had a MRI and now I'm scheduled for surgery again on the seventeenth of September to get a Lymph Node taken out and biopsied.
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replied September 24th, 2009
I too have had a swollen node, right below jaw, for several months now. No cold or nothing, and lately it's beginning to hurt. My ent says if antibiotics don't clear it up then he may schedule me for a biopsy. I'm really really nervous and scared of this. Can someone tell me how bad it is?
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replied May 6th, 2010
swollen glands
Im a 17 year old female & for the past 2 1/5 months my glands have been swollen & i have an ear infection, i went to the doctor & got medication but it made me very sick & bothered my stomach alot, so when i had two left I avoided taking them until my next appointment than my doctor said since it had already been a week two pills wouldnt really benifit me. So i didnt end up taking them, he said try & let it heal naturally cuz i also got blood work done & x rays on my chest & everything came back good. So he is unsure of the problem. I also lost weight, muscle weight like my legs are thinner & same with my arms, actualy my whole body is smaller. I worry alot about my recent weight loss, the ear infection & the swollen glands, my glands dont hurt only when im smoking or coughing. Every so often I get a cold & i cough alot. my ears also ring alot, not so much lately but they still ring, sometimesfor nearly 15 minutes Solid.. but usually only one ear rings at a time. im not sure what this could be, i have an appointment tommorow but ive been doing some reading & im not sure that i have the most intelegant doctor, the first time i went to him he never even notived the ear infection than two or three weeks later i went back cuz i was still sick & than he noticed my head is swollen & there is all these weird bumps on my head. he said for now just try & let it heal naturally but if it gets worse come back sooner so i made an appoinemtnet for two weeks; its tomorow but im just really stressing about the entire situation.
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replied April 4th, 2011
I am a 17 year old boy who somewhat has similar symptoms. I have a bump on my upper neck right below my head. I know everyone is saying that it is lymph nodes and stuff but I'm not sure that is my lymph node. However it doesn't hurt unless I aply pressure and slot of it. It's not visible to anyone, it is somewhat hard, and it can be moved a little bit. Well actually I can't say that for sure. It seems like it does. This has been here for about a couple months or so. Any response or possible explanation would help a lot!
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replied October 20th, 2011
My son has a swollen node on his throat. just one, hard, non fixed and non tender. the dr said it's due to his acne and not uncommon. He put him on bactrim (antibiotic) and Duac a facial topical for external treatment of his acne...which is working for him so far. If any of you have acne this could be the culprit, just a thought. His node is still there but we've only been treating the acne a week or so with the meds. The dr said to give the node several weeks to subside.
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replied February 1st, 2012
Lump under my Jaw
I am 20 years old and have been told on numerous occasions that the hard lump under my jaw is due to Acne and the dr always says it will go down within a few weeks. I have had this lump for around 4 years now, my acne has almost completely gone yet the lump has stayed the same size the whole time. I hate it that the dr just tells me the same thing every time and it makes me feel like i'm wasting his time yet having a hard lump that doesn't hurt in my neck is rather worrying!
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replied December 13th, 2011
Swollen lymph nodes.
I am a 5th year medical student and from what i can tell you about lymph nodes is that they often get inflamed and swollen, this is very important cos your body is mounting an immune response against infection, hence the size, it should return back to normal but most times it stays the same way for long periods. if the node is bigger, movable,painful.....then that could be a sign of normal inflammation, RED FLAGS are immovable nodes, marked swelling, painless, and in all locations of the body including neck, underarm,inguinal region....with other signs like pus, blood,discoloration, along with marked weight loss, illness.....Note that these symptoms may not all appear at once. I hope this was helpful.
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replied April 7th, 2012
hi, i am 34 with several swollen lymph nodes on the left side of my neck. I have had blood tests taken and everything has returned within normal limits. My dr has no explanation for the swollen nodes and naturally i am becoming more worried. I have no other symtoms and they dont hurt when pressed, or do they change in size. I was prescribed elidel cream for ezcema in january and was unaware that it has a black box warning of the side effects on the immune system and lymphoma. Can anyone help or advise me what to do.
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replied July 5th, 2012
Hey, I'm 24 and I've had one swollen lymph node on the right side of my neck under my jaw for around 6 years now. I first went to the doctors with it when I was around 18. I'd recently been ill - fever, swollen glands etc - and had since got better, however I noticed that one of my glands had not gone down even though all my other symptoms had disappeared. The doctor told me that I had actually had glandular fever (mono) without realising it. He said the gland would go down in a few weeks or months, but to be paitent because the virus of glandular fever tends to stay in the system for a long, long time. After around a year my gland had still not gone down, so I went to the doctors again. He ran a blood test to check my white blood cell count etc, which came back normal. He finally concluded that in all likeliness I had a reactionary gland which was highly sensitive and responsive whenever I had something in my system, and which had reacted strongly to the glandular fever. He said that as long as I didn't have any other symptoms, he thought it probably wasn't a problem.
Since then the gland size has stayed the same over the years - never increasing or decreasing. It is not tender or sore, although occasionally the skin around that area feels slightly hot and itchy - particularly when I am tired, ill, or when I have done some exercise. I have no idea if maybe the doctor misdiagnosed me, but as he did not seem particularly worried at the time, and since then the situation has remained constant over the years without getting worse or changing, I have kind of just assumed that its nothing to worry about.
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replied July 26th, 2012
Please GO SEE a new doctor!!! ASAP!!! I'm inthe same boat... But now I'm waiting on my CT of my chest to see if I have lymphoma.
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replied September 24th, 2012
I too have had the same problem for about two years. According to my ultrasound, my lymph node under my jaw, just under my ear is enlarged. Nobody knows why, however the two opinions are grinding my teeth or rheumatoid arthritis.
I am not eager to get a biopsy done as i am scared it may cause more harm. It does cause me ear pain and is really affected when i drink alcohol. The node is hard to touch.
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replied September 28th, 2012
Swollen Jaw and Lymph Nodes - No Voice
I have had no voice for over a year, swollen jaw and neck; had surgery on my jaw joint 3 months ago. Now I still have a big lump on my throat (Surgeon said it was from the operation) but I still have a very painful jaw, that swells up like a bubble sometimes. I can hardly eat. I had an MRI and CT Scan about 6 months ago they all came up normal, but I do have a low immune system and my blood pressure is very high, but the Dr says it's from the pain. I am now on Tramadol 50mg; it atleast helps me get some sleep at night, but I just want to know what is going on. I went to Dentist first and they removed all my back teeth saying the swelling in my jaw was from an infection. I now have no back teeth and worse now than a year ago. So if a Dentist says remove your back teeth I would definitely make sure he can guarantee that the pain will go away. Drs have no clue they just give me pain pills. I have now went to a Pain Magament Councillor and he told me that obviously I am going through alot of stress and these symptoms could be causing this so I try to tell the dr I wasn't stressed and frustrated a year ago when all this crap happened, so it wasn't stress. SO frustrating to try n explain with no voice. My throat hurts if I try to strain it or speak 2 long. I am already a small person (I weigh 99 lbs (7 stone) and I'm 5ft 3inch) If anyone has ANY CLUE please I'm willing to try anything this point - thanx - Faith
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replied January 13th, 2013
swollen lymph nodes
My lymph nodes have been swollen for over a month. My doctor diagnosed me with post nasal drip b/c I show symptoms for that and she believes that my nodes are enlarged due to an infection. My nodes on my right side of my neck became tender, painful and swollen first...but it is both sides now. My doc is doing a second panel and she retested me for strep (negative again) and retesting me for mono (waiting for results). The reason I wanted to share this is b/c the last few forums I read about swollen lymph nodes is that people are saying it's painless but my lymph nodes, there's a lot of pain! It gets so bad that it feels like someone is choking me. I forgot to mention that when I got my first blood results in my doc told me my white blood count was alittle higher than normal but not as high as lymphoma, but this was due to an infection.
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replied March 26th, 2013
THIS IS YOUR ANSWER
I'm 18 year old girl and right lymph node on my neck had been swollen since I had mono, 7 months ago and it has been getting worse and I went to a infectious doctor and apparently I have chronic fatigue disorder from mono, and my body Is attacking a virus that is not there caused by me not getting to my deep sleep. Soon at the end of April 2013 I will have my medicine tweeked for my anxiety and for me to hit that deep sleep. Mostly if someone can walk into your room and talk to you and you can wake up fast, that could be Chronic Fatigue, look it up. By the way if it didn't go away the first time, stop taking antibiotics, it can make you hospitalized.
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