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Q: Long Term Swollen Lymph Nodes... Lymphoma?
asked by: kristi_chick on September 20th, 2007
New User
Hi Everyone,
My name is Kristin and I'm a 17 year old female. My lymph nodes (where my jaw meets my neck, I believe Submandibular) have been swollen for as long as I can remember, several years at least. I never thought much of this until a little over a month ago, when I noticed new swelling on the underside of my chin (not sure what this one's called). These three swellings are painless. It was then that I began researching lymphoma and registered that there might be a problem.
Some background: When I was a baby, I got frequent ear infections and had to have tubes implanted in my ears. These were taken out long ago and I haven't had problems with my ears since. I have not had regular medical involvement in my life. My insurance situation is weird and my mom has always had a "deal with it yourself" mentality about these things, so I rarely saw a doctor. I last went in the spring (for the first time in years) for irregular periods. My periods had been regular up until about 8 months prior to the appointment. The doctor observed my swollen lymph nodes and suggested bloodwork, but my mom was opposed to that idea. My periods evened out again shortly after, and nothing became of it.

The size of the nodes in my neck has remained constant the past few years. They're definitely swollen, but the swelling has not fluctuated at all. When I found the new one in my chin, I began to freak out. I just started this month at the University of Michigan, where I get free health service. I went in to the health center a couple days after the semester started to get a brief consultation. The doctor briefly examined me and suggested I see the ear, nose and throat specialist, who is not available until this coming Monday (the 24th). I will see him then, but, unfortunately, I got sick with a nasty cold a few days ago, so I'm afraid he will not be able to target the problem while I'm suffering from an infection that would cause my lymph nodes to swell anyway (even though my nodes were swollen long before the infection). I have been obsessing over this for a while now, and just want answers/to be able to rule out the really scary stuff. If he cannot find the problem due to my sickness, I will probably request bloodwork or a biopsy anyway, just to put my mind at ease.

Meanwhile, I was hoping you could give me your thoughts of my situation. Does it sound like it could be lymphoma?

I really appreciate any input.
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kristi_chick
replied on September 20th, 2007
New User
I'd just like to add that the nodes are probably about the size of a nickel (but slightly oval shaped) and don't protrude very much (not visually detectable). I wouldn't call them hard. I can't really tell if they're "moveable," but there seems to be some give when I press on them. Perhaps that clarifies a bit.
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MandMs
replied on October 4th, 2007
Extremely eHealthy
Hi!
Sorry for the delayed post!
I guess you've already seen the ENT doctor. Can you, please, share with us the new informations?
I wanna ask you if you are feeling the glands as very firm, rubbery-like?
Do you feel numbness on your face?
Do you find your mouth dry?
Are you having other symptoms such as: tiredness, nigh sweats, weight loss, itchy skin?
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kristi_chick
replied on October 4th, 2007
New User
The ENT wasn't very helpful... He immediately was going to stick a probe thing down my throat through my nostrils. He numbed them before even asking me any questions or examining me. Then he started feeling around and said quite quickly that he didn't feel lymph nodes. That some are just more palpable than others. This makes sense regarding the submandibular ones, since they're symmetrical and have been like that forever, but it doesn't explain the new swelling under my chin. I asked him about that and said it was probably just the result of an infection. I hadn't been sick for a long time previously, and it's been swollen for 2 month now. I'm thinking about asking for a second opinion.

The swelling under my chin feels rubbery. It's easy for me to push it up. I don't have any other symptoms. Nothing feels numb and my mouth isn't dry (i asked him about swollen salivary glands but he said that because i don't have that symptom, it probably isn't), but the lower part of my face almost feels like it's sagging. It also feels like there is more space under my tongue, probably because the swelling is directly below and dragging it down a bit.

I don't know if that provides any clarity. For a while I even considered the possibility of it being a fat deposit, since I did gain a little weight over the summer, but I've lost the weight and then some since then, and it's still there. Plus it doesn't really feel like fat.
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MandMs
replied on October 5th, 2007
Extremely eHealthy
Hi Kristie_chick
I'll suggest you to seek a second opinion, even third if you need to get an answer for your symptoms.
In a meantime, I'll try to find some helpful information for you and I'll write to you immediately.
Thinking of you!
Marija
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kristi_chick
replied on October 7th, 2007
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thanks so much. i truly appreciate it! i'll make another appointment in the near future.
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chelsie_123
replied on August 24th, 2009
New User
hey,
i'm 17, and i've been having the same problem with my lymph nodes in the same spot, just not under my chin. their going to be there for almost a year now, and it all started once i had mono. my mom wants to take me to an emt so she made an appointment for today, but you saying it wasn't helpful kind of scares me. please keep me posted.
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kiwi3221
replied on August 27th, 2009
New User
I am 35 and the doctor has noticed I have swollen lympth nodes in my jaw, neck and under my arms have had it for over a year that we noticed anyhow and they aren't getting bigger but never go away. Have had ultrasounds to confirm and they simply don't know why. Went to an ENT they turned me away said they were enlarged but not a lot and I was not worth his time. I sometimes feel the one under my right arm pit as it sometimes gets milfy sore. Anyhow....they initially thought this was all caused from a bad tooth that the dentist broke his drill bit in they ended up taking out the tooth but the symptom never went away....I wish i knew what it was and want to push the fact that this is not normal. They admit it isn't and leave it at that.....gggrrrrrr......I have four kids to look after and sometimes get scared i won't be here one day for them!!!!
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Brianna72392
replied on September 8th, 2009
New User
Okay so I've had your exact same problem. I had mono for about a year and a half three years ago. Since then the swelling in my lymph nodes of my neck haven't gone down. I've been prescribed about every antibiotic available today and a year ago my doctor made me an appointment with an ENT. My ENT set up a date to get my tonsils removed and said it would help. My surgery was in April and my lymph nodes are still enlarged. I've had a MRI and now I'm scheduled for surgery again on the seventeenth of September to get a Lymph Node taken out and biopsied.
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mkcelizbeth
replied on September 24th, 2009
New User
I too have had a swollen node, right below jaw, for several months now. No cold or nothing, and lately it's beginning to hurt. My ent says if antibiotics don't clear it up then he may schedule me for a biopsy. I'm really really nervous and scared of this. Can someone tell me how bad it is?
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