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Conditions and Diseases > Multiple Sclerosis Forum > Question About Possible New Diagnosis Multiple Sclerosis ???
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Q: Question About Possible New Diagnosis Multiple Sclerosis ???
asked by: akrieser on September 19th, 2007
New User
I am brand new to this forum and have some questions for anyone who may be able to help me out.
First off I am 31 years old and have had a history of migraines for a few years and over the last few months I have had a large increase in the # of migraines I would get. Typically I would get an "aura" before where there would be bright spinning lights in front of my eye, either on the right or left side but not both. this would last 10-15 minutes. Then sometimes a headache would follow and sometimes not. Last Monday I got this weird headache different than my migraines, it was pulsating in my head and also I had the vision change for over an hour and a half. I called my doctor and she ordered a CT of my head, so I had that done and afterwards I got to thinking that the CT would just show if I had a bleed or a tumor and I was more worried about my vessels. So I called her back and she orded at CTA (angiogram) So a radiologist read my first CT and said that he saw a vague hypodensity in the right periventricular area and recommened and MRI with and without contrast. A seperate radiologist read my CTA as normal. So I had the MRI done and it came back saying "There are oval shaped focal areas of increased intensity in the right periventricular white matter. There are 4 spots on the right and 2 on the left posterios periventricular white matter. 2 on the right are quite typical for Multiple Sclerosis"
So does this mean that I have MS or could it be something different? The only symptoms I've been having are the visual changes with headaches and since last night I've had cold feet. Weird, could be coincidental or not I don't know.
I have an appointment with an opthamologist in the morning because I've read about Optic Neuritis and that the vision changes could be due to this and the optic neuritis is an indicator of MS. I haven't been able to find the treatment for Optic neuritis though. Does anyone know anything about this?
I also have an appt with a neurologist next Tuesday but am already finding it hard to wait until then.
I am freaking out! I have 4 kids at home, a 7 year old, 4, 2, and 3 months and don't know what this MS could do if that is what this is. There is so much info on the internet but I am hoping to hear from people who know about this personally and can shed some light on it for me. Thanks to you who are reading this and will give me any information that you can.
Andrea
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ktram
replied on September 21st, 2007
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Everything Will Be Ok!!
Hi Andrea, I have so much to say, first of all read a lot and only apply the part that pertains to you. The first thing you'll notice is that everyone has different symptoms and everyone's MS is in different stages moving at different speeds. I was diagnosed 14 years ago at age 28, great job, unmarried with no children but hoping for all and more. I too had the headaches and vision loss with minor numbness in one toe. It peaked on Xmas Eve that year and thought it was a problem with my eye so I went to an Opthomologist who cannot diagnose this disease, it's not in his realm of expertise but he did refer me to a Neorologist. He left me with the options of a brain tumor, an aneurysm or some brain disease ... Christmas was awful! I quickly got into the Neurologist despite the holiday and was diagnosed after an MRI and a spinal tap ... if you had an epidural with your kids this is about the same, followed by rest the remainder of the day ... this detects the absence of an enzyme in your spinal fluid which indicates MS. (Pardon my lack of medical terms but its been a long time.)

The thing I want to tell you the most is that doctors are quick to prescribe drugs and the drugs they prescribe were scary to me. If I had taken the beta interferon back then I would have had a much different life ... no children possible (I now have 2), flu like symptoms half of each month, depression and a high suicide rate. Go onto some of the treatment drug websites and read the side effects ... totally unacceptable. Plus if you take those drugs now what will you do when your 40 .. 50 .. 60 ??

You need to get in touch with YOU .. what makes you tired? REST ... I know how hard it is being a Mom but when you let yourself get rundown or let your nutrition suffer you'll pay! I had minor symptoms after both births (this may be what had heightened your symptoms) but some rest and good food helps. I also went to a wellness center for some homeopathic solutions. (If your doctor is any good he/she'll applaud this especially because of your age and only minor symptoms) I eliminated obvious foods like caffeine that give your body mixed signals, artificial sweeteners, prepackaged meals (lots of sodium, not much nutrition) and most sweets (still have a little occasionally but my MS mimics diabetic symptoms -- I was tested for diabetes several times as a teenager because this) The diet changes helped the headaches immensely. The wellness center helped me with a good protein supplement, b vitamin for energy and stamina and Evening Primrose Oil which has the GLA enzyme that you are missing in your spinal fluid. Also, I don't know where you're from but I'm from Texas and the heat kills me. When my body temperature rises I begin to get the spots in my eyes and the glowing sensation.

I don't know about you but I don't work well without all of the information, most women don't .. especially us doing the Wonder Woman thing ... kids, jobs, house ... the loss of control in this situation is unnerving! When they finally diagnose you, whatever you have you'll feel relieved just because you know ... then from there you'll start working through the details. Be prepared for them to say "incurable disease" and for the waiting rooms to be filled with people that have different stages of the disease or Parkinsons or worse. I tried a MS Society meeting or two but it wasn't for me ... I do read these forums from time to time just to keep up with the latest but sitting in a room full of people that are SICK seemed like a self fulfilling prophecy and I need to keep my focus on my health, not wonder if I have symptoms that I haven't imagined yet.

I'm rambling but I know this can be a Mom's worst nightmare. Thinking about taking my girls to college and walking down the aisle at their wedding is definately incentive to focus on my health and if I have to roll down in a wheelchair, well there are worse things. Now, I'm just being sappy! Anyway, I don't usually respond to these but your letter made my old feelings rush back and I hope I've helped in some small way. Please write me again if you have more questions.
Ktram
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zainiff
replied on November 2nd, 2007
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Please Do Reply
you said you r not on medications ,thats what i want to do ,iam 27 and recently diagnosed with ms ,iam so confused what to do,i want to have a family .iam not married yet .but my doctor thinks i should go for medications .please help me
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