Frequent Unexplained High Fevers In Toddle Posted: 09-18-07 11:17am
my 2 year old son keeps getting fevers of
105 and above. They have run test after
test, from blood cultures to immune test.
He has seen and immunologist, and
infectious disease specialist. They keep
saying that is just how his body works.
That is very hard for me to accept. He
never has any other symptoms with the
fevers. This has me very worried
especially when they are so high and can
last for 2-3 days. I have to alternate
motrin and tylenol, cause the motrin alone
won't keep it down, How worried should I
be and what other causes good it be.
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mominashoe
Moderator
Joined: 04 Dec 2007 Posts: 1782 Location: , KS USA
Thanks: 41
Thanked:26
Posted: 04-24-08 15:09pm
Did you ever find out anything more
conclusive in this case? I am very
interested to know what the actual cause
was if you found it.
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kaseyd
New User, Becoming EHEALTHy
Joined: 20 Jul 2007 Posts: 6 Location: ga
unexplained fevers Posted: 04-26-08 07:47am
So far he has been diagnosed with
"Periodic Fever Syndrome" There are
several kinds of this. He has to have DNA
testing to find out which one. If he has
one called Mediteranian Fever then he will
have to take medication to protect his
kindneys, but the think he has one that
goes by PFAPA (long name) and he will
grow out of it.
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MomofGrace
New User, Becoming EHEALTHy
Joined: 19 May 2008 Posts: 1
unexplained fevers Posted: 05-19-08 11:51am
Kaseyd, thank you for your post. I've
been searching high and low for
information on frequent fevers in
toddlers. My 19 month old daughter has
frequent high fevers that at times spike
up over 106 degrees. Every time we take
her to doctor they tell us it's just
viral. The times it has spiked over 106,
we've gone to the ER and the basic tests
they do always come back normal. My
husband and I have an appointment with the
pediatrician tomorrow to discuss bringing
our daughter to a specialist.
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snottraggs
New User, Becoming EHEALTHy
Joined: 25 Jun 2008 Posts: 3
Posted: 07-04-08 07:10am
Wow, this is just like my son. Since birth
he has had fever and had ended up
hospitalised due to it. He was over 40.6
and they found high imflamation markers in
his blood but no infection. He continues
to get these fevers and they have tested
him for nearly everything. I get fed up
with the Virus brush off that we often
get.
would be interested in what information
you get.
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Kaukay888
New User, Becoming EHEALTHy
Joined: 06 Aug 2008 Posts: 1
Posted: 08-06-08 01:53am
our son who is 8 months old keeps having
these bounds of fever, like once every
month and the doctors weren't able to
figure out what have been wrong with him.
Is it possible that this is due to some of
illnesses. There were no other symptoms;
the fevers just came without any warnings.
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RookieDaD
New User, Becoming EHEALTHy
Joined: 10 Aug 2008 Posts: 2
unexplained fevers Posted: 08-10-08 14:44pm
Thanks for your post. Seems we are not
alone in this heart wrenching fever
mystery. Our 19 months old son has been in
the trenches with these fevers and we get
the same feed back by our Doctors. We hope
he does grow out of it soon, and we wish
the same for your little ones. Keep you
posted if we find anything new to share.
Thanks
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clokane1
New User, Becoming EHEALTHy
Joined: 31 Aug 2008 Posts: 3
unexplained fevers Posted: 08-31-08 03:46am
My son I 'm realizing has the same exact
thing you are all talking about. Series of
fevers we are now on our third in the last
month in a half that gets up to 105.
Wonder where this comes from ?
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RookieDaD
New User, Becoming EHEALTHy
Joined: 10 Aug 2008 Posts: 2
unexplained fevers Posted: 08-31-08 14:43pm
Hello everyone,
posted here a couple of weeks ago and
wanted to share new information with you
all. My son(20months) is still having
these frequent fevers and we are in the
middle of one now. our last episode 2 1/2
weeks ago, ended with yet another trip to
the doctors. On this trip we learned
about a clinic in Bethesda, Md with
NIH(National Institute of Health). This
Clinic is under Pediatric Rheumatology
which includes Periodic Fever Syndrome.
Our doctor is finishing up blood work to
rule out a few things, and we are waiting
on a test kit from the center. This is all
new to us and we are still looking into
it. here is the web site if you are
interested...
niams.nih.gov
look under pediatric rheumatology
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Jaydensmommy
Advanced Support Team
Joined: 28 Jan 2004 Posts: 1770 Location: , USA
Thanks: 4
Thanked:1
Posted: 09-09-08 18:28pm
My daughter finally outgrew this at 4 yrs
of age!! She had the same thing except
her doctor just kept saying she had an
overactive immune system and that
everytime her body thought it was going to
get sick she'd spike a fever. I couldn't
even allow her around people with the
common cold because it would reak havoc on
her system.
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clokane1
New User, Becoming EHEALTHy
Joined: 31 Aug 2008 Posts: 3
Posted: 09-20-08 15:21pm
has anyone gotten feedback from the test
kit ? What does it entail?
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stars4jc
New User, Becoming EHEALTHy
Joined: 05 Oct 2008 Posts: 1
My daughter has the same thing! Posted: 10-05-08 20:50pm
So glad to hear that there are others out
there. We've had five episodes since
April of fevers that start at 103.7 and
above, and we have to do the
tylenol/motrin thing and sometimes have to
add lukewarm baths to get fever down.
When the 105 fever was there for 5 days,
we went to the ER, where we found out the
same old thing...VIRUS. So, at this point
I"m tracking the fevers and will give the
doc an update at her 2 year visit in Dec.
I've googled it, and would prefer not to
think of all the what-ifs!
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clokane1
New User, Becoming EHEALTHy
Joined: 31 Aug 2008 Posts: 3
Steriods Posted: 10-14-08 09:43am
Hello my son 15 1/2 months had a visit w/
an immunologist last week he actually had
a fever on his appt. They gave 3 ml of
Prednisolone and it was gone within hours
and did not come back . Usually he would
have the fever for another four-five days.
I don't believe in this type of drug but
it worked and its a clue that he may have
one of the Periodic Fever Syndromes.
Did any of your children have slight
rashes on their faces . He does and he
also has now a rash raise and red dry spot
on his shoulder.
