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Frequent Unexplained High Fevers In Toddle

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kaseyd

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Joined: 20 Jul 2007
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Location: ga
Frequent Unexplained High Fevers In Toddle
Posted: 09-18-07 11:17am

my 2 year old son keeps getting fevers of 105 and above. They have run test after test, from blood cultures to immune test. He has seen and immunologist, and infectious disease specialist. They keep saying that is just how his body works. That is very hard for me to accept. He never has any other symptoms with the fevers. This has me very worried especially when they are so high and can last for 2-3 days. I have to alternate motrin and tylenol, cause the motrin alone won't keep it down, How worried should I be and what other causes good it be.
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mominashoe

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Posted: 04-24-08 15:09pm

Did you ever find out anything more conclusive in this case? I am very interested to know what the actual cause was if you found it.
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kaseyd

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Joined: 20 Jul 2007
Posts: 6
Location: ga
unexplained fevers
Posted: 04-26-08 07:47am

So far he has been diagnosed with "Periodic Fever Syndrome" There are several kinds of this. He has to have DNA testing to find out which one. If he has one called Mediteranian Fever then he will have to take medication to protect his kindneys, but the think he has one that goes by PFAPA (long name) and he will grow out of it.
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MomofGrace

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Joined: 19 May 2008
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unexplained fevers
Posted: 05-19-08 11:51am

Kaseyd, thank you for your post. I've been searching high and low for information on frequent fevers in toddlers. My 19 month old daughter has frequent high fevers that at times spike up over 106 degrees. Every time we take her to doctor they tell us it's just viral. The times it has spiked over 106, we've gone to the ER and the basic tests they do always come back normal. My husband and I have an appointment with the pediatrician tomorrow to discuss bringing our daughter to a specialist.
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snottraggs

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Joined: 25 Jun 2008
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Posted: 07-04-08 07:10am

Wow, this is just like my son. Since birth he has had fever and had ended up hospitalised due to it. He was over 40.6 and they found high imflamation markers in his blood but no infection. He continues to get these fevers and they have tested him for nearly everything. I get fed up with the Virus brush off that we often get.

would be interested in what information you get.
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Kaukay888

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Joined: 06 Aug 2008
Posts: 1

Posted: 08-06-08 01:53am

our son who is 8 months old keeps having these bounds of fever, like once every month and the doctors weren't able to figure out what have been wrong with him. Is it possible that this is due to some of illnesses. There were no other symptoms; the fevers just came without any warnings.
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RookieDaD

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Joined: 10 Aug 2008
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unexplained fevers
Posted: 08-10-08 14:44pm

Thanks for your post. Seems we are not alone in this heart wrenching fever mystery. Our 19 months old son has been in the trenches with these fevers and we get the same feed back by our Doctors. We hope he does grow out of it soon, and we wish the same for your little ones. Keep you posted if we find anything new to share. Thanks
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clokane1

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Joined: 31 Aug 2008
Posts: 3
unexplained fevers
Posted: 08-31-08 03:46am

My son I 'm realizing has the same exact thing you are all talking about. Series of fevers we are now on our third in the last month in a half that gets up to 105. Wonder where this comes from ?
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RookieDaD

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Joined: 10 Aug 2008
Posts: 2
unexplained fevers
Posted: 08-31-08 14:43pm

Hello everyone,
posted here a couple of weeks ago and wanted to share new information with you all. My son(20months) is still having these frequent fevers and we are in the middle of one now. our last episode 2 1/2 weeks ago, ended with yet another trip to the doctors. On this trip we learned about a clinic in Bethesda, Md with NIH(National Institute of Health). This Clinic is under Pediatric Rheumatology which includes Periodic Fever Syndrome. Our doctor is finishing up blood work to rule out a few things, and we are waiting on a test kit from the center. This is all new to us and we are still looking into it. here is the web site if you are interested...
niams.nih.gov

look under pediatric rheumatology
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Jaydensmommy

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Joined: 28 Jan 2004
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Posted: 09-09-08 18:28pm

My daughter finally outgrew this at 4 yrs of age!! She had the same thing except her doctor just kept saying she had an overactive immune system and that everytime her body thought it was going to get sick she'd spike a fever. I couldn't even allow her around people with the common cold because it would reak havoc on her system.
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clokane1

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Joined: 31 Aug 2008
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Posted: 09-20-08 15:21pm

has anyone gotten feedback from the test kit ? What does it entail?
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stars4jc

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Joined: 05 Oct 2008
Posts: 1
My daughter has the same thing!
Posted: 10-05-08 20:50pm

So glad to hear that there are others out there. We've had five episodes since April of fevers that start at 103.7 and above, and we have to do the tylenol/motrin thing and sometimes have to add lukewarm baths to get fever down. When the 105 fever was there for 5 days, we went to the ER, where we found out the same old thing...VIRUS. So, at this point I"m tracking the fevers and will give the doc an update at her 2 year visit in Dec. I've googled it, and would prefer not to think of all the what-ifs!
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clokane1

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Joined: 31 Aug 2008
Posts: 3
Steriods
Posted: 10-14-08 09:43am

Hello my son 15 1/2 months had a visit w/ an immunologist last week he actually had a fever on his appt. They gave 3 ml of Prednisolone and it was gone within hours and did not come back . Usually he would have the fever for another four-five days. I don't believe in this type of drug but it worked and its a clue that he may have one of the Periodic Fever Syndromes.

Did any of your children have slight rashes on their faces . He does and he also has now a rash raise and red dry spot on his shoulder.
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