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Leg Pain, Temperature Change, Swelling, No Pulse

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September 8th, 2007
My daughter had a leg injury from a dirt bike accident and no one can figure out what is wrong with her.

Her lower leg is sometimes very painful with swelling, it gets stone cold, changes color, sometimes can't feel pulse in foot and she gets some numbness in her toes. It is not a continuous thing, it comes and goes. When it first happened, the doctor said it was an arterial spasm and he gave her blood pressure medicine by IV and that took care of the symptoms for about 6 months. They came back with a vengence after 6 months and she spent a week in the hospital trying to find out what was going on with her leg.

We have had a CT scan, Dopplar, MRI, MRV, MRA, blood flow studies, xrays, blood workup and observation.

No one can tell me why my daughter's leg is trying to die on her (that's the only way to describe the symptoms she is having in one fell swoop).

Does anyone out there have any idea what could be causing this problem?

I'm getting desperate!!!!!

Thanks,
MB
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sillyakchick
replied September 9th, 2007
Extremely eHealthy
I suggest you have some compartment pressure readings taken. It sounds like it could possibly be compartment syndrome.
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mbooth16
replied September 10th, 2007
Thanks, I'll try that.
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mbooth16
replied September 12th, 2007
the Doctor Says No
The doctor says this is not what her problem is. Any other ideas?
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sillyakchick
replied September 13th, 2007
Extremely eHealthy
Just a stretch--maybe he should send her for nerve testing (EMG/NCV tests). How does he KNOW that she doesn't have chronic compartment syndrome?
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mbooth16
replied September 13th, 2007
He says she is missing one or two key symptoms. We have an appointment with a new Orthopedic doctor on the 25th. I'm hoping they may have an answer for us. The only 2 tests that I can think of that they haven't done yet are EMG and Angiogram. They have done everything else that I know of. I'm gonna ask this new Orthopedic doctor about compartment syndrome too. How do they test for that?

Thanks,
Mary B
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sillyakchick
replied September 13th, 2007
Extremely eHealthy
mbooth16 wrote:
He says she is missing one or two key symptoms. We have an appointment with a new Orthopedic doctor on the 25th. I'm hoping they may have an answer for us. The only 2 tests that I can think of that they haven't done yet are EMG and Angiogram. They have done everything else that I know of. I'm gonna ask this new Orthopedic doctor about compartment syndrome too. How do they test for that?

Thanks,
Mary B


When we test for it, we have the patient run on a treadmill for 20 mins, then using a syringeand a pressure monitor fluid is drawn off. It's not too painful. I hope they figure it out soon, that sounds scary!

All the best.

Heather
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mbooth16
replied September 23rd, 2007
They did test her for that then the first time it happened, but they didn't have her on a treadmill first. Would that make a difference? They were trying to keep her off of it at that point because of the blood pressure medicine they had given her in the IV. Any other ideas? Or should I get them to re-test her for this one?

I appreciate your help on this!!!!
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sillyakchick
replied September 24th, 2007
Extremely eHealthy
mbooth16 wrote:
They did test her for that then the first time it happened, but they didn't have her on a treadmill first. Would that make a difference? They were trying to keep her off of it at that point because of the blood pressure medicine they had given her in the IV. Any other ideas? Or should I get them to re-test her for this one?

I appreciate your help on this!!!!


The running would increase the pressure in the calf. That would simulate the feeling of swelling she feels. Have you taken her in when it is acutely swollen? Also have they checked her heart? Is she a diabetic?
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mbooth16
replied September 24th, 2007
sillyakchick wrote:
mbooth16 wrote:
They did test her for that then the first time it happened, but they didn't have her on a treadmill first. Would that make a difference? They were trying to keep her off of it at that point because of the blood pressure medicine they had given her in the IV. Any other ideas? Or should I get them to re-test her for this one?

I appreciate your help on this!!!!


The running would increase the pressure in the calf. That would simulate the feeling of swelling she feels. Have you taken her in when it is acutely swollen? Also have they checked her heart? Is she a diabetic?


Yes, we go each time it swells up. They only tested her that very first time and never again. No, they haven't checked her heart or if she is diabetic. I'll ask them to check that tomorrow. We have an appointment then.
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sillyakchick
replied September 24th, 2007
Extremely eHealthy
That really sounds frustrating. I am sorry for what you and your daughter are dealing with. Keep me osted, and I will continue to rack my brain for ideas.
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boogity
replied August 7th, 2008
Daughters leg
I realize this is an old thread but since it is still open I wondered.....
Has anyone considered Reflex Sympathetic Dystrophy also known as RSD?
A Physical Medicine Specialist / Physiatrist may be able to help.
Temperature changes, color changes, circulation changes, pain all fit.
Just a thought!
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Users who thank boogity for this post: SwizzleStick 
Tsinas
replied October 21st, 2009
What make you think they can help!
I don't believe every doctor can understand the cure or any hear report damage... try ask naturopath... because every vitamin work well with the system.... but what about history family... !
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