Joined: 20 Mar 2004 Posts: 5 Location: manchester england
Narcolepsy Drugs Posted: 03-20-04 23:47pm
Hi, i'm relatively new to this forum but I
have had mild naolepsy with quite severe
cataplaexy for the past 2 -3 years.
I regularly take clomipramine and whilst I
find this helps it doesnt alwways stop me
from having an attack.
However, I know this sounds very radical,
but on the few occasions where I hae had a
small amount odf cannabis before goin to
bed, I have found I feel much more
refreshed the nmext day, as if I have had
a proper nights sleep.
However I know this is a stupid thing to
do without any medical proof etc, and I
was wondering what peoples tthoughts on
the matter were and if anyone has had
better experiencers with narcolepsy and
prescription drugs aparts from
clomipramine
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michelle lynn
New User, Becoming EHEALTHy
Joined: 28 Apr 2004 Posts: 8 Location: pa
Narcoleptic Drugs Posted: 04-29-04 01:44am
I've had narcolepsy and cataplexsy for
about ten years now. Provigil worked for
a while but didn't last enough hours for
the day. I work 2nd shift cause can't
wake up in morning early enough to work
dayshift. Not sure what drug you are
talking about..Never heard of it. But if
it's illegal,not a smart move. What if
you wreck or something and they find that
in your system? Alot of consequences to
pay for that, ya know. I am now on
concerta and ritalin. Seems to work
pretty well. Have a bad day once in a
while...But nothing severe. Not being
treated for the cataplexsy yet. Guess
it's not severe enough or something. Not
enthused with taking alot of meds anyway.
There are other drugs used to treat
narcoleptics including the "date rape
drug". Try having doc change your meds to
find the ones that will work best for you.
I don't believe that there are any that
will make us normal, but they definitely
make it able for us to live. Without my
meds I couldn't work, drive or even stay
awake to play with my little daughter.
What kind of life would that be?
Scary,huh? Best of luck to you.
