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Q: Narcolepsy Drugs
asked by: digger on March 20th, 2004
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Hi, i'm relatively new to this forum but I have had mild naolepsy with quite severe cataplaexy for the past 2 -3 years.
I regularly take clomipramine and whilst I find this helps it doesnt alwways stop me from having an attack.

However, I know this sounds very radical, but on the few occasions where I hae had a small amount odf cannabis before goin to bed, I have found I feel much more refreshed the nmext day, as if I have had a proper nights sleep.

However I know this is a stupid thing to do without any medical proof etc, and I was wondering what peoples tthoughts on the matter were and if anyone has had better experiencers with narcolepsy and prescription drugs aparts from clomipramine
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michelle lynn
replied on April 29th, 2004
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Narcoleptic Drugs
I've had narcolepsy and cataplexsy for about ten years now. Provigil worked for a while but didn't last enough hours for the day. I work 2nd shift cause can't wake up in morning early enough to work dayshift. Not sure what drug you are talking about..Never heard of it. But if it's illegal,not a smart move. What if you wreck or something and they find that in your system? Alot of consequences to pay for that, ya know. I am now on concerta and ritalin. Seems to work pretty well. Have a bad day once in a while...But nothing severe. Not being treated for the cataplexsy yet. Guess it's not severe enough or something. Not enthused with taking alot of meds anyway. There are other drugs used to treat narcoleptics including the "date rape drug". Try having doc change your meds to find the ones that will work best for you. I don't believe that there are any that will make us normal, but they definitely make it able for us to live. Without my meds I couldn't work, drive or even stay awake to play with my little daughter. What kind of life would that be? Scary,huh? Best of luck to you.
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Galvin
replied on January 20th, 2009
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I have mild narcolepsy and found this post looking for the same information you are about cannabis. Haven't tested it extensively on myself I am extremely interested in finding out if the same results are found in others. I too find that if I use cannabis I don't have problems with waking up in the morning like when I don't. I wish there was more conclusive data on the subject though.
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rr68
replied on February 18th, 2009
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i have an aquired mild narcolepsy and Excessive daytime sleepiness, and other cognitive problems that started after a head injury . in cognitive rehab,( which didn't help) i went through vocational rehab and they reccomended i not seek employment at this time ,i tried to work but got let go because of mistakes..lol its been 2 years since the accident. i had started searching for help online for the new sleep disorder, and saw things about cannabis , i already take adderall for ADD and that isnt very helpful but if i dont take it i pretty much wont get up i have been off it a few weeks at a time during recouping and everthing was worse i was exhausted beyond my belief and evreyone elses and i wil sleeep for what seems like 20 hours in a 24 hour day, tried provigil and it worked intermitently with in about 3 hours mixed with major crashes it made me wierd, out of it. hardly worth being awake for. frustrated i figured what the heck , i think i had read where it has properties that help things like parkinsons. ect. i never previouly did it much maybe a 10 times in my 20's. and only that few becaue i didnt like it , it made me paranoid and want to fall asleep.. i was scared to try it because its illegal,, im a good mom... ect but im going crazy. i tried just 3 hits mabe no more i was afraidto get all paranoid . i got relaxed not paranoid and yes wanted to fall asleep , but that wasnt the best part. its not the stoned effect so much that helps or are desired, but its the next day.. i woke up getting out of bed was easier. i had some energy and it was great because it lasted all day it wasnt like a sugar high or coffee come down. i actually sat waiting at a drs appointment in the waiting room for 20 minutes and it was great, i was pretty alert to everything and yet relaxed, id usually be tearing up trying to not fall asleep and thats on 40mg adderall . but i was not all speeded up tho. i could organize my thoughts a little had some focus, i wasnt frozen or overwhelmed by my own thought process ( some of those cognitive problems are hard to explain) i get vertigo,had speech problems also , now mild though. i normally now have what seems like zero memory. but really its that my attention span is so short or it shuts down that nothing gets soaked in , if it gets soaked in i can remember it. i look totally normal, just dont feel anything like i did before 2 years ago I can see ill still have problems , but part of it better! and it was really stealing my life. i had only tried a few times in the past 3 months but i want to space it out do like a study on myelf. and its definately a huge improvment , with a small amount of the cannabis the nite before. then again i get the reverse reaction to nyquil.. its like cocaine to me.. all i know is my moms a nurse , shes tried to help me with dr.s and stuff and i cant wait to tell her, ive got some relief. i'd really like to see something more about this as well , find out about medical marijuana for this scenario.
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