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Narcolepsy Drugs

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digger

New User, Becoming EHEALTHy
Joined: 20 Mar 2004
Posts: 5
Location: manchester england
Narcolepsy Drugs
Posted: 03-20-04 23:47pm

Hi, i'm relatively new to this forum but I have had mild naolepsy with quite severe cataplaexy for the past 2 -3 years.
I regularly take clomipramine and whilst I find this helps it doesnt alwways stop me from having an attack.

However, I know this sounds very radical, but on the few occasions where I hae had a small amount odf cannabis before goin to bed, I have found I feel much more refreshed the nmext day, as if I have had a proper nights sleep.

However I know this is a stupid thing to do without any medical proof etc, and I was wondering what peoples tthoughts on the matter were and if anyone has had better experiencers with narcolepsy and prescription drugs aparts from clomipramine
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michelle lynn

New User, Becoming EHEALTHy
Joined: 28 Apr 2004
Posts: 8
Location: pa
Narcoleptic Drugs
Posted: 04-29-04 01:44am

I've had narcolepsy and cataplexsy for about ten years now. Provigil worked for a while but didn't last enough hours for the day. I work 2nd shift cause can't wake up in morning early enough to work dayshift. Not sure what drug you are talking about..Never heard of it. But if it's illegal,not a smart move. What if you wreck or something and they find that in your system? Alot of consequences to pay for that, ya know. I am now on concerta and ritalin. Seems to work pretty well. Have a bad day once in a while...But nothing severe. Not being treated for the cataplexsy yet. Guess it's not severe enough or something. Not enthused with taking alot of meds anyway. There are other drugs used to treat narcoleptics including the "date rape drug". Try having doc change your meds to find the ones that will work best for you. I don't believe that there are any that will make us normal, but they definitely make it able for us to live. Without my meds I couldn't work, drive or even stay awake to play with my little daughter. What kind of life would that be? Scary,huh? Best of luck to you.
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