Symptoms: With me it usually starts with a warm tingling sensation in the affected joint, accompanied by a low grade fever and headache. I normally feel lethargic also. Affected joint is warm to the touch and is has a reddish pink color to it. Once the joint gets completely inflamed it is red or yellowish purple in color.
Tests: At least at Portsmouth Naval Hospital (PNH) they do blood work to test your uric acid level. My Doctor in the past has always wanted mine below 7. Mine usually is around 10.8 to 12. Doctor has stated in the past anything over 7 and you will start to feel pain, don’t know if this is true or not.
Additionally I have had my knee or elbow drained and the doctor then looks at the fluid removed. Fluid normally is yellow in color (kind of like Country Time Lemonade). Check this fluid for the presence of tophi crystal. The doctor has let me look at these crystals before and to me they looked like little arrows with barbs on the end. After seeing this I know why we feel the pain that we do.
Treatment: Since 1990 I have been on alopurinol anywhere between 300mg to 800 mg; Indomethacin 75 mg; and Colchinne. None of this has stopped the attacks all together. Up until recently I would say it has mad the attack less frequent.
Hospitalizations: First hospitalization was in March 07 and second one May 07. Leading up to the be being in the hospital in late December 06 I started to get a flare up in my right ring finger. Went to PNH and rheumatologist put me on a Medryl Dose Pack (6 day steroid taper) thinking this would knock out the attack. Never fully knocking out the attack I went back to PNH approx 2 weeks later complaining about the right index finger and my left knee. Doc took fluid off the knee confirmed tophi and injected knee with steroids. Less than 5 days later I had pain and swelling in the following joints left/right knees; left/right ankles; right big toe, left/right Achilles area and left elbow. Doc took one look at me and admitted me.
Once admitted they started an IV think for dehydration. In addition to this twice a day they injected heavy duty steroids via an additional IV. Still was taking Alopurinol, Colchinne and Indomethacin. Doc’s also gave morphine for breakthrough pain (now this stuff does work for pain. Vicodin, Tylox etc in my opinion is worthless. I stayed in the hospital this time for 6 days and then was released. Only new med at this time that I started taking was prednisone taper 80 mg for 2 weeks then 60 for 2 weeks then 50 for 2 weeks etc.
Second admission (never really recovered fully) called the doctor told her knees and feet were all swollen. She told me to come in and she took one look at me and it was do not pass go do not collect 100 dollars your going back to the ward. This time for 5 days, with pretty much the same regimen as above. Only new drug that was introduce was Probenicid. Finally released with same prednisone taper as above.
Presetnly: Take the following meds Alopurinol 400mg a day; Probenicid 2000 (not a typo)mg a day; Indomethacin 75 mg a day; 3 Colchinne tabs .6mg a day. Still on the Prednisone taper at 20mg a day. Docs have attempted to take me off the prednisone twice and each time the gout flares back up.
Other stuff: Diet help in controlling gout but I’m noticing more and more things trigger attacks the longer I have had gout. Course I do not drink but I did find out coffee triggers and attack for me so luckily I have never developed a taste for it.
One of the posters on this forum swears that if you get your sleep apnea under control your gout will be fine. Not to snipe at the guy but I don’t buy into that (however I’m happy for him that it works in his case). I have been using a CPAP machine for 6 years and it does do wonders for my sleep but zilch for the gout.
I also prefer ice on the affected joint vice heat. Heat to me seems to up the crescendo in pain.
I also like to keep the joint straight vice letting it bend I find this to be less painful.