Talk this over with the neurologist, but do not be surprised if he does not want to go along with your plan.
Have you ever had a long Video EEG?
My son was taken off medication for a time during a misdiagnosis and it caused seizures to become more difficult to control. I know that the side effects from the medications are very hard to cope with and frustrating on top of the seizures.
Having the seizures are also going to interfere with his learning, however.
Is he currently having active seizures? Usually they will not wean off medications unless he is seizure free for 1-2 years with a clear eeg. Sometimes during a VEEG they will stop medication and try again with a new medication that might be a better choice. I know you have tried many and the combinations. It is so frustrating. We have also been at this for over half my son's life, almost 9 years.
Hang in there. I hope your neuro can come up with something to help him.
G