Hi,
I have to agree with the last post. I had all of those symptoms for about 8 years following glandular fever/Epstein Barr. Apparently you wont always test positive in a blood test even if you have it initially, but eventually when you body does start to get on top of it and produce antibodies you are more likely to get an accurate test result.
My advice is simular to the:
-Rest, rest, rest.
-Eat well and avoid junk. I got sooooo addicted to sugar (if gives you the feeling of having a bit of energy and a clearer head for all of 15 to 20 minutes) that when I went cold turkey and gave it up I was throwing up and feeling like I was about to pass out within an hour of my "sugarless diet" because my blood sugar levels were struggling to adjust. It was a very important step though. I gave up eating anything that had any sugar in it at all (initially including fruit and fruit juices), and I honestly feel that this was one of the most important steps, though one of the hardest.
(NB - you may want to investigate chronic candidiasis on the internet. It seems to be a hotly debated topic, and not being a doctor I can't comment on it or how many chronic Glandular Fever sufferers it would affect, but I really felt like I started to improve after taking Nystatin tablets in combination with the above diet. I wouldn't probably worry about going down this path unless you were getting gastro problems such as bloating/diarrhoea/constipation and possibly thrush. I think that it is possible that having a Chronic Fatigue/post viral syndrome just makes you more susceptible to getting additional problems such as these as your immune system is so whacked.
-Exercise is important, but you will need to completely review what you classify as exercise. Swap jogging etc for gentle, stress free and enjoyable activities. Do things that make you feel better after them rather than exhausted, even if all that this means is getting up and sitting in a rocking chair or little more that floating about in a pool or at the beach. Regular and non-strenuous is the key.
-Seriously limit exposure to any controllable toxins. After I started to eventually get some improvement in health due to dietary changes etc. I realised that an event such as sitting in a freshly painted room, or sitting in a car as it is being re-fuelled was all that it took to have be bed bound the next day. I seem to be fine with these things now, it was just a problem while I was sick.
-I took supplements and found that most didn't do much, but a few made a lot of difference. Particularly SAMe. It is an amino acid that is a pre-cursor to serotonin. It makes you feel happier, makes you ache a little less and is good for your liver. Unfortunately it is not as cheep as some supplements, but I know a few people who have got a great benefit from it (and a few who haven�t noticed a benefit - mostly big men so perhaps a higher dose would have helped). If you are interested in buying this, just be aware that it is available in both an amino acid form and as a homeopathic formula. The homeopathic formula is a lot cheaper than the real compound but I really can not vouch that it would work. I would recommend the real thing. I also think that a multi vitamin as well as zinc would be good. Just be careful of not taking zinc in large amounts or for long periods (ie - read the bottle), but I think it is quite an important nutrient for enhancing immunity and reducing the likelihood of being flattened by all of the other colds and flues passing by. Making sure that you are not low in iron is also really important for your immune system. It is probably worth getting this tested by a doctor. A young female may benefit from going ahead and taking an iron supplement, but men in particular should be aware of a condition called haematomocrosis which involves there bodies having too much iron. Iron supplements could be dangerous for people with this disease, and this disease has a few simular symptoms to other fatigue type syndromes.
-Contraceptive pills! If you are a woman and are finding that your symptoms are worse during your period, you may find some relief from asking you doctor about taking a contraceptive pill and skipping the breaks (ie- never bleeding). The hormonal fluctuations that occur can make you more sensitive to pain, so that your muscles and joints actually hurt more at this time ...as well as feeling more tired than your usual tired state.
-You are suffering from a real illness and you do deserve to get better ....and you may need to shop around until you find a doctor that understands this and is willing to help. You may find a few (or perhaps many) doctors on the way who will tell you that it is stress related, just a cold, or in your head etc. KEEP LOOKING until you find one who recognises that you are unwell. They really are out there (I personally have found more success by going to doctors in the higher socio-economic areas - rather than where I live). Don�t be afraid to tell them that you are looking for a second opinion after seeing other doctors. Even ask them for a full blood work up and a test for glandular fever. If you have no luck, ask to be referred to a rheumatologist (muscle specialist), immunologist or neurologist depending on what area your worst symptoms are. Often specialists are more informed about diseases and conditions such as post viral fatigue syndromes. (Best to ask around and see if anyone you know has a relevant specialist that they can recommend). You may also find that there are doctors in your area that have a special interested in these syndromes (ask Chronic fatigue support groups in the area, or check the net)
-My only other advice is to adopt life style/health changes such as the ones above as soon as you can! I only started to improve after I made these changes. Giving up eating junk food and sugar is very very hard when you are so fatigued, as is even getting to the shelf with your supplements on it sometimes, but I think that if I had made these changes sooner I would have recovered sooner.
Recovery can take a bit of time, but as soon as you feel yourself starting to improve you will probably feel more and more positive about the situation.
Best of luck,
T.