Lupus Forum - No Diary

Conditions and Diseases > Lupus Forum > No Diary

Q: No Diary

asked by: ajybird on March 19th, 2004

New User

I have been reading this forum for the past couple of days and it has a lot of great info. I was diagnosed with lupus in 2000. I have not kept a diary. I am no longer able to work. Neck pain, back paid, right leg goes numb.
I am going to file for disability. I spoke with my gp about it and he agrees. I will speak with my rheumatologist next. Is it too late to start a diary and should I try to backtrack. I can get the records from my previous employer about days missed, and I know coworkers will write statements.
Please let me know what ya'll (i am from texas u-know) think. Thanks so much for listening. Rolling Eyes

Replies(7)

purple333

replied on March 19th, 2004

Extremely eHealthy

I don't have lupus but a friend has so I do have some small knowledge of this condition.

It most definitely is not too late to start a diary!! You should do it on the computer so that as you recall things you can easily insert them. You can also use this as a jog for your memory as to who might be able to provide you with statements etc.

The diary will also help in the long term not only for disability but for treatment. By keeping a diary of what meds, tests etc you've had you can teell your dr or a new one more fully what your history is - what you have had bad reactions to & so on.

Good luck

ajybird

replied on March 20th, 2004

New User

Thanks so much for the reply, I hate to be soooo dumb but do you use outlook calendar for the diary, or what is the best program to use? :p

purple333

replied on March 20th, 2004

Extremely eHealthy

If you're dumb then i'm dumber!!!! :d because I don't know what outlook calendar is??

I'd just use a normal screen on the computer (i have microsoft word) & i'd just put a date & then type in information. Then if I realized i'd left any details out they could be inserted & if I had left out a date or realized that symptoms had started earlier then I first wrote i'd insert that too.

Sort of like a letter only each paragraph would be a date or for the earlier periods a month or rough idea of when & what happened etc.

Hope that helps you abit. Embarassed

ajybird

replied on March 21st, 2004

New User

No Diary

Thanks alot for your help. I really appreciate it. :p
aletha

clarebear

replied on March 23rd, 2004

Experienced User

Diary

As long as you document your history somehow, it shouldn't matter what format it's in. Typing is best though because probably many people will be reading it and deciphering it; unless you have immaculate handwriting then stick with the word processing.

Good luck

clarebear

ajybird

replied on March 23rd, 2004

New User

No Diary

Thank you so much for your help. I really appreciate this web site and am very glad that I found it. :d

mia

replied on March 25th, 2004

Experienced User

Ajybird

Welcome, i'm from dallas. You not only need to document your past problems but start keeping a daily calendar that you can carry with you in your purse or backpack. Keep these journals for future reference. I just had this come in handy when I switched rheumatologist. When I received a copy of my records, 2 years were missing, but by going over my past journals, I was able to chart all my doctors appointment. There are several stores that carry small checkbook or smaller size books.

Good luck

mia

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