Joined: 17 Mar 2004 Posts: 8 Location: Wichita Falls, TX
No Diary Posted: 03-19-04 16:54pm
I have been reading this forum for the
past couple of days and it has a lot of
great info. I was diagnosed with lupus in
2000. I have not kept a diary. I am no
longer able to work. Neck pain, back
paid, right leg goes numb.
I am going to file for disability. I
spoke with my gp about it and he agrees.
I will speak with my rheumatologist next.
Is it too late to start a diary and should
I try to backtrack. I can get the records
from my previous employer about days
missed, and I know coworkers will write
statements.
Please let me know what ya'll (i am from
texas u-know) think. Thanks so much for
listening.
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purple333
Extremely EHEALTHy
Joined: 01 Dec 2003 Posts: 1420 Location: Sydney
Posted: 03-19-04 22:30pm
I don't have lupus but a friend has so I
do have some small knowledge of this
condition.
It most definitely is not too late to
start a diary!! You should do it on the
computer so that as you recall things you
can easily insert them. You can also use
this as a jog for your memory as to who
might be able to provide you with
statements etc.
The diary will also help in the long term
not only for disability but for treatment.
By keeping a diary of what meds, tests
etc you've had you can teell your dr or a
new one more fully what your history is -
what you have had bad reactions to &
so on.
Good luck
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ajybird
New User, Becoming EHEALTHy
Joined: 17 Mar 2004 Posts: 8 Location: Wichita Falls, TX
Posted: 03-20-04 07:27am
Thanks so much for the reply, I hate to be
soooo dumb but do you use outlook calendar
for the diary, or what is the best program
to use? :p
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purple333
Extremely EHEALTHy
Joined: 01 Dec 2003 Posts: 1420 Location: Sydney
Posted: 03-20-04 19:02pm
If you're dumb then i'm dumber!!!! :d
because I don't know what outlook calendar
is??
I'd just use a normal screen on the
computer (i have microsoft word) & i'd
just put a date & then type in
information. Then if I realized i'd left
any details out they could be inserted
& if I had left out a date or realized
that symptoms had started earlier then I
first wrote i'd insert that too.
Sort of like a letter only each paragraph
would be a date or for the earlier periods
a month or rough idea of when & what
happened etc.
Hope that helps you abit.
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ajybird
New User, Becoming EHEALTHy
Joined: 17 Mar 2004 Posts: 8 Location: Wichita Falls, TX
No Diary Posted: 03-21-04 09:51am
Thanks alot for your help. I really
appreciate it. :p
aletha
As long as you document your history
somehow, it shouldn't matter what format
it's in. Typing is best though because
probably many people will be reading it
and deciphering it; unless you have
immaculate handwriting then stick with the
word processing.
Good luck
clarebear
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ajybird
New User, Becoming EHEALTHy
Joined: 17 Mar 2004 Posts: 8 Location: Wichita Falls, TX
No Diary Posted: 03-23-04 15:39pm
Thank you so much for your help. I really
appreciate this web site and am very glad
that I found it. :d
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mia
Experienced User , Rather EHEALTHy
Joined: 25 Jan 2004 Posts: 146 Location: dallas
Ajybird Posted: 03-25-04 12:38pm
Welcome, i'm from dallas. You not only
need to document your past problems but
start keeping a daily calendar that you
can carry with you in your purse or
backpack. Keep these journals for future
reference. I just had this come in handy
when I switched rheumatologist. When I
received a copy of my records, 2 years
were missing, but by going over my past
journals, I was able to chart all my
doctors appointment. There are several
stores that carry small checkbook or
smaller size books.
