Are these symptoms of Fibromialgia ? (Page 1)

it is possible that this is fibro. There are informational sites that you can go to talk to your doctor!

How old are you? Just curios. I had pains and tingeling in my arms and bad headaches from a herniated disc in my neck. The tongue sensations would really make me nervous.
Take care,
Sandy

umm yeah it kind of sounds like fibromyalgia? but not like ive seen it...some ppl would describe it like that, id go to a few docs and get a few opinions on that...wow that could be anything

I don't know, but I have the same question, too!

I'm a dancer, and so I get a lot of sore muscles, which is very normal. But about a year ago I started getting horrible pains in my calves. And it's more like the inner side of my calves. It doesn't improve with stretching and it'll last for days at a time. I also experience the same thing in my upper back (this has been occuring for years), especially if I'm stressed or on the go.

It actually doesn't sound like fibro to me. I have fibro. I do have concerns with what you are describing, however. It definitely sounds like something is going on. I would see a rheumatologist for some additional assistance. I don't know. Another posted stated herniated disk...that sounds like a possibility as well. It just doesn't sound like fibro to me. My fibro is mild, though.

doesnt fibro affect every one differently? and hello fellow Idahoan!

Hi Idahoan!! It's cold!

The thing about an actual fibro diagnosis is that you

There are 18 tender points located on the body that are looked at in order to determine a fibro dx. If 11 out of the 18 points are "tender" or sore in a patient AND is like that for at least three months or more, then an individual can be dx with fibro. The points of pressure are in various places on the body such as the neck, shoulders, chest, elbows, lower back, and knees. I hit 10 out of 18 pressure points so I was considered "borderline." Kind of stupid if you ask me.

I just don't think that deer would have met the criteria. Perhaps? You are right in that it does affect everyone differently.HOnestly, I am NO expert on fibro and I am sure many people on here know much more than I do.

I would definitely want to rule out other things such as arthritis, lupus and MS.



I really hope you figure out what is going on. It is such a frustrating road.

Yeah its cold---up here we keep getting dumped on by snow and then it rains. ick.

I am no expert either. perhaps together we can figure this out. I have a friend that has lupus and ms and she droped the fibromyalgia word the other day--i wonder if all are related--perhaps?

i don't think it's fibro. i have it and the only time i've had a lot of what you're talking about was from a herniated disc in my cervical spine and from a pinched nerve. please see a neurologist, especially since your tongue is affected. fibro is more just pain... like a mixture of arthritis, cancer, and more; some days you're okay; other days you wonder if you are terminally ill and no one has caught it. you just hurt really bad. like someone else said, there's 18 or so trigger points. i had a rheumatologist test me. i tested positive on all of them. you don't have to be positive on all 18, though... not sure what the number is.

i'd say, for now, go see a neurologist.

hope this helps.

Hello,

My family doctor thinks I might have Fibromialgia, however I am scheduled to visit the Rheumatologist next week. I was wondering if anyone here has horrible ankle pain when walking or exercise which shoots up the back of the legs making them stiff and very painful? I have had this problem since childhood but in the last few years have experience pain in other areas as well. Does this sound familiar to anyone? I'm just so frustrated already and for years doctors have told me it's stress.

I'm new to this forum and found posts very interesting. I was dx with fibro 4 mths ago, but i'm doubting my dx as chat on another forum described fibro as 'almost constant pain' in various parts of the body. I have suffered from lower back pain for 30 years but has been worse the past few years. I experience general muscle aches rather than pain and have memory probs. I also have had restless leg syndrome for years now and also regular bouts of fatigue for about the past 3 years. Hope someone can give me their thoughts on my symptoms. raspberry

Hi there, I also had the same symptoms as you for a long time. My family doctor thought it might have been Fibro but it turned out to be a vit. D deficiency..yeah, weird since I live in sunny Florida but that's what it was. I started taking 5000 I.U. of vit. D and all my aches and pains went away. My memory got a little better too. Have your doctor do a full blood workup on you. It can be something as simple as that.

Hi wendyrs. thanx for your reply. I had a wide range of bloolds taken a few times and they all came back 'normal' which was frustrating as I still felt unwell. I presume vit D levels were checked but couldn't be sure although my GP told me that lots of sunshine is good for fibro sufferers. Glad ure feeling lots better.

Isn't fibro just the catch all when these drs don't know what you have??? What is the cure? My daughter has been suffering from headaches and muscle pain for 7months - every single day! The drs here in Hawaii don't know what it is!!

It's so frustrating and worrying that in general, a lot of docs (worldwide!) can't accept FMS as a proven condition (which it is). Please dont give up breaking their hearts and search until you find someone who will understand and help you and your daughter. What age is she by the way? Does your daughter suffer from fatigue or memory related probs aswell? A physical examination on counting the number of tender points in the body can help ascertain the diagnosis, but this wasn't mentioned to me and I wasn't aware of it at the time. Sorry for going on so much. Keep at it until you get your daughter sorted. Keep in touch.

Thank you for responding!!! My daughter is 21 years old. One day,while attending college, she couldn't get out of bed - suffering from severe headaches and muscle pain. She is taking so much medication now... and it doesn't seem to help. Yes, fibromyalgia is not diagnosable. I think she suffers from memory related probs and fatigue because of all the meds she is taking. What sort of physical exam on counting the number of tender points are you referring to? Does an internist do this type of physical? Please keep in touch!!

I find it really hard to belive that your daughter's life is so disrupted and she is in so much pain and yet there is no medical team helping her to alleviate the symptoms, only pile on medication which is making her symptoms worse. It's so easy to get bogged down with this scenario (I was in this position myself for years) but you need to see your Doctor with a list of symptoms (maybe a daily chart which you can print from the WWW) and re-evaluate medication. This obviously can't go on so you must make your doctor realise this. Put out some feelers for particular doctors who acknowledge Fibro (because not all of them do). A personal doctor can probably do the tender points test or a Neurologist. I hope this is of some help as I am still feeling my way myself! If you can pass on any info to me I'd really appreciate it. I want to reaearch diet relating to Fibro to see if this helps energy levels etc. Hear from you soon.

Hi raspberrycream,

Have you gotten any answers yet? My doctor says that I do have Fibromyalgia and that's why my Vit. D levels were so low. My pain has gotten worse in the last couple of months and some days I am just so fatigued. My hips have been hurting me so bad. I've also been having a lot of muscle spasms and joint pain and that fibro fog making me forget such simple things. Anyhow, as soon as I can get my health ins. back I'm going to take myself to a really good specialist at the university to test me for MS. I want to rule it out once and for all. My balance is horrible and I can hardly walk down my street some days without my leg cramping up. I can't take the heat or cold weather and I'm either hot or cold. I can't stand loud noises or crowded places. I'm just a mess, but it could be worse. I've also gotten to a point where my skin can't handle any kind of soap or shampoo with fragrance or perfume in it so I have to use all natural products. Someone else mentioned headaches with hairspray..I can't handle any kind of spray and have always just assumed it was an allergic reaction but now I'm wondering if it's all related. I have IBS and other symptoms as well. To those of you experienced with FMS does this sound familiar or could it be something else?

Hi Wendyrs
Sorry ure feeling worse for wear at the minute. Are you still taking VitD as this seemed to help aches and fibro fog a while back for you? Before i started taking citalopram my mood and bouts of fatigue were horendous due to low levels of the chemical serrotonin (which we all have in our brain)but FMS sufferers, according to my GP, have lower levels of this chemical causing the above symptoms. My balance in general is OK although i do walk into door frames quite frequently or bang my hand off door handles! I haven't heard of the connection between hairspray and headaches before. Is your memory poor cos i sometimes cant remember what i've just said to someone!? One day in a restaurant with family, i was about to give the waiter my order but went blank and had to ask my daughter what i had decided to get! Its an awful feeling but you have to laugh at these things! I am experiencing more muscle pain now although it is still very manageable and doesn't interfere with my daily life too much thank goodness. Keep at the doctors until you are satisified. speak soon