
| smsmith98 wrote: |
| hello! Isn't it weird that once you start looking you find other people who are in the same or similar situations as you are? I couldn't believe it when I saw these posts in here.
Here's my story if it helps anyone out there - when I was 12, I was diagnosed with scfe in both my hips. Left hip was 60% and right hip was 5-10%. Immediately I was sent to the hospital and put into traction. A few days later I had surgery to have the left hip pinned. Once they got in, the deterioration of the hip was so bad, they had to do a bone graft from my pelvic bone to help repair the damage. The hip was pinned and a week later I had the right hip pinned. I had the pins removed a year later. My doctor said that he didn't believe leaving hardware in children. Because of the severity of my left hip, my right leg started to become longer then my left. I had another surgery on my right leg to stop that leg from growing, hoping my left leg would "catch up." it didn't really. Then I had the problem of my left leg turning out. We tried physical therapy, but my doctor realized it was skeletal, not muscular. I ended up having another surgery to straighten my leg. They went in and broke my femur above my knee, turned my lower leg straight, then put a metal bracket inside along with about 30 pins to keep it there. I lived in a big ol' wrap-around-your-waist plastic molded brace for several months. I'll never forget the day it came off for the first time in the doctor's office. I nearly cried because my leg didn't flop to the side. It stayed straight. About a year later I had the metal bracket and pins removed. Again, my doctor didn't believe leaving hardware in children. After all of my surgeries were completed, I wasn't allowed to be in any type of sport, which was hard because I was an avid softball player prior to all of this. Probably because of the severity and fragility of my left leg. My range of motion in my left leg was very limited. My right one felt/feels great!!! I experienced discomfort most of my teenage years, and I also had the limp from my left leg being shorter (which was not good on my lower back as i'm realizing now). When I was about 20 or 21 I started having more frequent pain in my left leg. If I did strenuous activities, or walked around for a long time, my leg would really hurt. Then when I was 23, the pain was constant. I couldn't even walk in a mall for 15 minutes without being in severe pain. It was difficult to get up or sit down also. My pediatric ortho doc told me I would have to have a hip replacement younger than most people, but I never thought it would be in my 20's. I went to visit an orthopedic doctor, and he couldn't believe the x-ray of my left hip. It didn't even look like any resemblance to a hip. I looked at him and said, "oh, is that why it hurts?" he laughed. My right hip is perfect though - phew! He said I would have to have it replaced, but told me of the consequences of being so young. I agreed to think about it and he prescribed an anti-inflammatory to help the arthritis. About 6 months later I decided that the medication wasn't helping and I just wasn't leading any type of life because I just couldn't walk anywhere. He recommended me to another doctor he felt more confident in because of my young age. And what a blessing he was!! I had a total hip replacement 9 days after my 24th birthday. I was in the hospital for 5 days, and out of work for 11 weeks. My doctor was very impressed in my recovery. And it was remarkable!! Immediately you could tell the difference! Of course, the pain in my muscles killed because a) they had just been chopped through and b) hadn't been used like this in a long time. I go in for my 4 year check up tomorrow actually. I've had no problem and feel great! My range of motion has increased ten fold. I still have a bit of a problem rotating my leg in, but that is also from years of muscles not wanting to move that way. I'm still working on sitting on the floor with my legs crossed, like a yoga position, which I haven't been able to do for 17 years - but maybe someday I will be able to. I will have to have one more replacement in my lifetime, possibly two. I'm hoping though that after my next one (which hopefully won't be for another 10 years), the technological advances will have improved, and the next one will be my last one. I really believe this was the best decision for me. I actually don't know anything about osteotomy, since it was never an option brought up to me, so unfortunately I can't weigh the pros and cons of osteotomy vs. Replacement. Anyway - that is my story. I would love to be part of any discussions revolving around this. I think after my 7 surgeries, i'm a minor pro. |
| erin-michelle wrote: |
| i'm so glad I found this forum....Now if someone will hopefully just reply to my post.
I a 16 year old girl, and I stongly suspect that I have slipped capital femoral epiphysis in both my hips. I ride horseback, which puts some different strain on my hip joints, and I am rather athletic. I've seen varying estimates of how common it is, and also how prevalent it is in girls. Most sources say that boys get it more often, and i'm a little old to have developed this problem, but in my defense, i've grown 6 inches in the last three years. I entered puberty late for most girls, and definitely grew a lot later than most girls. So on with this. One day in mid-october, I was walking out of the lunchline in school, and all of a sudden, there was an extremely sharp pain in the side of my left hip, and it hurt for the rest of that day whether I put weight on it or not. My joints used to click and pop, but since that day, my hips make sounds almost constantly, especially when I move. :lol: I went to the doctor the next day, and unluckily for me, the pain was gone when he flexed my hip joint. He basically blew me off, and I wasted my mom's $20. So now, it's been almost six weeks, and the popping has been more frequent, and so has the pain. My hips kind of feel like they're moving around in the sockets sometimes, too. Usually I go on crutches whenever the pain starts (free from walgreens, heck yeah!), and the it gets better for a while. I'm not very good with using words to describe things like pain, but I can visualize very well. The pain that I see is like very thin, long black cracks in a surface. Occasionally I feel pulling that looks like that, too. And I can't forget to mention that my knees are starting to hurt as well. Also, the symptoms began in my left hip back in october, and around the middle of this month, they eased off a little to make way for the same process to begin in my right hip. Today the right one hurt, so I borrowed crutches from the school nurse, and the stress of shifting all my weight (115 pounds, if that makes a difference in how much stress is put on?) to the left made them both hurt. My mom, ever the optimist, keeps saying that i'm just growing again, but guess who's not so sure. I even showed her the literature that i'd found, and she won't believe me. It doesn't help that my younger sister needs surgery for her shoulder to tighten the muscles (total of $4000), and we can barely afford that. Could anyone who has had experience with a case of slipped capital femoral epiphysis let me know if this sounds anything like it, or if I am just overreacting. Thanks!! :d |
| We comply with the HONcode standard for trustworthy health information: verify here. |



