Something is wrong and I need help finding out how to treat my symptoms. It seems like my doctor treats each symptom and then something else starts, and the other one continues.
I will list my symptoms any advise is appreciated. The doctor keeps telling me that everything is normal but some of these things cannot be in my mind--sometimes I think I am making it all up. I have been told that my lupus test (ANA) is negative. The other response from doctors is “you are overweight—what do you expect.”
Visable / Diagnosed Symptoms
--Panniculitis-with Erythema Nodosum confirmed by biopsy---I thought I just had spontaneous bruising but the dermatologist I am seeing for the acne took a biopsy of the bruises.
--Acne—just started with in the last year—never even had it is a teen and is getting much worse on my chest and back, if I spend 5 minutes in the sun—I get pimples on my face, neck, chest, back, arms, stomach, and legs.
--Red spots on my chest, and sides of abdomen (I did not write down what they are called but the dermatologist said they are tiny blood vessels that have ruptured under the surface of the skin—and they will never go away)
--Ganglion cysts—hands, wrists, elbows, shoulders, knees, anchles, feet.
--Ulser on my tounge that had to be removed (biopsy was normal), but when the skin rashes get worse it reoccurs
--Sheath cysts on tendons (not the same as ganglions but also painful)
--Carpal tunnel—surgery to fix (with ganglion cysts)
--De Quervain's tendinitis–surgery to fix (with ganglion cysts)
--Planar fasciitis—both feet had surgery to fix
--Pleurisy –Two instances in the last five years.
--Unexplained blood in the urine that self resolved.
Non visable symptoms
--Pain in all my joints and I had this when I was much thinner.
--Fever for no reason that will last for weeks/months at a time.
--Daily weight fluctuations (up to 12 lbs in two days), when periods of higher weight come on I am hardly able to move my joints without PAIN, even my toes hurt to move.
--Periods of being tired, so tired I have to dose up with a lot of caffeine to make it thru the day.
--I am always HOT, like I am burning up from the inside, I perspire when others are cold. I joke that my thermostat is broken. This is also at night when my sheets get so wet I have to change pajamas during the night.
--Periods of hair thinning, which grows back in then starts over again.
I have no idea where to start figuring out what is wrong—but when I started doing research the only common thread is lupus. I need help figuring out what is wrong so I can get it treated.
Any suggestions are appreciated.