Hi all - am new to this forum. I am 44, female, and diagnosed with ms in october of last year. My question is for the interferon users out there - has anyone had an abnormally low white blood count?
I started with avonex, then switched to rebif two months ago. My blood count was okay last month (neuro didn't give me the numbers) but I saw a hematologist last week about b12 deficiency (don't have it) and he said my white blood count was very low, 2.2.
Well, the rebif lifelines people called yesterday and we chatted for awhile, then I told them about the low wbc and they said don't take any more rebif before talking to your neuro. So I called my neuro and he said "stop taking the rebif!" he wants to do another blood test next week and then go from there.
My question is, has this happened to anyone else, and they rebounded with higher blood counts and were able to continue with rebif? The lifelines nurse assured me that this sometimes happens in the first month of full dosage (44) but of course, they are trying to sell a product. My neuro hasn't been for rebif since I switched and I know he will try to get me off it completely.
Any personal experiences or other information would be appreciated. I would like to stay on rebif as it is the strongest medicine out there right now, but will at least go back to avonex if necessary. Thanks in advance.
Kathryn