My husband has some very serious symptoms
that definately sound like ms (we have
ruled out everything else), but no one can
find anything....Here is the history.
About six years ago, he fell ill....While
working in an aspartame factory. It
started with dizziness, tremors, vertigo,
altered perceptions, vision
disturbances...And a whole slew of other
symptoms. He also was suffering from
multiple bouts of lyme disease. He has
chronic fatigue and fibromyalgia, not to
mention severe migraine disorder and has
had immune system problems his entire life
and immune symptom problems run through
his family. He finally degraded to the
point that he was unable to drive anymore
because of unexpected vertigo (sometimes
to the point that he would feel as though
he was upsidedown) and the motion of the
car would cause strange visual perceptions
that would make it impossible for him to
drive, not to mention cause him severe
anxiety. He has worked his entire life
around chemicals, and heavy metals and of
course the aspartame factory. He has
also undergone every medical test under
the sun, from mri's to spinal taps. And
the conclusion...Absolutely nothing. The
doctors all couldn't find anything so they
told him it was all in his head. This
about one of the strongest men I know, who
couldn't even work anymore. I now work
two jobs because he is unable to leave the
house somedays. Well, things are getting
worse now, he is cycling back through all
the worst symptoms that he has ever
had...His coordination is off, he has
trouble speaking (he can get the words
out, but he is tripping over his tongue)
and what is getting very bad,
honestly...Is his mood. It is like he
doesn't think rationally anymore. I can
say the kindest thing, and he will yell at
me and swear and ask me what is wrong with
me. And he isn't aware of it because his
mind makes excuses to justify his
behavior. I have to tread so softly
around him now. Anyway, sorry this is so
very long, but we are thinking that these
things could be symptoms of ms, because
the doctors have ruled everything else
out! I guess I was just hoping for some
opinions because things are getting so
terrible for him...And to make matters
worse, he is only 29.
This is just the basic nuts and bolts of
the situation, but any feedback would be
appreciated.
Thanks
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insurancegirl
Especially EHEALTHy
Joined: 25 Sep 2003 Posts: 5286
Posted: 03-19-04 05:26am
My story:
i also have been trying to find out what
is wrong with me. Btw, my name is
jennifer and i'm 21. At 15 I started
getting numb in my lip and it moved to my
arm (on my left side) so I went to the
hospital to see what was wrong (if it
could possibly be a stroke). Well when
all the tests were done they found
nothing, and the feeling had went away.
Well I got these symptoms on and off once
in a while, but I figured they would say
it was nothing so I did not pay attention
to them. Until may of last year, when I
felt like I was going to pass out. I went
to 1 hospital, they did a ct-scan checked
my vitals and said everything was fine.
The released me, even though I was still a
bit dizzy. The next day, things got
worse, so I went to another hospital.
When I got there they admitted me because
my white cells were high. I spent 6 days
there a bit numb and disoriented, with no
luck. I had 2 mris, 2 eeg's and a
ct-scan, nothing. I was released when I
refused to have them probe my shunt or do
a spinal tap (they had told me I may have
ms, and this was the only way for them to
find out). I get the numbness all the
time now, and it has actually been
happening for about a week now (same as
you~up in my left eye with some blurred
vision) but also down the left side of my
face. I hope maybe we can come to a
conclusion. I'm tired of living like
this! However, I do not experience pain.
Docs also tell me i'm nuts! And my hubby
thinks so too!
Jennifer
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ksgirl02
New User, Becoming EHEALTHy
Joined: 19 Mar 2004 Posts: 14 Location: KS
Posted: 03-19-04 05:42am
Maybe he has some type of mental illness
due to chemicals. I dont think that I is
ms, I think it has something to do with
working around all the chemicals and stuff
and now is taking a toll on his body and
mind.
Brandy
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NicNat
New User, Becoming EHEALTHy
Joined: 13 Feb 2004 Posts: 7 Location: Canada
Posted: 04-01-04 23:37pm
Look into aspartame toxicity.
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san54
Experienced User , Rather EHEALTHy
Joined: 28 Dec 2003 Posts: 227 Location: Virginia
Multiple Sclerosis Posted: 04-02-04 01:26am
Lady jane, ms is hard to dx. It takes
years sometimes. He also had other
autoimmune diseases. Contact nord. The
national organization of rare diseases. I
think there website is nord.Com. And
since it runs in the family, they may do a
genetic study. It is worth a try. Good
luck, I will be thinking of you and your
husband. Don't give up. An answer is out
there. sandy williams
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maycoo411
New User, Becoming EHEALTHy
Joined: 05 Aug 2003 Posts: 29 Location: ohio
For Lady About Husband Posted: 08-25-04 22:20pm
Hey just wanted to let you know that if
could be ms. He needs to get into a
nuralogist and have a mri done. My
husband was diagnosed at 27 who is now 29
will be 30 in a week. He had symptoms
like numb pinky then the whole hand then
the arm and then his right side. He went
threw so many differant tests and what
not. They told him no not ms. That's the
last thing we look at. Well after a mri
they found scaring of the brain which look
like little worms I beleive. And there
were old scars and new ones. Which could
mean that he had it for a long time b4 the
dianose. So anyways he is now on rebif
which is a shot 3x's a wk and every three
months he goes and has a small dose of
chemo. He just had a new mri from last
year and there was only on e new scar. It
is hard to live with someone who had ms
because their memory gets bad. At least
my husbands does. We are so young I am
only 24 and he is 30 soon. We just got
married a month ago and are happy. Don't
let this get you down. Just get in to the
doc's and demand a mri. And get him on
meds. There are so many new things out
there to help them.....
sandy williams