Rich, Wasn't it Carol, who posted a long
time ago that we all were getting so good
at researching the different type spinal
problems and sugery and watched so many
video's that we could do them ourselves?
Maybe it was JoeBob. Never the less,
Carol we have given you our best advice.
If I were completely well, I would
consider flying down to Texas and hold
your hand. This is not to make it sound
like you are a "namby pamby". I'm sure
there are many people who have gone to the
Tampa area knowing that Carrianne is there
to hold ther hands too.
We all need comfort during these stages.
And we are all grateful for having caring
sufferers surrounding us. We are all
lucky to have fallen together into one
companny and you know Carol, you did start
the first Forum I ever found on Laser
Spinal Surgery. So, don't be the last to
get better.
Marie B.
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Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
Merry Christmas Posted: 12-24-07 12:36pm
Merry Christmas to all of you from New
England through Florida through Texas and
every other state that has turned to this
Forum for help or information. May your
New Year be Healthy, Wealthy and Wise.
Marie B.
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Carol Lumbar
New User, Becoming EHEALTHy
Joined: 09 Aug 2007 Posts: 35 Location: Sherman, TX,
Thanks: 1
Thanked:0
Don't Cry For Me Argentina! Posted: 12-26-07 10:08am
Dear Fran, Marie B. & Rich T:
My steadfast three muskateers! You guys
are the true "backbone" of this and the
other thread! Thank you for your
wonderful advice. I'm feeling guilty at
the response to my post . . . I didn't
mean to stress, and worry everyone . . .
I've even re-read my post . . . I'm sorry,
it sounds worse in print than perhaps the
life I’m living. I don't want to be the
one crying "wolf" unnecessarily. I don't
want this response to sound ungrateful or
defensive, but I may need to retract or
explain . . . holidays don't always bring
out the best in moods or memories (except
for you Fran!) . . . but honestly
Fran: I don't drag my foot all the time,
I shouldn't have written that. That's what
I call my limp or slightly longer pause
when walking???? I've lead a very
sedentary life, for the last three years.
And I can walk and make my limp hardly
noticable on good days. . . I have a
handicap sticker for when I have to park
at the university, so I don’t have to
walk miles from a parking lot. How is it
that I feel I'm blessed to be able to sit
for such lengths of time to write? I joke
around that my daughter is my wife, as she
does everything I used to do around the
house . . . (truth be known, EVERYONE
needs a wife!) While I may not be able to
pick up the grandkids, it doesn’t stop
them from crawling on my lap and snuggling
. . . or reading a book. I really am
doing o.k. honestly. The falls to which
I referred happened only when I tried to
negotiate a step up. It could be an issue
with my depth perception as well . . . my
eyesight, memory etc have not responded by
becoming more acute, it you know what I
mean . . . it's hell getting older . . . I
am concerned and rightfully so, as Fran
pointed out to the foot cramps. I'm even
more worried about her upcoming surgery on
L3!!
I think there is truth to the fact that
while I can't get my mind wrapped around
the notion of back surgery, minimally
invasive or otherwise, the true issue is
my inability or refusal to recognize the
seriousness of my symptoms. I meant for my
post to be on the light side.
Unfortunately we can't read "tone." I’ve
always thought my situation pales in
comparison to others. One thing that
haunts me is someone who said, "you'll
know when surgery is right, because you
won't be able to stand the pain and the
compromise on the quality of your life."
Well, I guess I am able to stand the pain
with the shots and right now, I'm
literally not doing anything but getting
myself to and from work, which entails
more sitting than standing (I don't have a
classroom full of kids). My wonderful
family has taken on my previous household
chores. I do what I can, and what is left
over allows me time to write. So, I'm
thinking I'm living a very charmed, and
spoiled life right now. I know in my
heart of hearts, I could be doing much
worse. I’m sorry I set everyone off
worrying about me.
MB: It was I who made the wisecrack about
doing the research. I can be a rather
pompous ass at times, now that I re-read
how that remark must have sounded!
Rich T: Thanks for explaining the Kenalog
feature of the shots. Perhaps that is why
I respond so well to them???
MB: I have not limited my research to
laser surgery. I have done a lot of
related research regarding back centers in
the greater Dallas area. They seem to be
popping up all over. One thing I have
noticed over the years, is that the
umbrella of “minimally invasive” is
being used in all types of surgeries. I
think this is a good sign. It almost
seems common sense to want to impose the
least trauma to the body as possible.
You guys are such a strong support group!
I can’t thank you enough. I will take
all your advice and regroup. I know I
will need new MRI’s as the problem is
not going to go away on its own. What to
do is the hard decision. Thanks to your
help and friendship, I know I will find my
way! You guys are the best!
Happy Happy New Year!
C
|
RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
Posted: 12-26-07 14:28pm
Hello Carol,
Thanks for your very kind words to your
friends, the "three muskateers".
Permit me to "read between the lines" a
bit. Perhaps our perception of what you
wrote in your previous post was not as you
intended. However, Carol, to be honest
with my feelings/perception of your
current post, I get this very uneasy
feeling that you are trying to minimize
and somewhat "cover up" how things really
are for you. Be careful not to have your
mind convince yourself that your back is
not at bad as it is.
I am glad that you are looking into all
the options for your back.
Honestly, your previous post made me take
notice and realize that I need to get busy
and have my "ducks in a row" so that when
that time comes I don't have to be running
around trying to make a final decision.
On a good day like today it is very easy
to just sit back and say "everything is
fine, no worries". That I know isn't
true. I do want to and need to contact
Dr. Tollis in Florida, Fran's great doctor
and also Marie's excellent surgeon. AND
though over the ocean, surgeon Mr. Knight
in London is honestly at the top of my
list. Thanks for the "BOOT" to not just
ease off on the current "good days".
Take care. May the new year take you on
the right road.
RichT
|
Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
Ducks In a Row Posted: 12-26-07 22:25pm
Carol, You are never pompous when you are
sharing with us. It is true that we few
brave researchers have done a lot in
viewing spine surgery of various types,
and that doesn't include all of the
reading we have done.
I think that is why my surgeon, at my
first visit when I asked him a zillion
questions, chuckled and commented that the
ortho surgeon studying spine surgery with
him had taken 6 years of study to get
where he was and I wanted my surgeon to
explain everything in an hour visit.
I just want you to have your ducks in a
row, as Rich mentioned. Get your
Extension/Flexion X-Ray ready for correct
spondy DX. Your MRI must be no more then
a year old. Be ready as you keep
observing your symptoms. My gut instinct
still says you need to have that stenosis
taken care of.
Now re-read what you are saying to us
about what you have given up of your life
to your family because you can no longer
do certain things at home. Now, if you
don't want to do certain household things
then that's another story. But you have
turned things over to others. That can be
good or that can be bad.
Also climbing steps...believe me if you
are lifting a leg up, you can very easily
fall because that stenosis can cause the
knees to buckle with no warning. That is
when I started to get serious about
surgery. Climbing my steps became a
nightmare of hanging on to railings to get
to the top. And it was that buckling (I
fortunately was able to catch myself
before falling) that sent me to the first
surgeon in my area.
That is also when I learned "spondy" had
entered the picuture. I am so glad that I
was already in the process of getting my
injections because it was that first dx.
that made my PM began to realize that my
description of my symptoms might have
seemed mild to him but when he saw
documented evidence of other problems was
when he started to talk to me about seeing
a surgeon.
I have got to be honest, Carol. I really
kept kidding myself about my problem. I
even would pray, telling God that I had
enough surgery on other parts of my body
that I wanted Him to make this problem go
away. I must have said, "No surgery"
thousands of times. Then the knee
buckling began. And I had a serious pain
near my S1 vertebrae when I would try to
sit on my haunches when I was reaching
into low cabinets. I would see stars from
the pain.
Now in telling you this, I have to
emphasize, spine surgery is not for
sissies. I even told Rich that JoeBob
sounded so upbeat post op that I was
concerned that it made it look like spine
surgery could be a breeze...especially if
it is done by laser. It takes a real
awareness of what is happening to your
back to determine if one is jumping the
gun because you experience various types
of pain. If I had only used JoeBob's
reports as to how well he did after his
surgery, after mine, I would have been
been driving my doctor nuts with calls of
insecurity and requesting assurance and
asking "is this to be expected." I am
now 6 weeks 5 days post op. I still have
aching and I can't jog for an hour. I
can't even power walk for an hour. I sort
of stroll on the treadmill for 15 min. and
believe me sometimes I want to go faster;
Have done so and had serious pain results.
But I am slowly getting better...let me
repeat...slowly. This is no rush job.
I know your email was to reassure us, but
I still feel concerned. Please don't do
as I did. Don't fool yourself and think
you can get away with one more reduction
in your life style.
Marie B.
|
Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
Kenalog Posted: 12-26-07 22:36pm
Rich, Isn't Kenalog a penicillin...or
antibiotic? I have not looked that up.
If it is, I don't think that would be a
reason for improvement of the pain post an
injection as Carol was questioning. Then
again, I might not know what I'm talking
about either.
Marie B.
|
RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
Posted: 12-26-07 23:31pm
Hello Marie,
Kenalog is NOT an antibiotic. It is a
corticosteroid. Similar in chemical
structure to cortisone, but NOT cortisone.
It really BUGS me when doctors say "I'll
give you a cortisone injection". THAT is
not true in 90+ percent of the cases.
What they are giving you is an injection
of a corticosteroid, a man made compound.
Kenalog has a much longer life time in the
body than the cortisone our bodies make to
ward off inflammation.
Enough, the chemist in me is showing I'm
afraid. LOL
Take care.
RichT
|
Carol Lumbar
New User, Becoming EHEALTHy
Joined: 09 Aug 2007 Posts: 35 Location: Sherman, TX,
Thanks: 1
Thanked:0
Kenalog Posted: 12-27-07 11:19am
Rich T:
I'm definitely inquiring about the Kenalog
vs. corticosteroid. My doc just called it
a cortisone shot. It might be that that
it has morphed into the generic name. Ex.
Kleenex for tissue . . .
In the short time we've gotten to know
each other, I must say you guys are tooooo
good at reading between the lines . . .
this Taurus may be stubborn, but hopefully
not too stupid. I will take care.
Waiting till after the first of the year.
New insurance, less coverage, changed
coverage. Who knows? Anyhow I'm pretty
sure I've passed the expiration date on
the "otomies." More than likely we've
progressed to the "ectomy" level for sure
with the possibility of fusion.
My second opinion doctor did do a flex and
extension exray. He is the one who
decided there was some "slippage."
Sherman is basically a three horse town,
so I will venture into Dallas, proper for
a third opinion. I just hope they don't
put me through the routine of physical
therapy, "just to make sure." I even know
there's more to be done than that. Thanks
for the wake up call. I like the advice
of staying closer to home. An hour drive
is better than state hopping. I know part
of the decision is location. I love your
direct no frills honesty when you write
Marie. You and Fran really tell it like
it is. Do we have to go on the other site
to get an update on Joebob? Anyone still
posting there as well? I wonder how the
"Spinazi's" are doing? A little humor
never hurt anyone!! Ha!
C
|
RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
Posted: 12-27-07 13:13pm
Hello Carol,
"I'm definitely inquiring about the
Kenalog vs. corticosteroid." - Whoops,
Kenalog IS a corticosteroid. Kenalog is a
trade name for the corticosteroid
triamcinolone (common name). Other trade
names are Aricin, Aristocorf, Cinalog,
cinolar, delta-Tritexs, etc. If you want I
can give you the chemical name, and its a
LOONGGGggg one. LOL
Glad you will be seeking a third opinion.
Regarding Joe - I think he is having just
too much fun coaching ice hockey. I did
check the other forum/web site and as best
as I could determine the last time he
posted there was on November 15th. Okay
Joe where are you??????
I haven't posted there for ages.
Hope you had an enjoyable Christmas. All
ready to roll in the New Year?
RichT
|
INNOVATOR54
New User, Becoming EHEALTHy
Joined: 14 Nov 2007 Posts: 29
Safe Trip Home Posted: 12-27-07 17:17pm
Well my son flew home with no issues. Said
he had no problems with the flight back
from Florida to Arkansas. It has now been
two weeks since surgery at Bonati and he
is still pain free.
His family came to my house for Christmas
including his two boys and wife and we has
a wonderful time. He was in such a good
mood and able to already do many things he
could not do before such as play with his
children.
I feel blessed that this has happened for
him and would go back to Bonati again if
the need arises and this includes myself.
Just wanted to share a success story with
you.
I did talk to a lot of people at either
Bonati or Gulf Island Resort and Tennis
Club who had their own stories. I did ask
several to post here but have not seen any
yet.
Hopefully they will post their stories
here for more to see.
Norm
|
RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
Posted: 12-27-07 22:29pm
Hello Norm,
Thanks so much for you update.
WOW, so GREAT to read that your son is
doing so very well. I can only imagine
the joy that your son, his children and
wife now have because of your most
unselfish gift. What an incredible
example of true giving you have given to
all of us this Christmas.
Thanks!
And thank you for inviting those who you
spoke with at Bonati to share their
experiences with us. I truly hope some
will do so.
RichT
|
littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 334 Location: ,
Thanks: 14
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Carol Posted: 12-27-07 23:15pm
I'm so glad to read that you are planning
for 3rd opinion over the next few weeks
and that you are beginning to realize that
your situation may be more serious than
you realize.
How true that there are others that are in
worse shape than yourself or any one of
us, but that does not make your situation
or anyone else's situation serious as
well. It is just different degrees of
seriousness as well as how an individual's
body responds to different circumstances.
It also has a lot to do with an
individual's body structure. I've been
told that those that are short, like
myself and Marie, not only have shorter
spinal columns because of our height but
also have less space within our
vertebrae.
If we assume for a minute that that is
true, then, a mild to moderate stenosis
in, say the lumbar part of the spine,
could feel worse on a person that is short
than a person who is taller.
So it all becomes relative in degrees of
how severe or not severe a person's spine
problems are.
A good spinal surgeon will us and MRI or
any other tests done as a tool for
assisting in diagnosing a patient, but
utilize the patient and the patient's
symptoms as a guide to how severe the
spinal problem is.
I smiled when I read your statement "I'm
literally not doing anything but getting
myself to and from work, which entails
more sitting than standing (I don't have a
classroom full of kids). My wonderful
family has taken on my previous household
chores. I do what I can, and what is left
over allows me time to write. So, I'm
thinking I'm living a very charmed, and
spoiled life right now. I know in my heart
of hearts, I could be doing much worse.
I’m sorry I set everyone off worrying
about me."
It reminded me of my 24 year old daughter.
The "queen" as her big brother used to
call her when she was a baby.
My kids where 5 years apart and big
brother loved that little sister so much,
that he waited on her hand and foot.
Sounds wonderful doesn't it? But, in
reality, it was the worst thing he could
do for her. It prevented her from
developing and learning to do for herself.
Big brother did everything for her, so
much so, that she never had to learn to
turn over, sit up, crawl or stand.
He would sit her up, stand her up to hold
on to things, get everything for her. and
it looked so cute.
By the time she was 15 months old, she
still hadn't done any of those things, but
had the vocabulary of a 2 year old and was
smart as a whip. Too smart for her own
good, because she had turned her brother
into her personal slave. Worst of all, big
brother and his friends loved every minute
of it.
At 18 months the pediatrician had us take
her to specialists at Children's Hospital
in Boston with fear that she might have
muscular dystrophy.
The long and short of it was this. Our
sweet angelic daughter was diagnosed as
"one of the biggest. spoiled little girls
we have ever seen. Totally spoiled by her
wonderful loving brother. She has no
reason to do anything for herself because
all she has to do is yell her big brothers
name and he will come running and do
everything for her."
Treatment consists of breaking this habit
and forcing her to do for herself and once
it is broken she will be running, not
walking around the house.
We went through 2 months of literal hell
keeping big brother from doing anything
for her and hearing temper tantrums all
the time from that angelic little girl.
Sure enough by 20 months she was rolling
around on the floor, using that butt of
hers to "walk". She thought her feet came
out from that part of her body and boy
could she move fast that way.
Then one day when she was exactly 20
months old, I gave in and let big brother
have his best friend over to play. They
promised to do nothing to help little
sister to do anything.
Funny how 2 months of non anything for
little sister turned into being a pain to
do for her. After what seemed like the
millionth time she asked big brother and
his friend to help her, the friend turned
around and said, "shut up already, you
lazy creep. Stand up and walk already."
I just froze and watched what was going to
happen. and what I saw was this "OK" my
daughter said. Then smack in the middle
of the living room she stood up, holding
on to nothing. With a grin on her face to
toddled across the room and said. "this
OK".
You could have knocked me over with a
feather as I stood there with my mouth
hanging open.
Big brother turned and said "NO, you are
supposed to be walking all over the place
by now, not just a few stupid steps".
Well 4 hours later, she was all over the
house and has never stopped going since.
Carol, what yo sound like is you have
gotten yourself caught in the middle of a
vicious circle, similar to what my
daughter was in.
She couldn't do for herself because she
was too young to do so, so big brother did
it for her, then it became such habit and
love that it never stopped and she
couldn't learn to do the things for
herself because she never had to and it
was fine with her and big brother.
It wasn't until she was forced to do them
on her own that she finally learned and
she learned real quick how to do them.
In your case you have slowly been able to
do less and less and your family has
automatically filled in for you. It makes
your life easier for you and you settle
into doing things this way.
Yes it's a charmed life, being waited on,
others doing what you did and you able to
do what you want to do.
Then you don't realize how much you can't
do, because you don't have to do it.
If you stop and think what life would be
like for you, if you couldn't do these
things and no one could do them for you,
you will find a very different picture and
I don't think you will see it as a pretty
one.
I'm one of the ones that answered the
question of when to have surgery with
"when you can't take the pain anymore,
when there is no life to live and you
can't function anymore at all. that all
there is in life is pain and no quality
of life."
My situation was really different and as
my doc said "I've never seen it in 20
years of practice."
I went to bed on Sunday night fine and
couldn't get up on Monday morning. By
Wednesday morning I was already thinking
if this doesn't end, suicide is looking
good.
By the following weak,I was close to a
wheelchair, the pain was so bad.
Carol, my life went from a $25,000 a year
income from a home craft business, doing
20 craft shows a year between Sept and
Dec., coaching soccer in the fall and
spring, basketball in the winter, guest
speaking at 2 boston colleges during the
winter months in a political science class
on life growing up in the 60's, working
for rape crisis center and on call for the
crisis intervention team to schools in the
area for emergency psyche help, to not
being able to move over night.
My life has not returned to all of the
above, since having my spinal surgery and
this past few months has been a real mess
because of that disc, but it has nothing
to do with the prior surgery, but rather
the pleasures of being in the wrong place
at the wrong time and a car and driver
that shouldn't have been driving. That's
for another post.
I don't think most people who have spinal
surgery ever return to the full life they
had before any spinal issues, let alone
after surgery. It's unfortunate that that
does happen. I suspect, personally, that
there are many reasons too. Reasons are
many and include bad doctors, just the way
people heal, more than one problem in the
spine, waiting to long to correct the
problem and the simple fact that when we
do have the surgery, we aren't as young as
we would like either, for starters.
And, oh yes, getting the head wrapped
around spinal surgery is not easy either.
I'm also the one with the famous last
words to the pain doc who was going to do
the first ESI for me. "It better work,
because it will be a cold day in hell,
before I let anyone put a knife into my
spine."
Both the pain doc and my surgeon have yet
to let me forget those famous last words.
If the 3 of us live to be a million, I'm
sure they will still be reminding them of
those words too.
No one can tell you what the right thing
is to do, other than get that 3rd opinion
and new tests to update the old ones and
compare them to the new ones. Doctors can
advise you, tell you what they think you
should do, but the final decision is up to
you.
We can be here and listen to what you tell
us the doc says and give you opinions,
make suggestions, but in the end, you have
to make that decision yourself.
I do think surgery is in your very near
future, but I wouldn't even begin to
venture what kind.
I also agree that being close to home an
doctors to follow up with you near home is
a good idea.
So girl, after the first of the year, get
busy with the 3rd opinion and get the
answers you need. Your symptoms are not
good, even if they are not as bad as we
thought they where. That problem going up
the stairs, as Rich said, is not good.
The last thing you want is to fall and
break a bone. You have enough problems
already, don't make them worse, please.
Then let us know what the doc says and we
can all sort it out with you and go from
there.
And please, please, please, don't worry
about me and the L3 disc. So far the
nerve block is doing well, the disc
started to leak a little, but it is
sealing over fine. The PT is helping and
if that works, then it's just another one
of those "partial laminotomies" that I've
already had. In and out of the hospital
the same day, less than 12 hours. Walk in
in pain, walk out feeling fine. Do the PT
and get on with life.
I have full trust in my spinal surgeon and
trust me, he isn't going to screw up
anything cause he doesn't want to suffer
the consequences. LOL.
He knows the rules, he screws up on
surgery with me and he no longer gets "the
best tomato seedlings I've ever had in his
life, with the best tomatoes I've ever
had, with the rarest kinds of tomatoes,
and my 2 kids will "kill me and never
speak to me again".
That's right, Carol. He fixed me once and
he'll do it again. I grow from seed,
killer size tomato seedlings that produce
hundreds of tomato plants that have
tomatoes growing and ripening into early
Nov. even in MA.
Fran
|
littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 334 Location: ,
Thanks: 14
Thanked:0
Norm Posted: 12-27-07 23:17pm
Norm,
What wonderful news you have been posting
about your son. I'm so glad that things
have turned around for him and he is doing
so well.
You couldn't have had a better Christmas
present than that, nor could he.
Fran
|
littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 334 Location: ,
Thanks: 14
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My L3 Disc Story Posted: 12-28-07 00:04am
As promised, here is the story of why I
now have a problem with my L3 disc.
Just minding my own business. I was doing
quite well, out and about, did an hour
workout on the independent program at the
PT facility and went to pay the property
taxes as the town hall.
So outside, bottom of the stairs in the
parking lot and just going to head to my
car, when out of the corner of my eye, I
notice a car going to pull into the
parking space. At least that's what I
thought.
In an instant the car races towards me and
I had just enough time to jump into the
garden bed and get out of the way of these
speeding car. The car hits the front
stairs and this huge cement planter on the
landing of the stairs.
You guessed. planter shatters and huge
pieces are down on my back, on the left
side, and my surgery was for the right
side.
Police and ambulance called. someone
helps get the cement pieces off my back
and I go to stand up and well, I new it
wasn't a problem with the prior surgery.
The left side of the bum hurts and the
left hip and left thigh.
So lucky that the ambulance guys get to
see me, looking like I'm about to cry in
pain. Such wonderful luck to have the 2
of them, friends of my, almost 30 year old
son and these 2 grew up in my house.
One look at me and they turn white as snow
and want to know which of 3 hospitals I
want and are saying OMG Mrs. your back and
surgery and OMG< what do you want us to
do.
I told them go take care of the little old
lady that did this and leave me alone, I
am not going to any hospital. Well if
looks could kill, I'd dead with the looks
these 2 "kids" are giving me.
The little old lady, of course she's fine,
why wouldn't she be? She caused all this
to happen and she didn't have any cement
on her back, right.
So the EMT's are back with me and I just
said to them "cut the crap and stop being
pests." and they say "Mrs. we need to help
you, don't you trust us?" I look at them
and burst out laughing and say "trust you
2, are you crazy. You want me to trust 2
of the biggest pain in the butts I've ever
known, 2 whiny kids, that drove me nuts,
ate me out of house and home and weren't
even my own kids, all but lived in my
house every day after school, where deaf
as a doornail in listening to me, where
famous for making a total disaster mess in
my house and giving me grief in cleaning
it up, and to top it all off, you are the
2 pain in the you know what, that taught
my daughter to climb trees, climb the
chain link fence and get stuck up there
and then you 2 and my son would come
running to tell me "she did it again", and
you want me to trust you?"
OK, so I was a little mean, but crap guys,
I hurt.
In the end, I told them I did trust them,
but I was going home not to the hospital
of any kind, I have my own spine surgeon,
and will call him when I get home. I
signed the release papers and these sweet
EMT guys, help me to the passenger side of
my car, one gets in and drives me home and
the other drives the ambulance to the
house.
So now the neighborhood is having hysteria
cause there's an ambulance in my driveway
and I'm barely able to get into the
house.
Neighbors come running and they explain
what happened and settle that. Then they
stand there and wait for me to call the
doctor. I ask what they are doing here
still and get told, "waiting for you to
call the doctor." So I said "don't you
trust me?" and get "Hell, no. We grew up
here, we know you and you will wait and
see if you need to. So we don't leave till
we see you call and WE hear what the
doctors says you are supposed to do."
So I look at them and say "See I told you
both, that you where the biggest pains in
the you no what, and I suppose I should
take comfort in knowing that some things
never change and you chalk another one up
to I was right. And by the way if you
think I am or was going to let either of
you examine me, well, let me know when
hell has frozen over."
I called as my hubby was walking in the
door and I gave those 2 kids the evilest
eyes you've ever seen. they had called my
hubby at work.
Doc had me come in right away, and OMG,
that was one of the worst rides I have
ever had. All I could think of an see was
those 2 grown kids looking at me and evil
eyed back at me about calling my hubby.
Lucky for me, the doc has xray and MRI
facilities right there. I was xrayed and
then tubed in the MRI. Luckily nothing
was broken, but I was already bruising
away, and the MRI showed a "very pretty"
L3 disc that may or may not be protruding.
If it was, it didn't appear to be much,
but then again, it might be, only time
would tell and it didn't look any
different than the follow up MRI I had had
done several months prior.
He gave me some percocet for the pain and
ice, ice,ice and wait a bit to see how it
goes.
3 weeks later, the bruising was gone, but
the pain in the butt, down the him and the
front of the thigh became horrible and had
spread to the right knee and could only
stand for about 5 minutes before the leg
just gave out and I was on the floor.
Since the MRI didn't match all the
symptoms, we decided to do a selective
nerve block to the nerves of the L3 disc
and see if with lidocaine and kenalog the
pain would go. If it did, we would know
that the nerve to disc was probably being
compressed.
Nerve block ended all pain, so we know
that the nerve is involved. The question
now is was it part of the accident or did
the accident activate a problem that was
there and causing no problem.
Remember this, if you did an MRI of the
spine on 100 random people, at least 50%
would show some compressed or herniated
discs and have no symptoms. Just because
the "problem" is there doesn't mean you do
anything about it. This is the kind of
problem that you ignore, unless there are
symptoms.
So the plan was to see if the pain
returned, and if it did, they would do one
more nerve block just to be safe before
doing any decompression.
Anyway, about 2 weeks ago, I woke up to
find no feeling in the little toe on my
left foot and an occasional sharp nerve
burn in my big toe all on the left foot.
New what that meant and called the doc to
let him know we know have a slight leak of
the disc.
So he ordered PT and keep an eye on it.
Many times with some good PT, and
exercise, the leak will heal and nothing
needs to be done.
So Christmas Eve and Christmas Day I
worked 12 hour shifts in the ER of one of
the local hospitals and was fine. Then
the day after Xmas noticed that I was
getting some feeling back in the little
toe. Sign that the disc is sealing.
Now we wait to see if any of the original
pain returns. Knowing my luck, it will
and I will have surgery for the
compression. Just has to be done in time
for me to be able to sow those tomato
seeds for the doctor. (see previous post
to Carol about the tomato seedlings and my
spine surgeon).
Oh and the sweet little old lady. Well, I
thought she was in her 80's. I find out
that she is 92. has not had a drivers
license since she was 70, when it was
permanently revoked after a 5th drunk
driving charge. She was drunk this time
too, driving without a license and had
stolen the car from her grandson, who had
driven his car to school. She paid a taxi
$15 to drive her to the school and then
proceeded to splice the wires to get the
car to start. Then she drove around the
corner to the town hall and no one knows
why.
And wouldn't you know, good old me was
right smack in the way of this crazy lady
driving.
Maybe I should never go out of my house
again, what do you think? And I thought
all i would have to worry about was
falling on the snow and ice and breaking
something.
Fran
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Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
Fran's Descriptions Posted: 12-30-07 20:53pm
Don't you just love to read Fran's posts?
They can be better then reading a book.
I just want to ask a question, Rich. Can
you get the monitors of this Forum to
start numbering each posts? I recall
reading somewhere on either this Forum or
the old one about the Lumbar nerve
pathways that some one posted. I recall
wanting to print the information out
because it would help to know which lumbar
vertebra and nerves affected the
hips...outer leg/ankle pain, etc. It
would be like diagnosing oneself.
If our posts were numbered and I wondered
which poster that was, someone might know
and post me the number to look at for the
information.
What do you think?
Meanwhile, Fran did you ever post the
nerve pathways of the lumbar region?
Marie B.
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RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
Posted: 12-30-07 21:18pm
Hello Marie,
That is an EXCELLENT idea. Just today I
recalled something that Fran said a few
(several) pages back, and I can't remember
which page it was on or the post.
BRAVO!!!!! for a SUPER idea!!!
Marie, I will forward your excellent idea
on to the Admin.
Thank you.
RichT
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littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 334 Location: ,
Thanks: 14
Thanked:0
Marie, It This Post You Where Looking For? Posted: 12-31-07 00:49am
Marie,
Not sure if this is the post you where
looking for but this I one I posted a
while back in answer to a question on
nerve pain
I should add this too having just learned
it since the run in with the car and the
little old lady.
If the nerves to the L3 disc are
compressed, the then pain and nerve pain
is on the left lower back (the butt) go to
the outside of the hip, then travel to the
front of the thigh and lodge in the knee.
That pain and nerve pain in the knee can
cripple you so badly in pain that the leg
and knee buckle right under you and if you
aren't holding on to something you will
land on the floor.
Post you may be looking for
littleonefb
add as a friend
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007
Posts: 81
Location: ,
Re: Nerve Studies
Posted: 09-21-07 20:59pm
mj57 wrote:
Hi everyone,
I have a question....
Regarding a nerve study that was
done....what does it mean ''suggestive of
a lesion along the somatosensory pathway
between the right posterior tibial nerve
and the left cortex"? Clinical correlation
is required.
I've tried to search this one .........but
way to much comes up that is all greek to
me. Just wondered if any of you may have
had a nerve study done and had experienced
any of the similar results or possiliby
close to this..........
Always.........mj
MJ,
I'll take a stab at this one for you, but
remember, I'm not a doctor, just going on
"some medical knowledge and anatomy and
physiology.
First of all the word lesion is a funny
word when it come to medical terminology.
It has several meanings from a tumor,
plaque in your arteries and damage or
nerve compression.
In your case, if I remember correctly, we
are talking about spinal stenosis stuff,
so that the "lesion" no doupt refers to
how the nerves are functioning or not
functioning well.
So here goes with what "I think this
means".
The tibial nerve is a branch of the
sciatic nerve that comes through the
spinal canal through the L4,L5,S1,S2
vertebrae. The sciatic nerve goes along
the butt and goes down your thigh, where
it branches into the tibial nerve that
goes along behind your lower leg. It
brances further down again at the ankle
into the plantar nerves of the bottom of
the foot.
Compression of the nerves in the
L4,L5,S1,S2 causes the pain of spinal
stenosis, that horrible pain in the butt,
going down the thigh, leg, ankle and into
the foot. When the compression is released
with surgery, or the spinal injections
relieve some of the inflammation, the
nerves have a chance to start to heal.
Depending on how long and how bad the
compression has been, there can be damage
to the nerves that just can't be healed.
The tibial nerve, itself, is responsible
for supplying movement and sensation to
the calf and as it branches to the plantar
to the ankle and foot.
What's called "messages" are sent between
the nerve to the brain, the cortex part of
the brain, that tells the brain to respond
to various sensations and movement. Things
like pain, burning feeling, tingling,
feeling in that part of the leg, ankle and
foot.
If there is "damage" to the nerve, then
the messages are not getting through to
the brain correctly and that part of the
leg, foot, ankle doesn't respond
correctly.
That could mean reflexes are off or not
there at all, pain is felt from
compression of the nerves, only deep pain
is felt and gentle touch is not, etc.
"''suggestive of a lesion along the
somatosensory pathway between the right
posterior tibial nerve and the left
cortex"? Clinical correlation is
required."
This probably means that the tests where
not conclusive but suggest that the "nerve
messages" may not be getting to the brain
correctly along the pathway that it is
supposed to from the right tibial nerve to
the cortex of the brain. A physical
examination of the patient and the
patients response to the area of the body
in question would help to confirm what the
EMG possibly showed.
I hope that helps, but as I said, I'm not
a doctor, but do have some medical
knowledge and anatomy and physiology
knowledge.
Fran
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Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
Fran!!! That's It Posted: 12-31-07 10:37am
Fran, That was the information that I
wanted. I wanted it because with my
fusion, I know I am having adjustments in
the vertebrae above and below the L4
&L5 because of the different
sensations (some might describe it as
pain) in areas of the hip, but and leg.
But I knew this to be the expected slow
recovering of the nerves which then the
surrounding muscles respond to the nerves
struggling sensations of recovery.
I have this odd ache on the inner aspect
of my left ankle that comes and goes. I'm
not even sure that this has anything to do
with my Lunbar region. I just know that
it appeared when I started walking
regularly on my tredmill. It could be
that my Nike shoes are now fitting a bit
snugly around that ankle (a wee bit
swollen) and are aggravating the nerve and
muscle found there. After sitting for a
year and a half my ankle might be
protesting to having to function regularly
again with exercise. I am trying to
determine if it is enough to mention this
to my surgeon. Not that I expect to have
him through me back on the Jackson Frame
for surgery again, but it will let him
know what is happening to me.
Thanks for finding the info for me. This
time I am going to print it off and put it
in my Spine surgery file right away.
Rich, Glad you liked the idea. I hope the
administers of the Forum will agree.
Marie B.
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littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 334 Location: ,
Thanks: 14
Thanked:0
Marie, Posted: 12-31-07 16:51pm
Marie, glad that
was the post you where looking for.
It's doubtful that the ankle pain is
something that would require surgery.
More likely, as you said, some very angry
ankle muscles telling you exactly what
they think of you for having this surgery,
and they aren't being very nice about it.
Don't ever be afraid to mention anything
to your surgeon, no matter how
insignificant you may think it might be.
It's always, better safe, than sorry.
In the mean time, I was told by my spine
surgeon, PT, and ortho foot doc, that you
should always get new shoes after any kind
of spine surgery. They said that the
shoes you where wearing prior to surgery
and stretched and conformed to the way you
where walking prior to surgery and you
will not be walking that way afterwards.
They said the only shoes you should wear
with spine issues, pre and post op are
walking shoes and the best ones to get are
the New Balance model 626. top of the
line, best support, cushioning etc.
Trust me, Marie. I got a pair and it was
like walking on clouds and the support I
got from them is like nothing I ever had
before in my life.
They are the most highly recommended style
of shoes for spine problems.
Some of the worst sport shoes to wear are
running shoes. They bend far to much in
the sole for walking and cause strain on
the back muscles and the muscles of the
ankle and feet. They are not meant for
walking, as the shoe says running.
The second best to walking are cross
trainers and they are not recommended
either for spines either, but are better
than running shoes.
You might find that seeing an ortho foot
doc would suggest a pair of custom
orthotics for you as well, but I'd get me
those NB walking shoes 626 first and give
those a try.
Your feet and ankles along with your back
deserve the best for your feet, and so do
you.
Fran
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Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
the Problem With Shoe Shoppinig Posted: 12-31-07 20:04pm
Fran, I'll check out the NB 626. But the
problem with me and shoes are the
manufactureres do not make very many size
5 in a lot of shoes. New Balance is one
of them. Sometimes I have had to buy a
size 6 and put in thos great sport
innersoles.
Thank for the infor.
Marie B.
Funny, one of the first things I said to
my daughter as I began to walk with my
walker with wheels was that my feet felt
like my weight on them was somewhat
redistributed.