Joined: 14 Dec 2007 Posts: 9 Location: Near the beach, Alabama
to Norm Posted: 12-18-07 13:53pm
I am headed to Bonati in March for the
work up and then in late May for the
surgery. I see you are staying at the
condo that I am interested in. Is it as
nice as it looks online?
I hope you respond as I haven't been able
to get anyone to reply back to my
questions here : (
gail
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Carrianne
Experienced User , Rather EHEALTHy
Joined: 09 Aug 2007 Posts: 107 Location: Tampa, FL
Posted: 12-18-07 14:49pm
Hi Norm!
So happy to hear that Norm Jr. is doing so
well! I can't tell you how great it is to
hear that!! We've certainly been praying
for him and will continue to do so!
Thanks so much for sharing the great news
with us! Please keep in touch, have a safe
drive home, and Merry CHRISTmas!!! What a
great gift!!!!
Best wishes and God bless,
Carrianne
Marie,
I'm happy to hear that your recovery is
going so well also!!! We sure do have a
lot to be thankful for!!! Keep up the good
work!!!!
Best wishes and God bless,
Carrianne
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Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
Yes, This Is Great News! Posted: 12-18-07 16:24pm
Norm, I am 5 weeks 3 days out of Min.
Invasive Surgery. 6 weeks is just about
right on the advice that Dr. Moffit gave
to your son on trying to see what he can
really do in about that length of time.
I was not allowed to do any PT in these
post op weeks, but I expect some time in
the next month or two, my doctor will make
the suggestion to me
You said you decided to put your son on a
plane rather then have him do a 16 hour
drive. I am amazed that anyone can go
through an airport after sinal surgery.
Joe Bob flew to...I think it was
Pennsylvania. I can't imagine being in
those seats when my back aches. First
class seating might be better, but I can't
stand the thought of giving so much money
just to have a normal size seat. That was
more amazing to me then how quickly he
recoverd.
I worry when there is anyone around me
that I might get bumped while my spine is
trying to decide where my equilibrium is
centerd and find myself on the floor. It
is, I'm sure, the Fusion (no rods) that
makes me feel that way.
When I went into surgery I entered the OR
with an attitude that if Joe Bob can walk
and swim and go to Disney World as he
reported when he went to Bonati, (He was
in Fla. for 2 weeks. I thought to myself,
"I can do that." Now all of these weeks
later, I can say "I had my head in the
clouds." The first week & 2 days post
op I considered that this was definitely
more painful than all of the babies I had.
No other surgery made me worry that I
might be left with some form of pain in my
body. My family would here me say out
loud the question to the Lord, "Lord, are
you going to heal me to I can get back to
my daily life?"
The difference between my recovery and
JoeBob's is as different as day and
night.
I keep telling Rich it is because of age,
but Rich keeps assuring me that it will be
all right as time goes by. And you know
what? It is getting better every day.
I hope your son has the results of Joe
Bob....but of course he is young so those
bones and tissues will heal.
You can count on me to remind the Lord
that the young man has responsibilities
and a family and needs to get back his
life as soon as possible. The Lord is
Good and He will hear the request.
Merry Christmas and a pain free New Year
for you son and the family.
Marie B.
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RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
Posted: 12-18-07 17:11pm
Hello Gail,
You have done your research well. I wish
you the very best at Bonati.
If you have any questions do ask them on
this thread and I know you will receive a
response.
Have a good day!
RichT
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Noelle
New User, Becoming EHEALTHy
Joined: 07 Nov 2007 Posts: 12
Help With Side Effects of Mst Slow Release Posted: 12-19-07 01:10am
Hi Everyone,
Great to hear such encouraging news on
your progress after your surgeries, my
thoughts and prayers are with you all, but
take it easy. Don't forget to rest up
too.
I was wondering if anyone has any advice
on dealing with the side-effects of
slow-release Morphine. It's driving me
nuts!!! The mood swings, the double
vision, the constant itching to name but a
few. I was wondering if there was anything
herbal, a tea or smthg.......actually
anything..... my body,mind and esp my
family will be forever grateful. "Happy
holidays" everyone.
Regards Noelle
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RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
Posted: 12-19-07 08:13am
Hello Noelle,
Nice hearing from you again.
I can only speak from my experiences with
oxycodone (Viodin is trade name I
believe). My doctor put me on the pain
medication before my epidural to reduce my
back pain. WELLLLll oxycodone had the
effect of my literally sleeping the days
and nights away. I had no energy, felt
like I was half there. I had no desire to
do anything. Thank goodness I did not
have the nasty side effects that you are
having with the slow-release morphine.
Then my PM doc prescribed Lyrica. That I
should take it with oxycodone. Noelle,
that stuff was terrible. It drove me nuts
at night as I became so restless/tight and
itched, that I couldn't get any sleep at
night. After two days I called my PM doc
and told him I wanted off Lyrica. He
advised me to give it a try for 7 days.
Well I lasted for a total of 5 days and
said "ENOUGH". It was driving me crazy so
I stopped taking it. It certainly didn't
do me any good anyway.
After a couple more weeks on oxycodone I
decided there was no way I was going to
spend the rest of my life in this
"suspended" state of sleeping all the time
even if it did reduce the pain somewhat.
I was taking 6 pills during the course of
a day, and slowly started to decrease the
number of pills I took. (Stopping
abruptly is not recommended for such
medications.) I believe it took me a bit
over a week to completely stop taking
oxycodone. There is no better way to say
it than "The withdrawal was pure H#ll!!!!"
The worst was at night because my whole
body felt very "uptight and crawling" for
lack of a better way to say it. It took
another two weeks before the nasty effects
of withdawal were gone. Getting off of
oxycodone and Lycrica was the best thing I
ever did for my body. I could deal with
the pain much better than I could deal
with the two drugs.
Noelle, I hope someone can help you
regarding the very bad side effects you
are having with the morphine, which as you
and I know is very addictive. Honestly,
if your pain wasn't so bad I'd hope your
doctor would encourage you to withdraw
from taking the morphine.
I hope and pray you are able to find a
spine specialist that your doctor will
okay for you to see. Physician Mr. Knight
REALLY has impressed me with all the
surgeries he has done, his numerous
publications and presentations to the
spinal medical community. His noninvasive
procedures seem very similar to those used
at Bonati except he does not use lasers if
I recall correctly. I'd see him tomorrow
if it wasn't for the ocean separating us.
I truly hope that you will find a way that
is right for you to reduce the back pain
you have.
Thank goodness your incredible sense of
humor carries you through.
Take care. Have a most wonderful Merry
Christmas, and may the coming year be a
most positive one for you.
RichT
P.S. - Sorry for the length of this post.
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RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
Posted: 12-19-07 08:34am
Hello Carol,
I would like to comment/expand upon a
statement in your post of 12/17/07
23:18pm.
"the problem is that I think I'm losing my
mind, can't remember a darn thing!!" -
Two nights ago was not a good one for me.
Very little sleep because of pain, etc. I
really couldn't sleep much during the day.
WELLLLLlll, guess what - my ole mind had
a heck of a time functioning yesterday
until late in the day thnigs seemed to get
better.
Amazingly I slept very well last night and
this morning feel "bright and alert"
The point - Getting a good night's rest
with very little pain makes a HUGE
difference on how we can MENTALLY (and
physically) function.
Thoughts from anyone?
RichT
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BeachGirlinAL
New User, Becoming EHEALTHy
Joined: 14 Dec 2007 Posts: 9 Location: Near the beach, Alabama
Hi Richt Posted: 12-19-07 09:39am
Thanks for your reply. Boy have I done
my research! The day my doc told me I had
to have a fusion with screws/rods was the
very day I got busy online and found
Bonati. In fact, I am headed to the Mayo
Clinic in MN in Jan. to get one last
opinion BUT I will not be talked out of
Bonati... I went to their seminar a few
weeks ago, and if someone has the
financial resources then they'd be crazy
not to seek out this type of treatment. I
left amazed at what all I was told. Sure,
they aren't GOD, however, I am very
willing to try that method first BEFORE
having a 6 inch slice down my back.
Best wishes to you and happy holidays.
gail
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Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
Narcotics of Any Kind Posted: 12-19-07 11:47am
Noelle, I think most spiney posters have
tried various narcotic meds. I have never
met anyone who said that were completely
free of pain on any narcotic med. alone.
And they all have side-effects which are
miserable to deal with. Rich's experience
is like most of us. We go to our doctors
like little birds hoping that this time he
will drop a pill on us that will make
everything better. It never happens.
There is always something that prevents us
from having complete body peace.
My personal opinion is this: Narcotics
are just a cover-up and they can't be
taken forever. They are all addictive.
It does not take long before we are very
anxious to stop them.
When Rich talks about sleeping alot when
on a hycodone, I know exactly what he is
talking about. I lived in my recliner and
I slept; taking a morning nap, an
afternoon nap and it was a fight to stay
awake before hitting the sack for the
night.
And then it was a blank night until I
would awake "groggy" the next morning.
Narcotics are awful. If my fear of being
addicted, my dislike of sleeping all of
the time, and the concern that every year
I was getting older which could make any
surgery more difficulty, I might have
considered taking meds as my PM kept
suggesting. But at the same time, my PM
was the one who gave me the name of the
surgeon who I decided to have do my Min.
Inv. surgery. I will always be grateful
for my PM for that referral. It was
reading the report from one aggresive
spinal surgeon that made him give me that
referral. I think the reason he hesitated
on insisting continuing meds was the fact
that PM's are usually anesthesiologists
and as much as then know, they still have
to defer to the spinal surgeon for
complete knowledge and experience.
The best decision, I made was to walk hand
in hand through communications with my PMC
M.D. my PM. MD and my spinal surgeon.
True it took over a year for me to come to
that decision but I don't regret it. I
try not to worry about the future when I
read about others who have to return to
face more surgery. Do not believe that
meds are the complete answer particularly
if your symptoms continue over time or
increase in severity.
Marie B.
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Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
Fusion With Rods Posted: 12-19-07 12:05pm
Gail, Why has Fusion been presented to
you? And how many levels were they
talking about in regard to the Fusion? I
had Fusion Insitu at the L4-L5. I had
spondy...not bad, but enough that if it
had been ignored the degeneration around
the facets could have held out for the
future a totally collapsed, herniated and
uncovered disc. Insitu means they can do
the Fusion using the "roofs" of the
vertebrae from a Laminectoy when stenosis
comes into play.for the spinal support.
By roughing the sides of the vertebrae,
the Fusion will come into effect as the
bone heals. I was happy that my surgeon
suggested this for me because I too had
read about how many of the laser sites
were removing rods. There are people who
have problems. But I roamed around and
talked to a lot of people who had Fusion
with rods and they did not have problems.
It seems to me that it is a different
surgical approach where in the US advises
Fusion and Europe advises against it.
For a long time, I ran from Fusion and
particularly with instrumentation. We
have read from posters who convinced their
doctors to procede with spinal surgery
leaving out the Fusion and later have
found out that it was not a good
decision.
When you read about Carol calling me her
"spinal twin", that was because we had
stenosis and spondy. Carol.....and only
she can say this...may go to Bonati for a
look see but she just may walk away if she
finds they have a lot of people coming
back because of further slippage of the
spine that can occur post surgery. All of
this is Carol's decision and she too is a
very good researcher.
I would be happier if the laser sites
would discuss this subject of spondy and
Fusion more then what they do. I also
wonder why the institutes have no
connection to hospitals in the area. That
must be a tough situation if a patient has
problems that the institute can't handle
and all the patient can do is go to an
emergency room for help. A lot of
thinking from all angles has to be done in
this betrayal of us that the spine does.
Marie B.
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BeachGirlinAL
New User, Becoming EHEALTHy
Joined: 14 Dec 2007 Posts: 9 Location: Near the beach, Alabama
Hi Marie Posted: 12-19-07 12:22pm
I don't have my diagnosis in front of me
but yes, I have spondy, bulged disk,
foramina (sp?) is compressed, a disk that
has totally collasped and on top of
another, stenosis... sorry but as I said I
don't have my diagnosis in front of me.
I was thrown at a young age from horses a
lot... stupid me kept getting back on them
: ( The doc here wants to take a piece of
hip bone and do the fusion... why am I
considering laser? Becuase I am scared to
death of open... I have had many surgeries
(my profile has the link to my story and
pics of me) and the last one I had, I got
so apprehensive about being put under,
that it was the last straw for me.
I am 45, my insurance is covered with
Bonati, and I want to try this first and
then if more problems arise I will address
them then. I actually don't have pain
everyday, but unfortunately can't take any
ibuprofhen b/c of my stomach, and pain
meds are not my cup of tea.
I appreciate all of what you all have
written as it has been and still is a
world of help to me.
Happy holidays!
gail
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RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
Posted: 12-19-07 14:26pm
Hello Gail,
You are getting good thoughts and wisdom
from Marie.
One line in your post caught my eye - "The
doc here wants to take a piece of hip bone
and do the fusion... " Gail, I am
SOOOOOooooo glad you said NO to that.
Sorry, but taking a piece of bone from
your hip is like ancient surgery. There
are far FAR better ways today. There is
NO need to mess with your hip at all. Now
my mind went blank as to how the state of
the art does a fusion. Different from
what Marie has stated. Okay, give this
oldie awhile and I will think of it.
Personally I really like the technique
that Marie's doctor used.
Gail, you are VERY fortunate that your
insurance and Bonati "get along" together.
Most fortunate indeed.
Yes me to - I can't take ibuprofhen either
and that is because I also take Voltaren
for my arthritis.
Take care. My thoughts and prayers are
with you as your proceed down the Bonati
road.
Norm is a busy fellow with his son these
days, so just be patient. He will give us
an update in a few days most likely and
then I trust will see your question to
him.
RichT
RichT
|
RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
Posted: 12-19-07 14:26pm
Back again Gail,
My spinal surgeon uses a procedure called
BMP (bone morphogenetic protein). There
is a good article about it on the Virginia
Spine Institute web site.
Okay, you have me very curious - Your
logon would indicate you are from Alabama.
be that right or wrong. Noticed you are
going to the Mayo Clinic in MN. WOW, MN
is where I was born and raised.
Take care.
RichT
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INNOVATOR54
New User, Becoming EHEALTHy
Joined: 14 Nov 2007 Posts: 29
Gulf Island Tennis Club And Resort Posted: 12-19-07 14:53pm
Gail:
If the Gulf Island Tennis and Resort Club
is where you will be staying you will be
pleasantly surprised. It is right on the
gulf of Mexico and the apartments are very
nice. The one I am in currently has all
the amenities including stove,
refrigerator, washer and dryer and two
bedrooms.
Whn I look out my window I see the gulf of
mexico. We watched two dolphins playing in
the alcove from our bannister rail.
The place includes swimming pool, tennis
courts, club house with large screen TV
AND POOL TABLES, saunas and
weight/exercise room.
All for $57.00 a day.
My son is doing extremely good today. We
went shopping for toys for the grandkids,
went out to lunch and played around for
about four hours.
He is getting hard for me to keep up with
he feels so good.
Hi walk has improved immensely and he is
still pain free.
He is taking it very easy though because
he is enjoying being pain free.
Marie: Thanks for the update on your
progress. I am glad it is going well for
you.
May God belss you all and keep you pain
free. I am a believer in any surgery that
helps someone in pain. There is hope for
relief. For anyone new to the site, keep
searching and read these posts. There is a
wealth of knowledge here.
Norm
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INNOVATOR54
New User, Becoming EHEALTHy
Joined: 14 Nov 2007 Posts: 29
Hi Carrianne Posted: 12-19-07 15:04pm
Hi Carrianne:
I just wanted to say it was a pleasure
having lunch with you and your husband
last Sunday in Hudson Florida. My son and
I enjoyed it alot.
I hope you are doing well also and get to
where you feel you need to be in the pain
category which we hope is "0" pain.
It is really a joy to meet such nice ;
christian people like you and your
husband.
RichT: For your info Carrianne is not only
smart but a very pretty; young lady. She
has a lot going for her..
Norm
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BeachGirlinAL
New User, Becoming EHEALTHy
Joined: 14 Dec 2007 Posts: 9 Location: Near the beach, Alabama
Hi Richt Posted: 12-19-07 15:24pm
Thanks for your comments. My out of
pocket expense to Bonati is $500 per
procedure and at this point they think I
will need 2. I will know for sure when I
go for my work up in March. I am staying
at the Gulf Island for $400 a week.... at
this point Bonati thinks I am looking at 2
weeks. I may book an extra week just to
be safe, plus heck it looks to be
gorgeous!
Yes I am a Bama girl, born and raised! We
have a house in Orange Beach, hence my log
in name. My profile has a link to a
webiste that I am on, you can see pics of
me there and my story. I have had Gastric
Bypass surgery so that is what the site is
about.
I met my best friend online and he lives
in MN... that is how I am getting to seek
the best at the Mayo Clinic. But again, I
am sold on Bonati and will TRY to listen
objectively to their advice.
I will be away from the computer until the
first of the year or so... I teach school
and use my class computer to stay hooked
to the world as my daughter just took our
home computer to the college dorms. We
get out for the holidays after tomorrow :
) 2 plus weeks of vacation : )
Have a super holiday, and it has been nice
chattin' with you, Rich.
gail
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BeachGirlinAL
New User, Becoming EHEALTHy
Joined: 14 Dec 2007 Posts: 9 Location: Near the beach, Alabama
Thanks Norm Posted: 12-19-07 15:32pm
Thanks for letting me know. I have booked
a condo on the 5th floor... yes I love
dolphins and see them at my beach home all
the time... even have one tatooed to my
arse... a little artwork I brought back as
a souvenier from a trip to Paris France :
) That was probably more than you wanted
to know : ) LOL
So glad to hear of the success so far with
your son. He is truly blessed to have a
father for you... I see the love and
concern in every word that you write. I
would LOVE to call him in the coming year
and hear his tale if he doesn't mind....
but I can message you my number much
later. Have a safe trip home, I'll be MIA
for a few weeeks on vacation, but I will
be thinking of you and your son.
Again, thanks for taking the time to write
me. I appreciate it so much!
gail
|
Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
You Are Right, Rich Posted: 12-19-07 18:48pm
Bone grafts from hip location are no
longer done by all doctors but there are
still a lot of them out there that take
that bone graft from the hip. Gail, to
remove the very large area of stenosis, my
doctor did a Lamenectomy on L4 and part of
L5. He had to remove a very large amount
of the ligamentum flavum that had buckled
from the buldging disc pressure. My cauda
equina was very suppressed.
To get back to that bone graft. My
surgeon used that spinous process from the
L4 -and L5 Laminectomy to use as the bone
fusion but since I had such small spinal
processes he wrote on the surgical report
that there was a dearth of bone tissue for
the Fusion and he finished it off by using
the protein mixture BMP to encourage bone
growth.
My last x-Ray is showing everything is
going along like clockwork so don't be
afraid of that method. I really don't
think the laser institutes uses any of
those materials since Fusion is not on
their list of procedures.
Just be careful...be careful! That spondy
as you grow older and particularly if you
have had surgery can sneak up on you and
there you are once more in pain and
looking at surgery for a second go round.
Marie B..
One thing I think we all need to talk
about is how do we women not gain weight
during all of this. This coddling me and
someone else doing the cooking, cleaning
and laundry is causing me to gain weight
and walking if not keeping the pounds off.
I don't think it is the bone growth that
is adding the weight....don't I wish.
Marie B.
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BeachGirlinAL
New User, Becoming EHEALTHy
Joined: 14 Dec 2007 Posts: 9 Location: Near the beach, Alabama
Marie Posted: 12-20-07 09:36am
Oh don't worry... I will be asking in
March what they plan to do for my
spondy... I read some about it on their
site... and my slippage has been rated
"grade 2"... so out of 3, that is pretty
bad.
I am also going to the Mayo Clinic and
will ask about it then too. I am planning
my surgery when I get out of school, as I
am a teacher, so I have a few months to
decide.
Thanks for your words of wisdom. I wish I
could tell you what to do about the weight
gain... but I am of no advice as I am
addicted to food and have had gastric
bypass surgery myself, so I couldn't begin
to advise on that!
Take care!
gail
|
Carrianne
Experienced User , Rather EHEALTHy
Joined: 09 Aug 2007 Posts: 107 Location: Tampa, FL
Posted: 12-20-07 11:02am
Hi everyone!
I'm in week 3 of physical therapy and my
legs are killing me (in a good way)!
They're very conservative and thorough
which I like! Most physical therapists
won't keep you there an hour-and-a-half 3
days a week! I like it here! Still have
back stiffness, but manual therapy sure
helps that! I also get pain if I have to
jolt suddenly (like when my cat thinks
it'd be funny to jump in front of me when
I'm walking) or sneeze. I get sporadic
pain/tingles in my legs, but NOTHING like
it was before! Yes, I have a ways to go,
but I have come a long way. I'm going to
set an appt. for a reevaluation in late
February.
Just want to keep you all updated!!!!
So glad to continue reading the great
results from Marie and Norm!
Rich, glad your epidurals are working!!!!
So happy for you!!!!
Carol, great to hear from you again!!!!
Gail, I wish you all the best in your
quest to recovery! I have had surgery at
The Bonati institute so if you have any
questions I'm more than happy to answer
them from my experience.
Best wishes, Merry Christmas to you all,
and God bless!!!!
Carrianne