
| Marie B. wrote: |
| Yes, Fran, your friend's explanation of what the doctor said is just the reasons my spinal doctor gave me. He wants to provide the best of pain relief in doing the laminectomy.
Now in regard to taking that bone projection off, the roof, as they call it, I know the membranes are around the nerve, but what I am unsure about is how the heck months post op when the brace is gone is that spot protected from the outside world with no bone coverage? What is then protecting the nerve area in the future especially at the L4 & L5 area. For us women who are more curvey then men in the back location, that is exactly where our little lycra panty girdle hits or any kind of slacks/pants meet the waist. Do not outside forces then put pressure on that nerve when it has no bone protection? ( Hope this question doesn't come out too racey for this Forum) Maybe I missed something in the doctor's explanation, but I don't think there is way to just lift the roof up while they do the work,and then lower the roof back in place. So does one go the rest of her life with a "hole" in her back? If that is the case, I have to lose weight to the point where I am at my 18 year old weight level just so I can keep some sort of wide elastic band around me and still be able to wear my clothes. Talk about impossibilities. Marie B. |
| Marie B. wrote: |
| Thanks Fran for that bit of information on the Laminectomy.
A person can walk into a doctor's office with a list of 20 questions, spend 2 hours with the doctor, go home and the brain can come up with 20 more questions. My husband now is telling me that I read too much, think too much and worry too much. He has made the decision for surgery with this last doctor. I'm not ready yet to say "go". Why? it's the fusion part that is my problem. Fran, did you have fusion of any type for spondy? I don't remember if you addressed that in the past. I don't even know if spondy is the only reason they do fusion in the growing old crowd. The doctor said he is 100% sure that removing the cause of the stenosis will give me immediate relief in regard to the buttock and thigh pain, but he is not sure that the low back pain will be completely gone. That was the response when he saw my hesitancy about fusion....of any kind. He admitted that my "spondy" was not severe, actually it was a low grade spondy but there is enough of it that peeks(my word) into the nerve canal, that makes him say there is a possibility if I don't have the fusion, I may still get the low back pain. I remember reading on the Old Forum, one of the posters said she had talked her doctor out of fusion and now she has to go back for a repeat of the surgery that she talked the surgeon out of doing. I don't remember her name. But I understood that initial belief of "Well why don't we see if the stenosis removal can take care of everything first." Because that is my thinking. Once fusion takes place, it can never be reversed. Post Op, the instructions are, don't bend very much and don't twist. If I counted the number of times I bend just picking up after the spouse of the house, and making a king size bed is all lifting and twisting, I could enter the Hall of Fame for the number of times I bend The doctor said he would do the surgery on the stenosis if I was that adamant against fusion but he would start me on an immediate regimen of back strengthening exercises. Which in turn means to me those abdominals have to be really improved. I have 4 areas on my abdomen that have scar tissue from past abdominal surgeries. I never could get them back in shape even when I was younger. Will strengthening exercises actually overcome the spondy, or will it just prevent it from slipping further? Decisions, decisions, decisions. Marie B |
| littleonefb wrote: |
|
Marie, you are right, leave the office and presto tons more questions that you think of that you should have asked, even if you had a list a mile long to begin with. And, yes, a little bit of knowledge can be dangerous, reading on line can be even worse. As my spine doc said to us as we asked question after question, "Wow, wait a minute. erase what you have been reading on line from you mind and then we will start again with the questions. Too much incorrect info is on there and never corrected or what you read is really well out of date and then you come in to a docs office panicked stricken with so much info that isn't correct". I had tried to find all the info I could on laminotomy and recovery and almost everything I read was mostly wrong. It was really upsetting to find out that even the most careful research we can do on line is, many times not correct. Just about the only thing correct that I was able to find was that the recovery period is less than for a laminectomy, but still very difficult. Not funny to find out that all you where panicked about was a waste of time. energy, effort and most of all panic and lack of sleep. We where planning for me having to go to a rehab facility because we where reading that you can't climb stairs and need help just to move. Oh, my what the truth was and how different. Anyway, my hubby was sold on my spinal doc from day one too. Even before we ended up talking about surgery as the only answer to my problem. I think it was mostly because this doc really cared about his patients, took the time to explain everything and was determined to do whatever he could to relieve my pain and avoid surgery unless it was necessary. We liked the fact that this particular Sports medicine practice was all inclusive. They had orthos for every part of the body, pain docs in the office, their own xray department, and the MRI facility downstairs as well. Everyone worked as a team, met as a team as needed with other docs in the office, pain doc and ortho worked together to set up a plan and they constantly where in touch with the patients primary doc as well. Mine too didn't use the "big guy" hospitals unless absolutely necessary as you just get lost in them, and he didn't like his patients "being treated like a number", when his office does their best to treat each patient as an individual. I didn't have fusion of any kind nor did I have an facet problems and the only area affected was the L4,L5,S1 with a lateral stenosis. He saw no spondy or anything else on the MRI. Of course the MRI was done over a year ago, so that doesn't mean that something else hasn't developed or will develop in the future. He told me that because there was a problem, I have about a 50/50 shot of future problems and there is nothing that can prevent that from happening, nor can he see into the future and tell me what will or will not happen with my spine. He can only give me statistical info. My doc was positive that by doing a small, partial laminotomy and shaving a part of the lateral recess area, that my problem would be solved. He did see a slight flattening of the disc in the area at the lateral recess area and believed that once that area was widened, the disc would bounce right back into shape and be fine. He saw no evidence of spondy and went over my MRI with a fine tooth comb and compared mine to specifics in a huge book of MRI pics of the spine. Docs call it the "MRI bible of spine pics, and what normal vs problem look like". He was able to match mine to what he says my diagnosis was, but couldn't match my MRI to any other problem that any other doc I saw for other opinions said was wrong. Now those abdominal muscles, strengthening them and lots of abd surgeries I can relate to. My lower abdominals and middle ones look more like a road map and they started when I was 17 with an emergency appendectomy. I'm lucky to be alive after they ruptured and left me in a coma for a few weeks. Since that one I have had 3 lower abdominal ones, before the advent of the endoscope, just to repair GYN damage from the original ruptured appendix, that also forced the removal of one ovary and 1 tube on the same side as the appendectomy. They also removed scar tissue from the original appendectomy 3 times. Those abs where not in the greatest of shape strength wise when I got pregnant with my first 10 years later. It's hard to get them in shape after being cut into so many times. My first was born my c-section in an emergency and the bless doc did a horizontal outer incision as it was quicker to save my son's life. That split the muscles down the middle from just below the naval. That did them in and it's all but impossible to get them really strong again. When I had my second baby, they went in and "unzipped" the original c-section incision as I didn't dilate enough after 52 hours of labor. Well forget getting them strong again. It's like having to separate sets of lower abdominal muscles. They are as strong as they will ever get and they are split down the middle, with a sunk in area where the incision line is and 2 bulges on either side. Not pretty to look at either and it doesn't matter how thin or heavy you are, they look the same. Oh, forgot a year and a half before I got pregnant with my 2nd, I had my gallbladder removed as an emergency, so there is one huge incision in my midriff for that one. Those muscles are pretty strong. As for the no bending, twisting, turning, stooping with a fusion. Those where my orders for just a laminotomy as well. I looked at the doc and said, "How the heck am I supposed to wipe my rear on the toilet. I'm very short and very short arms. I couldn't do that when I was little without twisting some?" He said that was ok," but nothing else, for 6 weeks. But then you will be without the pain that you are feeling, so how bad will it be to get that result?" I looked at him and just told him "give those instructions to your wife and remember you have 3 young kids and see what she says, or better yet, have her follow those orders for 1 week and see for yourself what kind of disaster occurs in your house." Well he actually did give his wife those instructions. She looked at him and told him that instead she would make him a list of all the things she wouldn't be able to do with those rules and he will see what the results will be that way. The next time I saw the doc, before my surgery, he told me what the results where with his wife and all he could say was "be glad you don't have any little kids at home as well." I just laughed. Believe me Marie, you do manage without the bending, turning, twisting, stooping bit. Just make a list of all the things you have to do that involves that stuff and work out how you can do any of them with the restrictions. If you can't then the stuff doesn't get done by you. We went through every room in my house, 1 by 1, and moved things, rearranged the kitchen and all that good stuff so that I could be as independent as possible and not do any harm to myself after surgery. My hubby was home with me for a week after surgery and it worked out fine. The following week he went back to work and I managed with bits of help from some friends and my daughter, who was 23. Spinal surgery can't end all the muscle pain that you have, and my doc told me that. He didnt' believe that all the pain in my buttocks would go with the surgery as he believed it was from weak and possibly damaged muscle from lack of use for so long. The old "what you don't use, you lose" is true. In my case, some of that muscle is damaged and won't heal or respond to PT. Since it is weak in one part I have to be careful to not over do. I blew it and now it is torn and might need surgery to repair. But prior to that, I had some mild discomfort from it, especially when the weather changed or a storm is coming. that I can live with and rarely took even a regular strength tylenol for it. It slows me down some in terms of the length of time I can do things before I have to stretch and rest. The thing is, I can do everything I did before, just not for the long period of time. I used to be able to garden for hours on end without a problem, So now I can go for an hour, then I have to change positions and rest a bit, but I can get in 4-6 hours of gardening a day. I can't walk 4 miles at a time, but I can do 2 miles then rest and do 2 more, at least before the muscle tore I could. So I have restrictions on my activity. The thing is before the surgery, I was in constant pain, couldn't walk 10 steps and, in all honesty, contemplated suicide if I had to live the way I was living. So I have no complaints. Fusion may not be the way you want to go, but it sounds like that your doc is being very honest with you and telling you like it is. From a prior post you listed the following problems "The reason: Chronic progressive low back pain. Bilateral lower extremity radiculopaty. Several bulging discs, L3-4 level diffuse disc bulge. L4-5 level bilateral facet disease, buckling of the ligamentum flavum, moderate to sever spinal canal stenosis with impingements of L4 nerve and L5 nerve and a L5-S1 disc herniation. That was the MRI result in January ordered by primary physician After 5 months of 2 lumbar Injections and 3 Transforaminal injections with little if no relief, went to local orthopedic spine specialist. X-ray found Spondylolisthesis. Jan's. MRI report specifically stated: "No spondylolisthesis is seen." Advised no minimal surgery. Large incision, discectomy, fusion, bonegraft and of course the required blood donation for such extensive surger. Shock was my response and a walk out the office door in a daze. D. That's several different things going on in a couple of areas and I would think that doing just the stenosis with no fusion of any kind would weaken your spine and cause problems down the road, if not shortly after the surgery. Your original doc also said "no minimally invasive surgery, bonegraft" and all the big gun stuff. Your new doc has a different method and sounds more up to date on what he can do to help you. Fusion can't be undone once it has been done, on the other hand, I wouldn't want to have further surgery to do it after the surgery I had didn't work and made it necessary to have the fusion either. I'd also be worried about any further damage done if I didn't have the fusion that the new doc wanted to do now and ended up having to do later, especially with abdominal muscles like we both have. PT can strengthen them some, but not the way they should be. I have talked with a couple of people in the waiting room of my spinal docs office who have had the laser surgery and where now there for fusion because after several years, spondy developed or got worse and the spine is slipping all over the place or they where there for follow-up after having no fusion done with another doc, they didn't want it and now they where slipping as well. What you have Marie, are 2 docs telling you that you should have fusion with your spinal problems. The difference is the method of surgery that is so different. If you are still unsure of what to do, you can always get another opinion and see what that doc says as well. I'm guessing that you will hear fusion from another doc as well because of all that the MRI shows. The question may come down to how the surgery is done, how confident you feel with the doc and whether you want to risk surgery with no fusion and hope that works and if not face fusion at a later date. If I felt confident with this new doc, I would go with him. If I still had some doubts I would get another opinion first. Fran |
| littleonefb wrote: |
| marie, I don't know about the fancy smileys but do with the ones listed on this forum.
To use those you do the following. Go to the bottom of the page and click on post a reply. don't use the quick response. Once on the post a reply you will see the smileys and where it says "view more emotions. Where ever you want one of them to appear in your message just click on one of the smiley pics. It will show up in your message as a bunch of numbers, letters, punctution and/or a combo of any and all of them. When you either preview the message first or just click submit, the smileys will show up in the message. Now if someone can tell us how to get all the real fancy ones, I'd love those too, but there is a message under the help on this forum that too many smileys in a post are not allowed or something to that affect and they delete them. Fran |
| We comply with the HONcode standard for trustworthy health information: verify here. |



