I have been reading through the posts in
this thread, as I had some interest in
investigating the laser surgery methods.
I've looked into them and decided to go
with a more mainstream surgery approach.
One of the main reasons is that I want the
surgery to be done close to where I live.
I live in the Boston area and am
currently consulting with two surgeons at
New England Baptist Hosp. Any who live in
the Boston area are probably familiar with
this hospital as they specialize in back
surgery. I have spinal stenosis at L4-L5.
One of the surgeons I have consulted
with so far is recommending a
hemi-laminectomy procedure to remove bone
growth/protrusions which are compressing
the nerve at L4-L5. From my MRI it
appears that I also have some L4-L5
compression where the nerve exits the
spine. There does not seem to be any
significant compression from the discs.
This is an out-patient procedure and he
expects that I can be back to work (in an
office) in 2 - 3 weeks. I have another
meeting scheduled with him, and a
consultation with a second surgeon in a
few weeks. I have been doing epidural
injections for the past 2+ years and they
have been helpful, but the last 2 seem to
be less effective. The doctor tells me
that the epidurals generally become less
effective after 2 - 3 years.
For those who have had back surgery
previously(or have researched it), I
wanted to get your input on the following:
1) I understand that decompressing nerves
where they exit the spine is trickier than
decompression in the central spinal canal.
I want to discuss this further with the
surgeons. Does anyone have any
experience with spinal nerve decompression
where they exit the spine (foramens) ?
2) I understand that the development of
scar tissue can occur in a small
percentage of surgeries, and if it does
then the nerve compression can return.
And the scar tissue cannot be removed
through surgery, so you can end up back
where you started with nerve pain. This
is obviously a major risk. Has anyone
experienced this and are there any methods
to try and prevent this during the surgery
?
3) In talking with the surgeon and other
back doctors, they indicate that the
removal (or partial removal) of a lamina
will not affect the stability of the
spine, since the lamina do not support any
weight in the spine. However if a facet
joint is removed then that will definitely
impact spine stability and may require
fusion. Has anyone heard of any
negative impact from lamina removal or
partial lamina removal ?
Thank you,
John
|
RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 911
Thanks: 21
Thanked:0
Posted: 08-27-08 18:51pm
Hello Dijohn,
WELCOME to this forum and especially to
this thread. I commend your efforts in
reading through this "book". A lot of
info is shared to say the least.
As soon as I read that you live in the
Boston area I immediately knew you needed
to contact Fran. She has a SUPERB spinal
surgeon. I'd see the fellow myself, but
as you so properly decided, it is best to
go to the very best spinal surgeon in ones
own area.
Permit me to make a small correction in
your No. 2 - I do not know of a single
surgery where there is not the development
of scar tissue. The only question is was
the surgery done in a manner that
minimizes the formation of scar tissue.
SOOO Djohn, I'll let you and Fran have a
good discussion.
Hope all goes well for you.
RichT
|
Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
Your neck of the Woods Posted: 08-27-08 19:14pm
John, If you are open to one more
surgical opinion, Fran is up in your neck
of the woods. She might be willing to
help you get that one more surgical
spinal opinion to your questions and give
you more options.
She also can tell you more about the
hospitals around that area.
I had Lamenectomies at L4 L5. To get to
and remove the cause of my stenosis my
spinal surgeon had to remove the entire
Lamina..."they called it "taking the roof
off" the vertebrae. This part of the
procedure decompressed a buldging disc and
its accompanied buckled and over grown
ligamentum flavum that was pressing on the
Cauda Equina. I also had Medial
Facetemies. I had a lot of bone spurs
present that needed to be addressed. This
resulted in my having to have Fusion. I
did not have rods and screws etc for the
Fusion. My surgeon used the bone from the
removed lamina as the grafts for fusing L4
and L5. The process was called Fusion
In-Situ.
My surgeon did do Foraminotomies to give
my exiting nerves more room. I did have
at S1, a herniated disc that was sitting
on the nerve seat. The foraminotomy took
care of the exiting nerve by giving it
more space. The nerve was not impinged.
I did have a small impingement at the L4
on the right side of the vertebrae. The
Foraminotomy relived the impingement and
the nerve recovered nicely.
After 8 months I am doing absolutely fine.
No pain at all and all the concern about
limited motion at this point in time is
gone. I am amazed at how much movement I
have in my back. I can bend forward
although I am careful not to push it too
much.
Good Luck with your decision and if you
can handle the pain, make sure you get as
much information as possible to the
surgical approach to your spinal surgery.
Know what you are getting into ahead of
time. If you find your doctor does not
answer questions nor give you as much time
as you need for you to make a decision,
there is always another person to go to.
If you need this, Fran I'm sure will help
with a name and a place.
Marie B.
|
djohn
New User, Becoming EHEALTHy
Joined: 27 Aug 2008 Posts: 11
Spinal Surgery Posted: 08-27-08 20:53pm
RichT...thank you for the welcome to the
forum. There is a lot of great
information here! And thanks for the
correction on the scar tissue.
Marie...it looks like your surgery has
been very successful. You mentioned
that you had an overgrown ligamentum
flavum, which is a major ligament in the
spine. The thickening of the ligamentum
flavum seems to be a fairly common spine
issue as people age. How is this
decompressed ? Does the surgeon
actually trim part of this ligament ?
Looking forward to Fran's input on her
experiences with spine surgeons in
Boston.
Thanks!!
|
littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 394 Location: ,
Thanks: 18
Thanked:0
I'm Here, I'm Here Posted: 08-27-08 23:02pm
I'm here, and wow, really. Thank you Rich
and Marie for such sincere compliments on
my knowledge and experience.
Believe me, I wish that I didn't have the
experience, but glad to be able to help.
So Djohn, first off please remember that
all that I say is either my own personal
opinion, personal experience and some
medical experience that I have had.
I AM NOT A DOCTOR, NURSE, OR ANY OTHER
KIND OF MEDICAL PROFESSIONAL.
I've just had far to much experience in
dealing with orthopedic problems since I
was a kid. Between myself, my brother the
accident prone kid, my sister and 2
varsity athletes for kids who played
sports since they where 5, one is now 30
and the other 25, I have learned to read
x-rays and some ability to read MRIs
especially spinal ones.
I too am in the Boston area, actually
northwest of Boston by about 25 miles and
quite familiar with New England Baptist
Hospital in Boston, all to familiar in
more ways than one, which I will go into
in a bit.
I grew up in Brookline, a first suburb out
of Boston. I am now 57, and when I was
growing up and until a few years ago, New
England Baptist Hospital was considered
the premier orthopedic hospital in the
state, in the area, in New England, in the
country and in the world.
They specialize in spinal surgery and do
about 20,000 spinal surgeries a year.
And yes, they are the selected hospital of
the Boston Celtics basketball team.
Now having said all of that, I will take
an excellent guess that in the past few
weeks, patients are running away from the
New England Baptist Hospital faster than a
"cat has kittens", as fast as rabbits
multiply and any other saying you want to
use.
That is based on a front page article that
appeared in the Boston Globe about 3 weeks
ago that stated over the past 2 1/2 years
ago, New England Baptist Hospital and
Lahey Clinic, both in MA accounted for 50%
of the spinal surgery errors, and we are
talking about serious spinal surgery
errors. Things like fusing the wrong
vertebrae during surgery, not finding out
till after it was done.
This was serious enough that when the
information was reported to the state by
the Globe, the state ordered New England
Baptist Hospital to hire an outside
consultant to review the errors and their
"blueprint for reducing errors"
Believe me, I was amazed to read this
article and to think that I was there in
2006 and saw 2 different spine surgeons
for other opinions before having my first
spine surgery elsewhere.
I was even more amazed to read that this
was going on in 2006 while at the same
time New England Baptist Hospital was
doing a massive blitz of advertising on
every radio station in the state, every
newspaper in the state and all over the
local TV networks, about their expertise
in spinal surgery, innovative procedures
and the best in the world.
Before I go on, Djohn, i want to post this
and then a link to the globe article
Fran
|
littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 394 Location: ,
Thanks: 18
Thanked:0
Re: Spinal Surgery Posted: 08-28-08 00:32am
djohn
wrote:
Hello,
I have been reading through the posts in
this thread, as I had some interest in
investigating the laser surgery methods.
I've looked into them and decided to go
with a more mainstream surgery approach.
One of the main reasons is that I want the
surgery to be done close to where I live.
I live in the Boston area and am
currently consulting with two surgeons at
New England Baptist Hosp. Any who live in
the Boston area are probably familiar with
this hospital as they specialize in back
surgery. I have spinal stenosis at L4-L5.
One of the surgeons I have consulted
with so far is recommending a
hemi-laminectomy procedure to remove bone
growth/protrusions which are compressing
the nerve at L4-L5. From my MRI it
appears that I also have some L4-L5
compression where the nerve exits the
spine. There does not seem to be any
significant compression from the discs.
This is an out-patient procedure and he
expects that I can be back to work (in an
office) in 2 - 3 weeks. I have another
meeting scheduled with him, and a
consultation with a second surgeon in a
few weeks. I have been doing epidural
injections for the past 2+ years and they
have been helpful, but the last 2 seem to
be less effective. The doctor tells me
that the epidurals generally become less
effective after 2 - 3 years.
For those who have had back surgery
previously(or have researched it), I
wanted to get your input on the following:
1) I understand that decompressing nerves
where they exit the spine is trickier than
decompression in the central spinal canal.
I want to discuss this further with the
surgeons. Does anyone have any
experience with spinal nerve decompression
where they exit the spine (foramens) ?
2) I understand that the development of
scar tissue can occur in a small
percentage of surgeries, and if it does
then the nerve compression can return.
And the scar tissue cannot be removed
through surgery, so you can end up back
where you started with nerve pain. This
is obviously a major risk. Has anyone
experienced this and are there any methods
to try and prevent this during the surgery
?
3) In talking with the surgeon and other
back doctors, they indicate that the
removal (or partial removal) of a lamina
will not affect the stability of the
spine, since the lamina do not support any
weight in the spine. However if a facet
joint is removed then that will definitely
impact spine stability and may require
fusion. Has anyone heard of any
negative impact from lamina removal or
partial lamina removal ?
Thank you,
John
Hi John,
I'm going to answer your post starting
with your questions first.
I have never heard of lumbar surgery being
more risky or more difficult than thoracic
or cervical surgery. I've only heard the
opposite from both my spinal surgeon and
my PM doctor as well.
Scar tissue is always a risk with any type
of surgery, whether it be spinal,
abdominal, or anywhere in the body. With
spinal surgery, it is true that if scar
tissue builds up post op, you could end
up right back where you started from with
nerve pain.
Unfortunately, some people build up scar
tissue and others don't and some people
are more prone to it than others. There
are some people that have a severe problem
with scar tissue build up and they are
poor candidates for surgery of any kind.
On the other hand, there are some doctors,
including my own, that use a fairly new
technique that is used in Japan that has
an incredible result in preventing the
build up of scar tissue of any kind post
op. Trust me, I know this because I'm now
recovering from my second spinal surgery
and have no scar tissue build up at all
and it has my PT in awe of what my spinal
surgeon does with this technique. There
are several patients at this PT facility
and we all have the same results. The PT
has 20 years experience and has never seen
anything like it, except with my surgeon.
I have heard of bad results from having
laminotomies done. I have not been able
to figure out, even with a google search
if a hemilaminectomy and a laminotomy are
the same thing. I keep meaning to ask my
spine surgeon when I see him, but never
remember that one. Too many other
questions about myself get in the way.
Anyways, the negatives I have heard are
all because they shouldn't have had them
done or they weren't done correctly. If
there is any kind of spine slippage then a
lamintomy or hemilaminectomy should not be
done without some kind of hardware support
being placed to keep the vertebrae from
slipping.
If there is no slippage, then there is
nothing to fear and I am the perfect
example of that.
I had a partial laminotomy and widening of
the lateral recess of the L4,L5/S1 in 2006
and just about 8 weeks ago I had done on
the L3/L4 a bilateral laminotomy, partial
facetectomy, widening of the lateral
recess, widening of the central foramen
and decompression.
Prior to this last surgery in June 2008, I
was fully stable, with no loss of function
once I recovered from the surgery. I had
various types of setbacks that aren't
uncommon to have, but 12 months post op
and I was fine.
Fine that is until an accident last
winter, which I posted about many pages
back. It resulted in the need for the
surgery I just had.
My first surgery was done in June 2006,
and yes I keep telling my wonderful spine
surgeon that this is getting to be a bad
habit, meeting in the OR in June, every 2
years and it has to stop.
My first surgery ended up being an
emergency because I started to suffer what
is called cauda equina syndrome, loss of
bladder control. Lucky for me, it started
about 12 hours before scheduled surgery
and I just went in as planned, but had I
not been scheduled for that day and time,
I would have been anyways, as you have no
more than 48 hours at most to have surgery
to relieve the nerve compression before
the nerves are damaged for good and
bladder control is lost forever.
It is true, that over a period of time,
usually a couple of years, the epidurals
become less effective and beyond that
time, they generally start to just plain
not work.
I fully understand wanting to stay in the
same area that you are living in for your
surgery and going for the conventional
route for spinal surgery. I pretty much
did the same thing.
I live northwest of Boston, had many
"second opinions" before going with my
original spinal surgeon and he is located
on the north shore. So it is a ride for
me, but easier and quicker than going into
Boston.
I saw 2 different doctors at the New
England Baptist Hospital and both docs
where a horrible experience for me. Both
misdiagnosed me, one said it was all in my
head and told my husband to take me to a
shrink. 4 days after seeing this doctor
at the Baptist, I lost total bladder
control.
The absurdity that you have to go through
to get an appointment there for a second
opinion already had me turned off, but the
hospital itself was not a pleasant
experience either.
It's location is bad news, up that
horrible steep hill. The fees for parking
where totally insane. in 2006, it was $9
for 2 hours. no discount for seeing
doctors and we found out that if I had
surgery there and it would have been day
surgery, the charge would have been $18.
I could barely walk and to make that long,
long walk to the doctor's office from the
front door was impossible for me. I
needed a wheel chair and there where none
to get. We where told they where all in
use and I would have to wait my turn to
get one. Luckily we arrived 30 minutes
early for the appt, and it took that long
to get a wheel chair.
This was in an orthopedic hospital no
less.
By the time we left the appt, the first
one, 4 hours later, we where charged $18
for parking.
The second doctor I saw at the Baptist was
really no better than the first one and I
might add, they both told me that my
spinal surgeon "was more than willing to
operate on me for no reason to make money
and there was nothing wrong with my
spine." the second one told me that if he
"where to do surgery on you and I'm not
saying I would, because you are at least
10 pounds overweight (which is true), I
could not do a minimally invasive surgical
incision on you, I would have to do a 4-5
inch incision and there is no such thing
as lateral recess stenosis."
That's when I said "thanks but no thanks,
you can go straight to hell because it is
well documented that the biggest reason
for failed spinal surgery for
decompression is not decompressing the
lateral recess of the vertebrae and when
the decompression fails, the next thing
that's done is a spinal fusion and the
patient is still in the same pain they
where in before any spinal surgery is
done; and if you think I would let you do
that size incision for a decompression on
1 vertebrae you are insane. that is the
size used for a fusion with
intrumentation."
He just walked out of the room.
John, I don't know if you are aware, but
it has been in the Boston Globe and other
papers that many of the spinal surgeons
that where at the Baptist have left their
and gone over to Newton-Wellesley Hospital
instead.
That says something to me as well.
I also know several people who have seen
spinal surgeons as New England Baptist
Hospital and where not satisfied with the
doctors they saw there, The minute they
started asking "too many questions",
questioned something that the doctor said,
the doctor got angry and had that attitude
"i'm the doctor and I know best, you don't
need to know the answers to those
questions" attitude and they refused to
answer the questions.
I've also talked with other people on
other forums who have had surgery at the
Baptist and did not have good results and
when that happened the doctors where not
pleased and just pawned them off to PM
docs and they had a tough time finding
another spine surgeon that would see them
in the Boston area.
After the article that was in the Boston
Globe, one of the last places I would even
consider for spinal surgery would be New
England Baptist and the other would be
Lahey Clinic and that's without my own
personal experience at the Baptist and
others that I know personally and on
Line.
You didn't say if the doctor at the
Baptist was going to do your surgery with
the use of an endoscope or with a
traditional open spine incision, but if it
is open spine surgery, your incision
shouldn't be more than 1-1 1/2 inches.
any more than that, then run for your
life. That is all I had with both of
mine.
As for being back to work in 2-3 weeks.
Well it's possible, but I would highly
doubt it.
It takes time to recover from spinal
surgery and believe it or not, you are
going to find yourself with very weak
muscles after surgery not matter how the
surgery is done.
You haven't been using your muscles
correctly for some time, even if you are
unaware of it, because your body has been
compensating in various ways to deal with
the pain you where having.
Once you start to stand up correctly and
move correctly, you are going to have some
very angry muscles that aren't going to be
happy that you are using them again. You
will also have nerves that are going to be
even more angry and will need time to heal
and regenerate after the surgery and you
will have quite a bit of inflammation as
well.
You may actually feel fine immediately
after surgery and be all but moving
normally for the first time in quite a
while, BUT, those muscles are going to
start to hurt and the nerves are going to
start zapping you as you start to heal and
some of your pre-op pain will return for a
while as well. It's all perfectly normal
to happen and will, in time, all vanish.
The key is time.
You should get a 10 week course of
physical therapy going twice a week,
starting about 3 weeks post op. You will
need to learn the proper exercises to
strengthen the core muscles and keep your
quads and hamstrings well stretched. Any
doctor that doesn't order that for you
after the type of surgery you are having
is not one to use.
Those exercises will become a permanent
part of your daily life and if you don't
do them, you will pay for it dearly for
several days. Take it from one who knows
well.
It is also quite possible that once you
are back on your feet, walking well and
walking is a key component to healing from
any kind of spinal surgery, that you will
start having some problems in your feet
and ankles. Again that can be normal.
Remember you haven't been walking
correctly for some time and now that you
are standing correctly, walking correclty,
etc. your using muscles in your ankles and
feet that you haven't been using for some
time. they aren't going to be happy with
you either, and you might need a round of
PT for those too, like I did and a
permanent need for custom orthotics in
your shoes like I have.
Another thing you will need, no matter who
and where you have your spinal surgery
done, is a good quality walking shoe. The
number 1 shoe that good spine surgeons,
foot and ankle orthopedic docs and
podiatrists tell their patients to get,
and these are docs from all over the
country not just in MA are New Balance
walking shoes, style 926.
My son lives in Kentucky and he was told
to get those, a friend is in Texas and
those are what she was told and my spine
surgeon said the same thing and to have a
brand new pair to wear into the hospital
the day of surgery.
I live in mine and have several pairs.
Good ones for going out in, a more worn
pair to wear in lousy weather and the
"dirty" pair that I wear working in the
gardens. The feet love them, spine love
them, the body loves them and they feel
better than going barefoot.
I'm glad to see that you are getting more
than one opinion before you have surgery.
Don't be afraid to get more than that
either. Spine surgery is serious stuff
and several opinions is good.
If you would like the name of my spine
surgeon, whom I have sent many a patient
to and no one has ever gone anywhere else
after seeing him. just pm me and I will
be glad to send you the name.
And he isn't a knife happy doctor. 5 of
the patients I sent to him where all
advised to have a 1 or 2 level fusion for
their disc problem. he told them no way
jose. Sent them to 8 weeks of PT, saw
them again and that was the last time he
saw them. They have been fine for at
least 2 years and their MRI is showing NO
PROBLEMS.
If only I could have been that lucky.
Anyways, good luck with whatever you
decide to do and please, feel free to PM
me any time.
Fran
|
littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 394 Location: ,
Thanks: 18
Thanked:0
Posted: 08-28-08 00:34am
I have some comments I'd like to make
about the article that I posted from the
Boston Globe, but I'm going to bed, it's
1:30AM. Will post them later today.
Fran
|
ratter
Experienced User , Rather EHEALTHy
Joined: 13 May 2008 Posts: 51
ratter Posted: 08-28-08 08:42am
I agree with the walking. Walking really
helps the body and mind after an operation
if you are able to do it. An excellent way
to feel better and even if you have any
leftover pain, walking eliviates its.
Highly recomnd it. Even if you have to
push yourself, you will be glad you did
it.
|
djohn
New User, Becoming EHEALTHy
Joined: 27 Aug 2008 Posts: 11
Spinal Surgery Posted: 08-28-08 08:53am
Fran,
Wow....thanks very much for taking the
time to provide all that information. I
had not seen that Boston Globe article,
but I'm definitely having second thoughts
about NEBH. The surgeon there was
looking to do endoscopic surgery, so that
may have been why he was saying 2 - 3
weeks to go back to work. I understand
that the recovery time is a bit shorter
with the endoscopic approach.
I recently went through a physical therapy
program for about 6 weeks..doing stretches
and strengthening exercises for lower back
and core. I have continued these
exercises and stretches and do them daily
on my own. There are also a number of
exercises that I learned through the
therapy, that I do at my gym several times
per week. The exercises are great for
strengthening muscle to support the spine
and should provide long term benefits, but
have little or no impact on relieving pain
from compressed spinal nerves. And
since the epidurals are losing
effectiveness, I'm now looking at the
surgery option.
I will PM you to get the name of your
surgeon. I'll also check out
Newton-Wellesley.
Thanks!
|
Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
See!!! Posted: 08-28-08 13:02pm
See! John. Rich and I arm ourselves with
Fran's information and when she doesn't
know the information she has sources where
she gets direct information.
From the New Balance Shoes to Grabbers, to
long shower brushes, to almost anything,
Fran is our Encyclopedia for spinal needs.
A lot of people don't like to read all of
that information that she provides.
Heaven only knows why. Too many men and
women go to surgical spinal doctors
unarmed or like I tend to say "a lamb to
slaughter"
You are a wise man, John, to be willing to
get that one more spinal surgical
opinion.
Once you do that, please keep us aware of
what is happening to you, your thoughts
and opinions as you proceed into this
getting rid of spinal pain. Our hope is
to help all people who read the postings
here and to emphasize the need for a
thorough search for a good spinal
surgeon.
Marie B.
|
RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 911
Thanks: 21
Thanked:0
Posted: 08-28-08 15:33pm
Hello Marie,
YES, John is a wise man. I too will look
forward to his sharing his "process" in
selecting the BEST spinal surgeon and
hospital.
"a lamb to slaughter". I know what you
mean. People blow my mind when they just
bury their head in the sand and blindly
have surgery by the first doc they meet on
the street so to speak.
I'll tell you another one - A member of
our church had a cochlear ear implant by a
doctor at a university. I asked his wife
how they selected the surgeon. Her
response "we just went on blind faith".
That about sent me through the roof!!!!!
The good Lord expects more of us than that
in my opinion. And sorry to say, less
than a year later she died from a brain
tumor. A very nice wonderful lady. I
often wonder if she would still be alive
today if she went to the best doctors she
could find rather than "going on blind
faith".
Take care.
RichT
|
ratter
Experienced User , Rather EHEALTHy
Joined: 13 May 2008 Posts: 51
Ratter Posted: 08-28-08 15:59pm
Just got official word in writing from my
HMO .......no more money they will not pay
anymore than the $800 they sent. They said
that on the phone, but they had to follow
up in writing. As to trying to get ss
disability, after seeing the Social
Security Dr awhile back, I got a letter
from SS saying although they aknowledge I
have Arthritis problems based on all the
info and their Dr's tests and so on, as
long as a person can grasp something in
their hand, they can find work. They then
wished me the very best and I can anytime
re-apply again for Disability. Heck at
least they aknowledged my "problems". When
you apply for Disability, you have to show
them everything, all Xrays, MRI's and the
whole works and as mentioned you have to
then see their Back Dr. Don't get me wrong
ethier Dr did say I had problems based on
the MRI and other stuff, and he was a real
nice guy, but no SS Disability was end
result. He also wished me luck down the
road......kinda makes me sweat when all
the various Dr's keep saying that. Sounds
like they are implying something. GULP!!
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littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 394 Location: ,
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Posted: 08-28-08 16:23pm
Ratter, SS Disability is for people who
really can't work. If you can hold things
and move and do things, then you may have
to change jobs, but you still can work.
It's that simple.
They make it extremely difficult to obtain
SS disability, more than they really
should, but on the other hand they are
trying to keep people form obtaining
benefits that really don't deserve it.
As for your HMO not paying any more for
you LSI bills, you should be grateful that
they paid anything. Usually HMO's do not
pay anything for out of network surgery or
doctors unless it is a life or death
situation.
As for doctors wishing you luck down the
road. That can just be a courtesy comment
and polite without any meaning. On the
other hand, it could be an indication that
you could or will have some further
problems with your spine, arthritis etc.
in their opinion.
No one can predict the future, not even
the best spine surgeons or any doctors in
the world, they can only give an estimated
guess based on statistics. They can only
deal with what is present in front of
them.
How you deal with your present situation
and/or medical situations is up to you and
how you decide to treat them and with what
kind of doctors is also up to you.
I only know that ignoring existing medical
problems will not make them go away and
pretending they don't exist won't do it
either.
Fran
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littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 394 Location: ,
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Re: Spinal Surgery Posted: 08-28-08 16:39pm
djohn
wrote:
Fran,
Wow....thanks very much for taking the
time to provide all that information. I
had not seen that Boston Globe article,
but I'm definitely having second thoughts
about NEBH. The surgeon there was
looking to do endoscopic surgery, so that
may have been why he was saying 2 - 3
weeks to go back to work. I understand
that the recovery time is a bit shorter
with the endoscopic approach.
I recently went through a physical therapy
program for about 6 weeks..doing stretches
and strengthening exercises for lower back
and core. I have continued these
exercises and stretches and do them daily
on my own. There are also a number of
exercises that I learned through the
therapy, that I do at my gym several times
per week. The exercises are great for
strengthening muscle to support the spine
and should provide long term benefits, but
have little or no impact on relieving pain
from compressed spinal nerves. And
since the epidurals are losing
effectiveness, I'm now looking at the
surgery option.
I will PM you to get the name of your
surgeon. I'll also check out
Newton-Wellesley.
Thanks!
John,
Glad to help and I sent you a PM with the
info for you.
Another thing, I personally wouldn't use
any of the doctors at newton wellesly
either, especially the ones that have left
the Baptist to go there. We don't know
who the doctors where that where involved
in the spine problems, but I do know that
these docs where there when all of it
happened.
From what I have been able to find out,
the records on the problems with the
surgeries do not include any doctors names
so we, as a public as well as other
doctors, can not find out who the doctors
are that where involved in the botched
surgeries.
Something that most people don't realize
about endoscopic surgery is that there is
a 50/50 shot that you will end up with an
open spine surgery instead.
The plan may be endoscopic surgery, but if
the doctor finds he has more to do than he
thought, or the visual field is not enough
to do what is needed, then the endoscopic
tube is removed and an incision is made.
Personally, I'm very uncomfortable with
the idea of endoscopic surgery in my
spine.
The visual field is very, very small
through the tube, even with the view on a
screen for the doctor to see. It may be
enlarged on that screen but the view is
still a very narrow view of what is going
on inside.
The vertebrae in your spine are about 1
inch and that is small folks, real small.
Inside there are all kinds of things to
work on and not work on and that includes
the spinal cord.
The risk is extremely low of causing
paralysis at the lumbar level, but those
nerves do go into some big time areas of
the body that affect bowel and bladder
control, male as well as female sexual
function etc.
I'm of the old fashioned school of open me
up and use your god given eyes and those
magnifying glasses over them to see
everything you need to see and be sure you
are doing everything that is needed and
not leaving anything behind, i.e.
splinters of bone from enlarging the
vertebrae or sealing disc etc.
Start with the smallest incision you need
and then, if needed, enlarge it.
MRI's don't show everything that is
possible as was the case in my surgery.
The MRI was 2 weeks old before I had the
surgery this past June and it did not show
the disc to be as compressed as it was,
nor did it show the nerves where as
compressed as they where.
Had my spine surgeon started with an
endoscope, it would have been pulled out
and the incision made as he would not have
had enough of a visual field to see all of
what was going on.
I came as close as you can get to a fusion
without having one. I was just lucky that
the disc popped right up, nice and full
and the nerves where not damaged, just
squished about as squished as you can get
and still survive.
And John, don't kid yourself about quick
recovery from having the decompression
done with an endoscope. It's the nerve
compression post op that takes all the
time to heal and get you back on your
feet, not the incision. I had no incision
pain, maybe 3 days post op from a 1 inch
incision either time. It was all the lack
of muscle use for so long and the nerve
healing that goes on that slows the post
op healing.
That doesn't change with an endoscope.
It's good that you have had PT and have
exercises to do. Keep those up as the
stronger the cores are pre-op the better
they will be post op. But you have to be
seen by PT post op for evaluation of how
you are moving and not moving. Doing the
wrong exercises will injure you and cause
big time setbacks to recovery.
You need to start those exercises slowly
and in a certain order, going out of order
will doom you to problems post op.
Fran
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ratter
Experienced User , Rather EHEALTHy
Joined: 13 May 2008 Posts: 51
Ratter Posted: 08-28-08 17:14pm
I hear you Fran. I did see the Dr about my
hand and he wanted to give me one
perscription and 3 types of B12 and I
forget the other two B vitamins. The
perscription pills were suppose to do
something to allow the blood to flow
easier or something like that and stop the
hand and fingers from cramping up. He said
the pain people get when this happens is
the blood being cut off causing the
intense pain and then when the fingers or
hand get stretched, that allows the blood
to flow again stopping immediatly the
pain. He said it was definatly Arthritis.
If he is giving vitamin pills than I
figure it couldn't be too bad so I tossed
the perscription into the waste basket and
its gone now. Dr also said I had to keep
taking the perscription pills once
started. I am soon to be 55 Sept 3rd and
feel to young to take a plateful of pills
but might have to soon. My father soon to
be 85 says he has had lots of pain in his
life (and he definatly has), says if you
keep thinking about it, it hurts more, if
you ignore it, it will go away. He also
says that even if someone has constant
pain, that the mind by itself will lessen
the pain in time. I think he may mean you
get use to it. I said to him how can
anyone stop thinking about it when it
keeps happening? He thinks it will go away
by itself in 6 months to a year that the
body has a way to heal itself. He said he
doesn't hate Dr's and they are needed, but
he definatly does not trust Dr's at all
unless its like a broken bone and
something obvious. I'm not saying he is
totaly correct but he does have some
points. Next time I go to Dr I will ask
him for another perscription just to be
sure. All this crap started after I hit
51. Again will get the Dr perscription
again soon and start taking the pills. My
HMO insurance pays for it anyway so it
don't cost anything, nothing to lose. Hope
you are feeling better with your surgery
and I think you said you are in previous
posts. Your in a lot worse shape than I
am, good luck.
PS one other note...not to keep crying
about myself, but my job is cleaning
gutters on houses and most of the jobs are
high 2 story 2.5 story and have various
pitched roofs some I can get on and some I
cannot and some I take a hell of a chance
so I can get done faster than moving the
ladder evrery few feet and climbing back
up and down again and again. The job pays
well but is highly dangerous but in 28
years in business no falls as of yet. I
believe this was the cause or a
contribution to my Arthritis big time.
EVERY Dr I see now tell me I am nuts to
continue cleaning gutters and strongly
suggest I something else including LSI.
Have been getting a couple very slight
momentary dizzy spells but they clear
right up. I have a big following of
customers who count on me and only want me
and no one else. But point being the job
caused my Arthritis I think or the lifting
of heavy ladders etc. Finally done.
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littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 394 Location: ,
Thanks: 18
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My comments on the article in the Boston Globe Posted: 08-28-08 17:38pm
Hello again, looks
like once I start to post I just don't
stop. but I did post early this morning
that I wanted to make some comments on the
article that I posted and linked to that
was on the front page of the Boston Globe
on July 30, 2008.
So here they are.
First of all, to be fair, there will
always be mistakes made with all kinds of
surgery. It's the "nature of the beast"
as we are all human and that includes
surgeons of all kinds. Human beings make
mistakes and there really is no way around
that.
On the other hand, everything possible
needs to be done to try and prevent as
many surgical mistakes as possible, no
matter what kind of surgery is being done.
Excuses are not good enough, nor are they
acceptable.
What is acceptable, is doing everything
humanly possible to prevent as many
surgical errors as humanly possible.
Every type of surgical procedure has its
own set of risks and difficulties, so that
in my opinion, there needs to be many
areas to deal with in preventing surgical
errors and each of them need to be
tailored to the specific type of surgery
as well as surgery in general.
When it comes to spinal surgery, like any
other surgery, it has it's own unique set
of problems and they need to be dealt
with.
Working on bones that encase the nerves of
the spinal cord is very complicated and
those bones, as stated in the article, are
only about an inch in size. Some may be a
little larger and if you are unique in
height as Marie and I are, under 5 feet or
a child, then you are and can be dealing
with vertebrae that are even smaller than
that.
It is also true that various problems in
the spine including osteoperosis can make
even a simple xray more difficult to read
as well as an MRI and visualizing the
vertebrae when the spine is seen with an
open incision in the OR.
Having said that, I don't believe that any
of that is an excuse for a doctor to make
an error in what vertebrae are or are not
fused or anything else that is done on the
vertebrae.
That is what I believe the New England
Baptist Hospital was trying to use and say
as the reason for their high botched error
in spine surgeries and to me, personally,
it is not an excuse.
On the other hand, I can understand how
confusion and errors happen with
complicated spines and spines that do not
present as the typical normal. I have one
of those myself.
Yup, I got one of those so called
"complicated spines" that can have the
vertebrae counted differently depending on
who the radiologist is that reads the
x-ray, CT or MRI or all 3.
I'm just lucky enough to have a spine
surgeon that doesn't go with just the
radiologist's reading, but rather actually
reads the MRI himself. Most times he does
agree with the radiologist and with 3
MRI's I had he agreed, but the last one I
had prior to my last surgery, he did not
agree. The radiologist didn't count the
vertebrae the same way as the prior ones
had done.
He immediately contacted the radiologist
and they went over the MRI report again
and the radiologist then agreed with my
spine surgeon that he just counted
differently and it was impossible for my
L4/L5 vertebrae to be the problem.
To be specific, my S1 is fused to my
sacrum. I was born that way and so are
many people. It doesn't create any
problem for anyone unless you are counting
the vertebrae. If the radiologist starts
to count in one way, he uses that fusion
as the S1 as he should and then counts up
and everything is in the right numbered
order. If the radiologist ignores that
fused area, then the L4/L5 is counted as
S1 and the numbers are all off in the
count.
That is what the last radiologist did with
the last MRI I had done.
So his interpretation had my L3/L4 counted
as L4/L5 and that is where all the problem
was in my spine this time.
Now, in reality, my spine surgeon couldn't
make the mistake of doing the wrong
vertebrae for this reason. He already
knew that he had done a laminotomy on one
side of the L4/L5 vertebrae 2 years ago
and it would be impossible to do a
bilateral one on the same vertebrae and it
was quite clear that it was the vertebrae
above that he was going to work on.
That made the surgery easy, but this
radiologist would be available for
consultation in the OR if needed and he
needed to make sure that they where
counting things the same way.
BUT,, and here's where it get's sticky.
The MRI report had already gone into the
insurance company as L4/L5 and if either
the doctor sent in to approve the surgery
with L3/L4, it would have been denied and
he would have to go through that stupid
appeals process and it would delay my
surgery by about 6 weeks.
I was getting worse by the day and he
didn't want to do that. They had approved
the surgery, so he went with the approval
and knew what he was going to do in the
OR. He also knew that when the bills went
in for the surgery, he would be delayed in
getting paid till the info was
straightened out.
He just got paid this week, for surgery
done on June 27th, because the numbering
had to be straightened out on his end with
the insurance company.
Now there is an example of complicated
spines, in my case not a real serious one,
but if I had not had surgery before, I
could have ended up with surgery on the
wrong level.
There are far worse spine complications to
deal with and that means that there needs
to be a real serious effort around the
world to be very careful how vertebrae are
counted. There should be an automatic
standard and a check for a simple fused
like I have and I'm told about 30-40% of
the population have. That's a lot of
people that have the same thing.
Everything should be all figured out as
carefully as possible long before the
patient is in the OR, not after the fact
as it appears to have been done at the
Baptist and I would assume, many other
hospitals as well.
There should be state of the art x-ray
machines in the OR set up for spine
surgeries and they should be ones that are
digital so that they are the clearest
possible, not the old film versions.
And there should be radiologist available
at all times for an immediate consultation
during that surgery and before any work is
done on any vertebrae.
That just astounds me, that a hospital
that specializes in spine surgery didn't
have that until after the fact.
Once the patient's spine is opened up,
xrays should be taken to be sure that
things match what the ones did that went
into the OR with the doctor.
Yes they do go into the OR with the
doctor, all the MRI, CT and any x-rays
that where taken prior to the surgery and
they are all lined up for the doctor to
see before surgery actually starts and
during the surgery as well as well as all
the ones that are and should be taken
during the surgery and before the incision
is closed.
How do I know this? Because of what I saw
with my own eyes before both of my spine
surgeries.
In the OR, before the "lights out time",
my surgeon was in the OR looking at all
the films of my spine and there was a
weird looking machine in the OR and
someone I hadn't met yet.
Being the "queen of nosey" as my kids call
me to this day, I asked the doctor what he
was doing, what the machine was, and who
was this new person and hadn't met yet
doing in the OR with us.
My surgeon just said to the effect of, "I
keep telling you I'm not perfect, but I
try to be as close to perfect as I can be.
I'm doing a last minute review of that
nasty looking vertebrae I've got to fix.
I have this thing about liking to be sure
I'm dicing up the right vertebrae. that's
an x-ray machine, one of those new digital
ones, and this is Dr. ##. He's going to
help me be sure I don't screw up, so if I
do, it's all his fault not mine, and
here's your favorite xray tech from the
office. She's going to make you glow in
the dark while she takes x-rays of that
nasty vertebrae and spine of yours before
I dice, during the dicing and after, and
the doc and I are going to make sure I'm
doing the right one. Now, can you please
SHUT UP long enough for me to look at
these pics please. Hey Joe, turn on the
switch and shut up Mrs. nosey."
next thing I knew I was waking up in the
recovery room and crying because all my
pain was gone and I couldn't believe it.
That's the perfect set up to do everything
humanly possible to not make a mistake in
surgery. It won't guarantee it won't
happen, but it sure will make it far more
difficult. And by the way, this was not
going on in a major Boston hospital or any
huge well known big hospital, but rather
in a small community hospital.
So obviously it can be done anywhere and
should be.
Personally, I have to say that I never
thought about the wrong vertebrae being
operated on, fused or anything, until my
first surgery and my doctor told me what
he did in the OR.
but I sure didn't expect to read about it
at one of the leading spine surgery
hospitals in the country, let alone in my
back yard.
As for Lahey Clinic, well their refusal to
talk to reporters or anything doesn't
surprise me. I wouldn't take my cat to
Lahey Clinic for any orthopedic surgery or
treatment before I read this article and I
do consider spinal surgery as both
orthopedic and neurosurgical.
An interesting side note to Lahey clinic
and New England Baptist Hospital.
In terms of the top to hospitals with the
most botched spinal surgeries.
All of the spinal surgeons at New England
Baptist are orthopedic spinal surgeons.
All of the spine surgeons and Lahey Clinic
are neurosurgeons.
So we can't say that one kind is better
than the other.
It still comes down to the skills of the
surgeons and the hospitals that they do
their surgeries in.
OK, I've talked enough here, time for
someone else to speak up.
Fran
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djohn
New User, Becoming EHEALTHy
Joined: 27 Aug 2008 Posts: 11
Spinal Surgery Posted: 08-28-08 21:11pm
Fran,
Thanks for the great information and
details from your experiences. Spinal
surgery is quite an adventure! I think
one of my biggest fears is coming out of
the surgery worse off than what I am now.
I don't really have any muscle
restriction, but the nerve pain down the
left leg can get pretty bad at times. I
find that the nerve pain seems to be
pretty draining on the entire body in
terms of energy levels. Sometimes the
day after I work out at the gym, my body
feels like I've been run over by a truck!
I'm a big golfer and I can get through a
round okay with some motrin, so my fear is
coming out of surgery and never being able
to play again!
But with the epidurals not working
effectively any longer, I think the
surgery is the best option I have. Just
need to find the right surgeon.
Thanks for the referral with your surgeon.
I'll schedule a consultation and keep
everyone posted on how things go.
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littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 394 Location: ,
Thanks: 18
Thanked:0
Posted: 08-29-08 00:24am
John, with my first surgery, I didn't
think I had any muscle restriction either.
Post op I felt pretty good and when I
finally was able to start PT, 3 weeks post
op I thought it was kind of a waste of my
time and money, but, if the doctor said I
needed to go, fine, he knew more than me.
Oh did I get a shock, when I went in for
my PT evaluation. Everything seemed fine
until the PT asked me to stand on my right
leg only. That was the side that was
affected. Oops, I almost fell over. Then
I was asked to stand on my left leg and
moe my right leg out to the side. Oops,
leg didn't go very far and it felt like
lead, dead weight and I was just bowled
over with shock.
That's called muscle weakness and if it is
not worked on post op, you will stay that
way for ever. Last time I ever thought I
didn't need PT when the doctor said I did,
and the last time I ever questioned how
great I felt.
My biggest fear was the post op and what
would go wrong too, John. On the other
hand, I couldn't go on the way I was
either and I wanted my life back. My
choices where living in hell with the pain
or trying to get my life back to at least
some level of normal.
I was a sudden onset of symptoms the
beginning of Feb. 2006 and by June I could
barely move. The ESI didn't help me at
all and I had so little ability to move my
right leg because of the pain, that PT
wouldn't help either.
In the scheme of spinal surgeries,
laminotomies are on the low level of
severity and complications, but that is
not to say that it isn't major spinal
surgery and there are risks involved.
But in the end, I made the decision to get
this over with and get moving on to the
next chapter of my life without the pain
or as little of it as possible. I decided
to refuse to think about the negatives
that could happen and only think about the
positive.
Before I was wheeled into the the OR
itself from the pre-OR room, I told my
spine surgeon "to hurry up and get the
show on the road, time's a wasting and
I've got a lot of living to do without
pain." He looked at me like I was nuts
and said "you heard the lady, lets get a
move on it, NOW."
Fran
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valrossie
New User, Becoming EHEALTHy
Joined: 29 Aug 2008 Posts: 1
Back Pain Posted: 08-29-08 05:55am
Low back pain is a common musculoskeletal
disorder causing back pain in the lumbar
vertebrae. It can be either acute,
subacute or chronic in its clinical
presentation. Typically, the symptoms of
low back pain do show significant
improvement within two to three months
from its onset.
-------------------------
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littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 394 Location: ,
Thanks: 18
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Posted: 08-29-08 08:33am
Valrossie,
I'm not sure what the purpose of your post
is, but those of us who are and have
posted on this thread are not suffering
from a simple strained back that would be
caused from simple over use or poor body
mechanics. Nor will we show any kind of
significant improvement within a short
period of time.
If you had bothered to read any of the
many, many posts over the 63 pages of this
thread, you would have seen and read that
we have been diagnosed with serious spinal
disorders that require serious, big time
medical and/or surgical treatment.
Posting what you did was an waste of our
time to read, and is extremely misleading
information.
I would advise anyone reading your post to
fully ignore it and seek immediate medical
attention for any kind of low back pain
and not ignore it and wait a period of 1-3
months to see if it improves.
Delaying seeking medical attention and
waiting can cause serious complications to
spinal issues that should be addressed
when they occur.