Re: New to forum, old to pain Posted: 04-22-08 00:05am
SciaticAl
wrote:
Hi all,
Read the first 7 pages, skipped to pg 52
due to time constraints. I am Alan, and I
guess I am a Spiney. 11 years ago,
herniated L4-L5. Pain at first, but it
subsided. Doc said try your best to live
with it. Well, I have led a fairly normal
life. Work, kids, all the good and bad
this world provides. Then... for some
reason, 3 months ago.... OUCH!. Now I
struggle getting out of bed. Standing in
the shower. Sitting for long periods.
Chiropractor did his best, sent me for an
MRI. L4-L5 herniated to the left, with a
fragment. That would explain the stabbing
pain in my calf, the invisible vise around
my left ankle, and the tingling in my
toes. L5-S1 also herniated to center,
causing slight issues with bowel
movements. Pain issues, that is.
I am 43, used to be strong as a bull, now
I tear up when I feel a sneeze coming on.
My three jobs keep me moving. I thank the
Good Lord I can still climb ladders,
albeit through clenched teeth and a
painted on smile. The stretching and
exertion seems to help. My second job
involves a lot of walking, which seems
also to help. My third job is a bit more
sedentary, must take frequent breaks.
I am trying to get a neuro appt, could
take two months. Until then, there's
laughter, a supportive family, and pain
meds.
Thanks for all the great info here. You
all have been through a lot, and are a
collective inspiration.
Alan
Hello Alan and welcome to this forum.
Having read your post, I see that you say
Neuro appt. I hope you mean a
neurosurgeon that specializes is spines
and not a neurologist, as a neurologist is
not the type of doctor you need to see.
You could also use an orthopedic surgeon
that specializes in spines.
It's not surprising that your prior
herniated disc subsided on it's own. Most
do with some time and physical therapy.
Sometimes an epidural injection can also
help relieve the pain and allow you to to
do physical therapy and give you the time
for the disc to heal on it's own.
I, personally, would not go with the
diagnosis from a chiropractor but wait
until my MRI had been seen and read by an
MD that specializes in spines. I know too
many people who have had MRI's done my
order of a chiropractor and diagnosed by
them and then gone to a spine specialist
to have a totally different and correct
diagnosis made.
That being said, once you have a diagnosis
from a spine specialist, you will have a
better idea of what your situation is and
what the doctor suggests for treatment.
One suggestion I do have, though, is that
if surgery is recommended by the doctor,
that you get several other opinions before
going ahead with surgery. I would suggest
a minimum of 1 more but I would get
several, before I made any decision on
surgery.
I would also be very, very careful about a
trip to one of the laser facilities for
treatment as well. Upfront outlay of
money that they require is a huge
investment in a medical treatment that is
still very much in question with the
medical community.
First get your diagnosis from a spine
specialist and then you will have an idea
of where you are headed.
Good luck and let us know what the doctor
says.
Fran
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littleonefb
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Re: L4-5 DDD Posted: 04-22-08 00:14am
Mel11
wrote:
Hello everyone;
I am impressed with Fran’s knowledge of
various spiny’s medical issues, I bet
she know more than some doctors. Before
seeing my Neuro last Wednesday I had
focused my attention on Bonati and
Microspine. I talked to United Health, my
insurance; they said Microspine is
in-network Bonati is not. Microspine and
Bonati are about 10 hrs drive from
Greenville, SC. To my amazement I found
about Foothills Pain Management Center
which is 1 hr from me in Seneca, SC.
According to Foothills, they are not
in-network with UHC and their fees are not
very different from Bonati or LSI. They
started their practice in July 2007 and
their Dr. McMillan do about 3 laser
procedures on average every week.
Microspine advised that you come in for
four days, three days for tests and the
surgery is on the fourth day.
When I met my Neuro last Wednesday I was
surprised twice. One: he did not know
about Bonati, LSI, or Microspine. Two: He
heard of Foothills and Dr. McMillan and he
said their laser procedure is an option. I
was shocked; I thought he would say these
guys are snake oil salesmen. He also said
since PM clinic could not diagnose the
source of pain and since my pain is only
in my lower back it will hard to pin down
what to do. I will do a new MRI on Monday,
he will ask for discogram after seeing the
MRI. He said, there are discograms now
where they inject and the patient would
stand to feel the pain, if any.
Mel
Hi Mel,
Thank you very much for your compliment on
my knowledge of spinal iissues.
I have spent most of my life working in
hospitals, mostly with children, but I do
have contacts that I can talk with when
needed.
Surprisingly though, that was not much of
a help to me overall, and my knowledge
comes from experience, common sense and
studying of anatomy and physiology in
college.
I will agree, though, that in my travels
with "second opinions" I did know more
than some of the spine surgeons that I did
see in consult. On the other hand, my
husband with no medical training or
knowledge also knew more than they did;
and some of these doctors where supposed
to be some of the best in the country and
where from some of the most prestigious
hospitals in Boston MA.
I don't know anything about the particular
spine center that you mentioned in your
post, but have seen them mentioned in some
other spine sites. nothing bad, nothing
really good, just mentioned.
Good luck with your discogram
Fran
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littleonefb
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Mare Posted: 04-22-08 00:50am
Mare,
I don't know where to begin to respond to
your post to me. I just baffled by what
you said and just really don't understand,
what you said just doesn't make any sense
to me at all and I can't' understand how
you can think they way you do about LSI.
I don't understand how you can still
praise the facility after your experience.
First they said that you where a candidate
for their surgery, yet there is no way
they could do a laminotomy or anything
else on you. there isn't any vertebrae
left to do that on and they where aware of
that before you got there from your
MRI's.
Yet they still had you come down to their
facility.
Then they turn around and give you these
tests that made you worse and told you
that they couldn't do the surgery on you,
it was too risky to you spine.
Then you contact them that you are worse
and they want you to come in at further
expense to do more tests, and schedule you
for the same surgery that the doctor had
already told you they couldn't do a few
months earlier.
Then you where in more pain and told for a
second time that you couldn't have surgery
done and they offered you a spinal ESI,
which you could have gotten back in
Canada.
And all of that doesn't include the other
problems you had when you first got to LSI
and they wanted to pawn you off to some
other doctor, if they could find one that
would agree to it and do the nerve block.
at further cost to you outside LSI. When
you sort of held off on it, they turned
around and told you that they had a doctor
coming in the next day that could do it.
Talk about
1. one hand not knowing what the other is
doing from the moment you arrived at LSI
and all the way through the entire
winter.
2. Sounds like they where far more
interested in just getting money out of
you even though it was obvious that you
where not a candidate for further surgery
with them.
You state the following "I might add, if
they had been able to do the surgery, they
were not going to charge me anything
additional."
May I ask what additional means? and why
do you think this would have been a good
deal?
They wasted your time and money already,
got your hopes up and caused you further
physical pain more than once and for what?
They knew you had a 3 level laminectomy
and there is no way they could have done
any further surgery on that.
Yet you still are praising them for the
fact they wouldn't charge you any further
amount of money and also that they
refunded you $1,000 for your trip.
I'm sorry if I sound harsh, Mare, but that
isn't anything to praise LSI for. This
whole experience must have cost you at
least $15-20,000. One huge chunk of money
and well over priced for what you had
done, but many thousands of dollars.
You may have seen lots and lots of people
that where quite pleased with their
surgeries, how long that lasts we don't
know, but I'll bet money on it that it
won't be long, but that has nothing to do
with you.
In my eyes, LSI treated you horribly and
if it where me, I would be all over them
about it and really going after them for
all of my money refunded to me.
The way I see it they outright lied to you
about being a candidate for surgery, and
they did that first to get you there, and
then to get you back a second time after
they caused further pain.
I for one would not be letting them get
away with the way you where treated and I
would be screaming about it to both LSI
and on the Net.
Unfortunately you are far from the only
one that has had this kind of treatment.
As for nothing else able to be done for
you. that is what one surgeon said to you
and if it where me, i would be getting
more opinions and doing everything I could
to find a way to relieve my pain. If that
meant more than one operation to do it,
that is what I would do.
I wish you the best, and hope that you can
find some relief from your pain.
Fran
|
Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 218 Location: Ohio
Thanks again Algosdoc Posted: 04-22-08 08:20am
Thanks for the clarity of your
explanations of surgical procedures and
methods of approach.
Marie B.
|
Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 218 Location: Ohio
Don't Be Offended Posted: 04-22-08 08:39am
Don't be offended by anyone's words, Mare,
but I don't understand your defense of LSI
either.
LSI is a business. That's very clear.
They have advertisements on every health
and spinal website. That must cost a
pretty penny. It also might be where a
lot of money must go to encourage patients
to view their magnificent looking facility
and website.
If someone goes there and has successful
surgery, meaning if they come home and
never have pain, that is great. If the
situation you find yourself in now is not
that great, at least you have put it out
there for people to know and read about
for thrm to recognize the inability of LSI
to free you from your pain. It also helps
give balance to the picture of Laser
Surgery. The decision others have to
make in regard to "where should they have
surgery done, if surgery is required",
needs that balance of reporting.
Thanks Mare for sharing your experiences
with us. I do hope there is light for you
in the future to help your pain.
Marie B.
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RichT
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Posted: 04-23-08 20:08pm
Hello Everyone,
Sorry to have been "absent". Gardening
and trying to deal with contractors
GRRRRRRrrrr, have been taking up my time.
Thanks everyone for keeping this thread on
a roll.
Mare, I too want to thank you for sharing
your experiences at LSI and also the
"background" info regarding your back
situation and the advice you received from
"traditional" spine surgeons. You have
provided much "food for thought" for all
of us spineys on this thread, and also for
all who just "listen in".
We continually learn from each other on
this forum on the many threads regarding
back issues.
My PM doc has done it again with my last
epidural injection. He is amazing in
being able to reduce my pain so I can keep
on rolling.
Take care all. I hope that in a few weeks
I can be somewhat more active here.
RichT
|
jimare
New User, Becoming EHEALTHy
Joined: 01 Oct 2007 Posts: 43 Location: ,
Offended Posted: 04-29-08 21:57pm
Marie and Fran
I am not offended...I guess I am not the
"fighter" that Fran apparently is. I
think I already related that I went to 3
specialists within a 2-1/2 hour drive of
where we live and I got three different
opinions of what should be done...then
ended up driving 8 hours each way to see
the Dr. in Toronto who came recommended
as being one of the best in Ontario. Ended
up with the hip surgery that he was
positive would fix the problem, and turned
out not to be the case(another unnecessary
surgery) and after going back and forth
over a period of 4 years I ended up having
the 2nd back surgery. Another failure.
To see a specialist here in Canada takes
1/2 a year with another 1/2 year at least
until the surgery takes place. I've seen
people wait 2 to 3 years for surgery while
suffering terrible. It is not as simple
as Fran thinks to keep getting other
opinions. Four referrals by my GP is
probably my limit. She has gone along
with all my suggestions including LSI, but
I doubt she would agree to any more. She
is most sympathetic, but she has noted
that each time I have had surgery I have
become worse so I think there comes a time
when we have to say "enough". As far as
Epidural Injections...there again...I
would have to travel 16 hours to have it
and it didn't do all that much to change
my situation. Slightly, but not much.
Fran you seem to have a real hate on for
LSI...dismissing all the opinions of
people who said they would willingly pay
twice the price for the relief they rec'd.
Granted, there are some like myself who
paid a high price for an unhappy
ending..and perhaps if I lived in the U.S.
I would "be all over them"; maybe even
resorting to "Calling Lee Free" to fight
them on it. I can only speak for those I
know...like my sister who would gladly pay
the price again. Just to be able to walk
and stand without pain and to garden...she
couldn't be happier, and she paid a good
deal of the charges by LSI for me because
she was so thrilled with her results.
What can I say?
|
RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 819
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Posted: 04-30-08 00:58am
Hello Mare,
You have spoken well Mare and you have
done so in a polite proper manner. I
commend you for helping us all to better
understand what you have all been
through.
I was most saddened when your surgery at
LSI did not reduce your pain for we all
know many have been helped at LSI. Your
unfortunate experiences with "traditional"
spine surgery reminds us that that
approach also has its failings, many
failings.
I hope and pray that somewhere there is a
doctor who is able to help reduce your
pain, and I don't mean by pain medication
for that only dulls the mind into thinking
things are better.
MANY gentle HUGS!!!!
RichT
|
jimare
New User, Becoming EHEALTHy
Joined: 01 Oct 2007 Posts: 43 Location: ,
Hugs Posted: 04-30-08 21:27pm
RichT
Thanks for your kind words...you are a
good moderator...encouraging all of us as
we share our experiences...be they
positive or disappointing. I really
shouldn't complain because I have a great
supportive husband, and many good friends
who are riding the same train as I am. We
enjoy a lot of laughter and a lot of fun
in spite of our various "infirmities"!
These Golden Years eh?
Hugs are always welcome; never have too
many of those.
Mare
|
ratter
New User, Becoming EHEALTHy
Joined: 13 May 2008 Posts: 16
LSI Posted: 05-13-08 16:44pm
I had all pain removed by LSI and its been
almost 2 years in July. C6 C7 lamin. and
form. and Ablation. Words are hard to say
let alone spell. It was a success for me
so far. Operation was done by Dr St Louis
and re-hab by Dr Kellog. I am back to
work. Left arm is weak but it was weak
before the operation. The left side of my
left hand (pinky area) is numb and will
stay that way but feeling returned to my
other fingers (ring and middle). As to
numbness....who cares so long as the pain
is gone. The place was packed with people
believe it or not. I give the place a huge
thumbs up. It was $30,000 but if you hurt
bad enough you will sell your house to get
relief. I took the atitude of either it
will work or it won't but at least I
tried. It worked. Insurance sent me $800
back (HMO) The HMO Dr told me to live with
the pain its gonna get worse so thats when
I found LSI and did it. After the surgery
at LSI, I ran into the HMO Orth. Dr
because my son hurt his finger at school
and he said "Oh, how did the surgey go?"
and I said great all the pain is gone and
he replied....your not out of the woods
yet...your gonna be hurting down the
road......my reply was yeah, but at least
I know LSI might be able to fix it. I then
saw same Dr a few weeks later when he
checked my sons finger and this time he
was a lot nicer. My opinion on LSI is if
they cannot remove all the pain, they can
remove most of it, in talking to people
whe went there. I think in a worse case
scenario, they can kill the nerve causing
the pain but I am no Dr, and only guessing
that. If you go on their referral list,
you will get constant calls every week so
you might want to think twice about that
referral list.
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RichT
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Posted: 05-13-08 19:10pm
Hello Ratter,
WELCOME to this forum and especially to
this thread!!!
THANKS MUCH for sharing your wonderful
very positive experience at LSI.
FANTASTIC that your pain is now gone. I
hope that with time the numbness you feel
will also be gone. It takes a LONG time
for nerves to "reconnect".
Your recent experience at your ortho doc
is typical of the "traditional" doctors.
Thanks also for sharing those two
experiences.
Ratter, you have added greatly to this
thread. Each experience whether by laser
spine surgery or by traditional means
helps each of us spineys.
Have a GREAT Day!!!!
RichT
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RichT
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Posted: 05-13-08 19:26pm
Hello Mare,
Thank you very much for your kind words to
me.
You are most blessed to have a husband and
good friends who support you AND bring out
the laugther that you share together.
I had to chuckle regarding the "Golden
Years". Now that I am about there, makes
me wonder about the person who coined the
phrasel. lol Oh yes, I sure the heck
ain't 25 any more, however, I still
cherish the good days and times.
Mare, do read Ratter's post and experience
at LSI. Though the results of the surgery
there for you was disappointing you can at
least rest assured that others have been
helped at LSI.
Me - I'm back out gardening today after
the past several very rainy days. Though
I sometimes "push" the ole body a bit,
some rest in my recliner with the heating
pad and a glass of wine makes everything
better.
Stay in touch as I hope Ratter will too.
RichT
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jimare
New User, Becoming EHEALTHy
Joined: 01 Oct 2007 Posts: 43 Location: ,
Re LSI Posted: 05-14-08 15:45pm
Ratter I am very glad to hear your
positive post. I am sure if I hadn't had
so much bone removed during my traditional
surgery I would have been helped by
LSI...under the circumstances they could
remove no further bone to decompress the
discs that were causing my back and leg
problems. My complaint was that Dr. Perry
should not have said "after viewing your
MRI we are convinced we can remove your
pain with a laminotomy/foraminotomy.
Right from the get-go they could see that
I had several vertebrae taken out and the
spine would be comprimised. Anyhow I
still would recommend LSI over open back
surgery any day, for those without a lot
of complications in their spine. My
sister had great success in her surgery in
Jan. 07 (no previous surgery), and a good
friend had her lam/foram done in Mar this
year and is ecstatic...Those I have kept
in touch with generally have done very
well, EXCEPT those who have had a lot of
previous surgery. There must be something
there. I feel they did the thermal
ablation on me knowing full well it would
do nothing for my compressed discs which
is where my pain was. I have stenosis and
DDD in 7 discs...a lot of problems. My
last surgery was in 2006 and I was only
made worse, which is what happened to me
from the thermal ablation on my facets. I
have written them a letter explaining my
feelings...not rudely, and I ended it by
saying I feel they owe me a partial
refund, if not a whole refund because of
what I went through there. Paying all
that money to end up in worse
circumstances is quite galling. Anyhow, I
had nothing to lose.
Mare
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ratter
New User, Becoming EHEALTHy
Joined: 13 May 2008 Posts: 16
LSI Posted: 05-14-08 19:18pm
Hi, I would be mad too if I shelled out
30,000 and it didn't help. But at least
you tried. You should stay in contact with
them in case they have future
breakthroughs. My post was directed not at
you but someone else. I have talked to
many many folks and 99 percent had
positive response and a couple did say it
was of no help unfortunatly. I ask the
people who call me for a referal if they
talked to anyone else and most say they
have asked others and got positive
results. So far so good for me. My
shoulder or back (whatever you want to
call it) does get stiff once in awhile but
any kind of exercise immediatly loosens it
up. I don't ever want to go through it
again but at least the place is there just
in case. I have a new unrelated problem in
that my left hand and fingers cramp up and
start to hurt but when I free them up the
minor pain goes away instantly and hand
and fingers are free again. I am 54 years
old and a Dr up here said it almost
certainly is arthritis unrelated to my
operation. I asked LSI also first and they
said it was unrelated but urged me to see
a Dr which I have not other than telling
him what I said. IThis getting old sucks.
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jimare
New User, Becoming EHEALTHy
Joined: 01 Oct 2007 Posts: 43 Location: ,
LSI Posted: 05-14-08 21:25pm
Yes..getting old is not for sissies. I am
69 (don't know how that happened) and was
in great health 'till I hit 60, and since
then I guess I fell apart and have had
about 6 surgeries...yikes! If I ever see
the inside of a hospital again it will be
too soon. Before leaving FL, LSI asked me
to come in and try a steroid epidural shot
in the L3/4 which was the worst area and I
am getting back to where I was before
having any surgery which I am thankful for
because I spent the whole time I was in FL
absolutely sick from pain and misery. Now
I am able to make meals again (sitting
down every so often) and go outside and
use my weeder in the flower garden, and
walk down to the lake out front and sit
and watch the sunsets. For a while there
I couldn't even sit comfortably...so I am
thankful for small mercies. It is a far
cry from where I was but compared to a lot
of others I am well off.
Oh yes..I'd better set the record
straight...when they decided not to do the
lam/foram, and did the facets instead, I
was refunded $10,000.
Mare
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algosdoc
Experienced User , Rather EHEALTHy
Joined: 23 Mar 2004 Posts: 186
Posted: 05-15-08 22:13pm
Results from a single spine center,
whether it be LSI, Microspine, Bonati, etc
are not released to the public since these
centers 1. do not track their outcomes
over time 2. give patients a referral
list of those known to have positive
outcomes, thereby invoking a very uneven
playing field 3. do not use standard
measurements of functional assessment
before and after surgery. How many that
have had surgery from these centers have
had an Oswestry or Roland Morris test
before and after? How many have had a
SF36 pain assessment instead of a simple
"think of a number between one and ten"?
How many have had the modified MacNab
outcome assessment?
My point is, the lack of data available is
not equivalent to a center having good
outcomes. Talking to a few people about
their outcomes is effectively meaningless.
Talking to those on a referral list is
even more ludicrous.
If you elect to go to an unorthodox
spine center, then ask the appropriate
questions:
1. In what peer reviewed medical journal
are your outcomes published?
2. What standard testing before and after,
are used to assess outcomes?
Failure to acquire this information is
permitting centers to engage in
experimentation on you while you mortgage
your house for them to do so.
Be a smart patient in your pursuit of
health care, and go into surgery armed
with published outcome information about
the techniques of non-standard surgeries.
If you do not have this information, you
might as well take your $30,000 and go to
Vegas. At least in Vegas, your outcome
odds are statistically known.
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jimare
New User, Becoming EHEALTHy
Joined: 01 Oct 2007 Posts: 43 Location: ,
orthodox vs. unorthodox Posted: 05-16-08 16:38pm
Algosdoc
You would know a lot more about this than
I, but should this rational not also apply
to hospitals or centers where the
"accepted" methods of spine surgery are
performed? Are there medical journals
that list the outcomes of their surgeries.
I have had two open back surgeries, plus
a lump removed from my back, and nobody
ever checked to see what my outcome was.
I never thought to ask for statistics on
the outcomes of their standard open-back
methods when I signed my name on the
dotted line in hopes that the outcome
would free me from the tortuous life I was
enduring. As it was...my laminectomy was
done under emergency conditions and I
would have gladly agreed to have my leg
amputed on the spot to get rid of the
pain. I just assumed the surgeon knew
what he was doing. Would I have changed my
mind about surgery if I'd had the data on
successful outcomes from open-back spine
surgery? Not likely under those
circumstances...On any studies I have seen
comparing laser spine surgery to open back
surgery...the results were not even close.
Also, the risks were way higher with open
back.
Those tests you mentioned..Oswestry,
Roland Morris. SF36...I never heard the
terms, and would have most assuredly
appreciated something more effective than
the number between one and ten.
Mare
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algosdoc
Experienced User , Rather EHEALTHy
Joined: 23 Mar 2004 Posts: 186
Posted: 05-16-08 18:59pm
The risks between open and endoscopic or
laser surgery depend on the technique
being employed. For instance, laser disc
decompression via a fiber through a needle
has the risk of penetration of anterior
wall of the disc and the iliac arteries,
causing an instantaneous life threatening
bleed. However, the laser is typically
not brought into the epidural space, so
the risk of peridural fibrosis (scar
tissue) in the spinal canal is very small.
Endoscopic techniques use a larger scope,
usually between 4 and 8mm diameter. These
can do some damage. Also, the use of a
laser in the neuroforamen to open up
foraminal stenosis can cause nerve damage
due to the compression waves from the
laser reverberating off the bony wall and
onto the nerve. Using a reamer or other
mechanical device through the endoscope is
no less risky than doing the same via open
surgical techniques. So just as SI
Hiakawa once said: "Cow one does not
equal cow two does not equal cow three".
Hospitals typically do not permit laser
surgery or endoscopic surgery so they do
not have to report on cowboy or
investigational techniques. There are
large surveys (usually not reported to the
public but by which spine surgeons gauge
themselves) that keep the surgeons in
line. Also peer review is a process that
dings surgeons whose practices are
outliers.... This is not true when the
surgeon owns the surgery center.
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jimare
New User, Becoming EHEALTHy
Joined: 01 Oct 2007 Posts: 43 Location: ,
new option to treat chronic back problems Posted: 05-16-08 23:22pm
Algosdoc
Wouldn't mind hearing your thoughts on the
following:
The Total Facet Arthroplasty System™
(TFAS™) is a non-fusion spinal implant
indicated for treatment of patients with
moderate to severe spinal stenosis.
TFAS™ replaces the diseased facets (and
lamina, if necessary, to attain adequate
decompression) following surgical removal.
TFAS™ offers the surgeon new options for
treating spinal stenosis, enabling a more
comprehensive decompression via complete
removal of the facets. TFAS™ also offers
an alternative to rigid spinal fusion
fixation enabling intervertebral motion
and restoration of stability and sagittal
balance to the spine. TFAS™ eliminates
the need for painful bone graft harvest
from the patient's hip, typically required
with fusion procedures.
I think it is still in the experimental
stage, but appears to be showing positive
results.
|
algosdoc
Experienced User , Rather EHEALTHy
Joined: 23 Mar 2004 Posts: 186
Posted: 05-17-08 06:34am
This system has been in development for
many years and does indeed represent a
major advance in posterior column disease.
I anxiously await the clinical trials as
this system may solve some of the many
problems that occur due to facet
arthritis.
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