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My Grandchild Can't Walk

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bellepepper

New User, Becoming EHEALTHy
Joined: 04 Sep 2003
Posts: 5
My Grandchild Can't Walk
Posted: 09-04-03 00:20am

My granddaughter fell down the stairs a month ago. After 3 days she began to drag her right leg. We spent one week at houston's texas children's hospital with a gillion tests, multimple mris, spinal taps, x-rays, and cat scans. Today she can't walk, tries, but crosses her legs, one over the other, and turns in her feet, pigeon toed, and they still can't tell us what is wrong. She is now fitted with leg braces her right thumb and forefinger curls as though she has had a stroke. We are desparate for information. If one of the best children's hosptials in the country can't help us, then who can? She is only 3 years old and can't tell us what hurts and although she doesn't seem to be in pain, she can't stand and walk. Anyone who can help us please hear our plea. She had had all of the tests for ms, md, etc. And they are negative. We need help.
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Georgie

Experienced User , Rather EHEALTHy
Joined: 22 Jul 2003
Posts: 58

Posted: 09-04-03 09:08am

Hello bellepepper, my heart goes out to you and your familly in such a difficult heart breaking time in your life. Crying
or Very sad it brought tears to my eyes to read your plea, I felt I had to search you out some information since you mentioned that it was like she had a stroke. Please check out this site www.Sickkids.On.Ca it has a multitude of child illness informations. (the site is sickkids with lower case letters but for some reason this program keeps putting a capital s on the site.) my prayers are with you all.
In toddlers, ear infections can spread to a vein in the skull, causing a stroke. And in school-age kids, hockey injuries and some diseases are sometimes causes.
When a child does have a stroke, the initial symptoms can be subtle and the condition difficult to diagnose
children aren't as hard-wired in their neural connections as adults are, which means they have the potential for better recovery
stroke is usually associated with diseases or problems that increase the tendency of the blood to form clots. In some children, blood clotting disorders are inherited (i.E. Are genetic). For example, children with sickle-cell anemia (an inherited blood disorder) are at increased risk of stroke.
In other cases, the blood clotting disorder may be associated with another disease or medical treatment the child is receiving. For example, some congenital heart defects increase the tendency of the blood to form clots in the chambers of the heart. These clots can enter the blood stream and travel to the brain, where they cause a stroke. In other cases, heart surgery or procedures may trigger the formation of clots
weakness - sudden weakness, numbness or tingling in the face, arm or leg.
Trouble speaking - sudden temporary loss of speech or trouble understanding speech.
Vision problems - sudden loss of vision, particularly in one eye, or double vision.
Headache - sudden severe and unusual headache.
Dizziness - sudden loss of balance, especially with any of the above signs.
If a child experiences one or more of these warning signs, seek immediate medical attention. Unfortunately, stroke is the last thing many parents and doctors think about when a child has these warning signs.
There is some evidence that some children may recovery better from stroke than adults. Recovery is better if the child received immediate medical attention and has access to a good rehabilitation program. Doctors suspect that a child’s brain is more flexible than an adult’s. As a result, other parts of a child's brain may take over the function previously controlled by a damaged area.
When the canadian paediatric stroke registry followed 150 children who had stroke for an average of 1.6 years they found:
• only 8% of the children died (half of the deaths were due to the underlying disease, such as cancer)
• over half (54%) had no apparent lasting effects from their illness
• 38% of children were left with a neurological deficit. In 80% of the cases, the problem was in moving or making movements (motor deficit). Only small proportions of the children were left with cognitive problems, developmental delays, or trouble speaking or understanding speech.
The registry also showed that 35% of the children had been given "clot-busting" drugs. Although considered experimental, none of the children treated with the "clot busters" died or had complications because of their treatment.

Research
the canadian paediatric ischemic stroke registry, based at mcmaster university (hamilton, ontario) has been established to collect information on how and why strokes occur in children. The only registry of its kind in the world, it is giving doctors and parents a better idea of how to prevent, treat and recover from paediatric stroke. The heart and stroke foundation supports ground-breaking research on paediatric stroke, heart conditions that can trigger stroke and blood clotting disorders in children.

Georgie Wink
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bellepepper

New User, Becoming EHEALTHy
Joined: 04 Sep 2003
Posts: 5

Posted: 09-05-03 23:06pm

Thank you so much, georgie, for your reply. The possiblilty of a stroke has not been mentioned by any of the doctors and we did not ask about it. I did not know that children had strokes and although cat scans and mri tests were done, they told us only that she had some fluid on her brain but that it looked as though it had been there since birth. Thus they did not believe that it was a problem. We will approach them with the information that you have given us. I have spent a good deal of time looking through the website that you suggested. Thank you for your concern and for bringing new insight into our dilemma. Perhaps this is our answer.
Bellepepper
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