Today is the anniversary of the first day I began twitching. It started very light in my left and right temples and then moved to my face and head and then my kneck. At the time I was two months pregnant so no medication could be given to me that would not harm the baby, so I waited. By the end of the pregnancy the twitching had moved moved from my head and temples to my legs, arms, butt and feet especially my toes. After the pregnancy I went for an EEG and it was normal the doctors tried putting me on PAXIL, FLEXERIL, MAGNESIUM, DYLANTIN and SEROQUEL but none of these medicines worked they only supressed the twitching. Most of them made me incompetent and unable to talk or function right and with four young children at home this was not the way for me to go. After the medical tests which included blood tests, EEGs and other Neuro-tests by my neurologists I was found to have something called Benign-fasciculation Syndrome. So I cut out caffeine, sugars, salts and went on a health track which allowed me to lose weight and be able to do more things with my life but the twitching became worse. About six months ago the twitching started to be accompanied by severe and sharp pains in my hands, legs and arms. The doctor put me on Naprosyn and this did not help I am still in pain and two years later still twitching all over, AND I MEAN ALL OVER!! They said that I was okay that the disorder was benign. I trusted them and now they are saying that I have fibromyalgia . None of this makes sense because none of the symptoms go together. If this is the case could it have been found out sooner and what can I do? I am so frustrated right now because it has now been two years, my muscles are weak at times and the pain is so intense at times I can't walk or even move my arms. This does not sound like something that I don't need to worry about. They still look at me with their fake smiles and tell me that it's going to be okay. I told them that ever since my last Epidural that I cannot bend back without a sharp pinching in my spine and sometimes I lose feeling in my legs for short periods of time. This is not something I was born with so I know that this is not natural. It would really help if someone could point me into the right direction. I am totally frustrated here and I am not sure who to turn to anymore. I think the doctors are happy with just medicating me instead of finding out the real underlying cause of my problem.

Thanks in Advance.

Tika