I don't know if this is the right place to post but thought I would start here. I am desperate to hear from someone who has experienced this or who has knowledge of these symptoms and can send me in the right direction towards finding help for some relief.
About 2 years ago I started suffering from what I thought was RLS. It has slowly progressed from a little restlessness in my calves to restlessness, pain, twitching, lightening like cramps from my feet all the way to my arms. This is affecting my whole life as I am getting no more that 3 hours of sleep a night. I have tried medications for RLS and either they don't help my symptoms and make my whole body feel like it's on fire or they make me extremly ill and I spend the next 4 or 5 hours vomiting. I have tried muscle relaxers, valium, xanax and they all make everything much worse. The only time I can get any kind of relief is to load up on pain relievers like darvocet to at least lessen the pain (nothing takes it away completely) and I don't want to rely on narcotics for the rest of my life let alone run the risk of developing a dependency on them. This has also started affecting me during the day as well as every single night. I went for a sleep study last night and fell asleep after about 30 minutes of tossing and turning. I slept for about 1 1/2 hours and then was jolted awake by the pain. I ended up having to leave because the pain was so unbearable. I ended up crying my eyes out all the way home and had to sit in a scalding hot bath for about an hour and I also took the pain meds so I could finally fall asleep around 4am. I have an awesome job that I love but am on the verge of losing it because I can perform my duties properly because my brain is fried form all this pain and no sleep. My doctor is trying to find out what is wrong but at this point in time I don't feel like he is being aggressive enough about helping me. If anyone has any suggestions I would greatly appreciate it. Please help as I am desperate for some relief. Thanks so much in advance for any suggestions anyone may have.