Joined: 05 Dec 2005 Posts: 22 Location: , Indiana U.S.A.
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Beyond Restless Leg Symdrome Posted: 07-18-07 18:46pm
I don't know if this is the right place to
post but thought I would start here. I am
desperate to hear from someone who has
experienced this or who has knowledge of
these symptoms and can send me in the
right direction towards finding help for
some relief.
About 2 years ago I started suffering from
what I thought was RLS. It has slowly
progressed from a little restlessness in
my calves to restlessness, pain,
twitching, lightening like cramps from my
feet all the way to my arms. This is
affecting my whole life as I am getting no
more that 3 hours of sleep a night. I have
tried medications for RLS and either they
don't help my symptoms and make my whole
body feel like it's on fire or they make
me extremly ill and I spend the next 4 or
5 hours vomiting. I have tried muscle
relaxers, valium, xanax and they all make
everything much worse. The only time I
can get any kind of relief is to load up
on pain relievers like darvocet to at
least lessen the pain (nothing takes it
away completely) and I don't want to rely
on narcotics for the rest of my life let
alone run the risk of developing a
dependency on them. This has also started
affecting me during the day as well as
every single night. I went for a sleep
study last night and fell asleep after
about 30 minutes of tossing and turning. I
slept for about 1 1/2 hours and then was
jolted awake by the pain. I ended up
having to leave because the pain was so
unbearable. I ended up crying my eyes out
all the way home and had to sit in a
scalding hot bath for about an hour and I
also took the pain meds so I could finally
fall asleep around 4am. I have an awesome
job that I love but am on the verge of
losing it because I can perform my duties
properly because my brain is fried form
all this pain and no sleep. My doctor is
trying to find out what is wrong but at
this point in time I don't feel like he is
being aggressive enough about helping me.
If anyone has any suggestions I would
greatly appreciate it. Please help as I
am desperate for some relief. Thanks so
much in advance for any suggestions anyone
may have.
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mrsosorio
New User, Becoming EHEALTHy
Joined: 29 Aug 2007 Posts: 2
Posted: 08-29-07 14:42pm
I have experienced RLS about the same way.
Have you tried Mirapex? It's new, I
started taking it just this week and it's
helped already. Good luck!
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stacylady
New User, Becoming EHEALTHy
Joined: 05 Dec 2005 Posts: 22 Location: , Indiana U.S.A.
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Thanked:1
Restless Leg Symdrome Posted: 08-29-07 19:37pm
Hi.
Thanks for the reply..
I have been seeing the my family doctor as
well as a rheumatologist for the past
month. So far after all the ct scans and
blood tests the one thing that has been
comfirmed is that I have a major vitamin D
deficiency. My rheumatologist said that
that could very well be causing all this
pain. He has started me on taking 50,000
units of vitamin D once a week. I have
only taken one so no results as of yet. I
am currently taking darvocet and soma to
get some relief at night and sleep. I was
taking the Soma compound with Codeine but
it has started to do damage to my stomach
so I was switched to just plain Soma (its
a muscle relaxer) And he also has switched
me from the darvocet to ultram extended
release because I am once again being
jolted awake by the pain. My doctor has
reservations about treating me for RLS at
this point because I have reacted so badly
to the RLS meds in the past. My
rheumatoligst doesn't believe that it is
RLS. I have gotten lucky (finally) and
found a specialist that actually takes
time to talk to me and spends at least 20
to 30 minutes with me at each appointment.
Anyway, I'm just rambling now, but thanks
again for the reply, I am so happy for you
that you have found relief and I hope you
continue to have luck with your
treatment.....happy dreams!! Stacy
Stacy