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dem_greeneyez

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Just Found Out I Have Cervical Cancer...
Posted: 07-17-07 11:26am

I found out Friday that I have cervical cancer. my doctor is referring me to a specialist to find out if it's precancerous or already is cancer & everything else that follows with it. she told me close to nothing (via phone Evil or
Very Mad ).

I'm pretty much lost to all of this. I've read a ton, but 1) don't understand most of it & 2) since I don't know know what stage I'm in (if any), it's hard to know which parts to pay attention.

what were y'all experiences like? from how old were you when you found out? to, what proceeders did you go through? are you able to have children now? & any information that would be helpful.

I appreciate it greatly!
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*star*

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Posted: 07-17-07 12:13pm

I have not been diagnosed with cervical cancer, but rather with the cells that could become cancerous.

I can't believe that your doctor told you over the phone. My doctor refused to give me the results over the phone and wanted me to come in. I was trying to get out of the copay, so I was hoping she would just tell me over the phone...Nope!

Anyways tell me more about how your doctor came to this conclusion. Did you have a bad pap? Did you have a colposcopy?
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LADYBUGDRU

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U Can Still Have Kids
Posted: 07-17-07 13:28pm

I HAVE CERVICAL CANCER AND I'VE HAD IT SINCE I WAS 18 AND IM 25 NOW..THE LAST SURGERY I WENT THROUGH THEY TOOK PART OF MY CERVICALS AND MY DOCTOR HOLD ME I CAN STILL HAVE KIDS BUT I WILL NOT BE ABLE TO HOLD THE BABY THE FULL 9 MONTHS..WHEN I FOUND OUT I THOUGHT MY LIFE WAS OVER BUT NOW THAT I KNOW I CAN STILL HAVE KIDS ITS NOT SO BAD Smile
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*star*

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Re: U Can Still Have Kids
Posted: 07-17-07 13:48pm

LADYBUGDRU wrote:
I HAVE CERVICAL CANCER AND I'VE HAD IT SINCE I WAS 18 AND IM 25 NOW..THE LAST SURGERY I WENT THROUGH THEY TOOK PART OF MY CERVICALS AND MY DOCTOR HOLD ME I CAN STILL HAVE KIDS BUT I WILL NOT BE ABLE TO HOLD THE BABY THE FULL 9 MONTHS..WHEN I FOUND OUT I THOUGHT MY LIFE WAS OVER BUT NOW THAT I KNOW I CAN STILL HAVE KIDS ITS NOT SO BAD Smile


First... Please do not post in all caps...it is hard to read

Second...My sister in law had cervical cancer and had half of her cervix removed. She was told that she would have a hard time carrying a baby to term. She got pregnant and they labeled her as high risk, but she carried her second child to full term. In fact she had to have an emergency c-section because she never dilated because of so much scar tissue.
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Ingi

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Posted: 07-17-07 13:58pm

OK, were you diagnosed with Cancer or Dysplasia? It sounds like you have displasia (since they don't diagnose cancer with a pap smear, they do the test it sounds like you are going to get where it tells you if it is precancer or cancer.).

I have had cervical cancer and, sweetie, relax this is just the very begining. Cervical abnormalities are so very common. It sounds like you are turning cervical dysplasia into 'cancer' when it is very, very far from it! In fact, it can take decades for dysplasia to become cancer - if it ever does. It isn't a guarantee that it will become cancer but it can.

That said, you'll now go in for a colposcopy where they numb your cervix, put some stuff on there (similar to vinegar) that turns the 'bad' cells white. Your doctor will take samples of these 'bad' cells and send them off to be tested. When they come back, a decision is made whether they'll be removed or if that is even necessary. Some doctors use a watch and wait approach. Some dysplasia can go away on it's own.

What has caused this? Human Papilloma Virus. It is the high risk type of HPV. The lower risk kind causes genital warts. Neither can be gotten rid of, but they can be controlled by your body.

Cervical abnormalities do not effect your fertility. The only thing that potentially could would be if there was signifcant scarring on your cervix, causing it to close up. Though that is so rare it isn't worth worrying about.
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dem_greeneyez

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Posted: 07-17-07 14:53pm

*star* wrote:
I have not been diagnosed with cervical cancer, but rather with the cells that could become cancerous.

I can't believe that your doctor told you over the phone. My doctor refused to give me the results over the phone and wanted me to come in. I was trying to get out of the copay, so I was hoping she would just tell me over the phone...Nope!

Anyways tell me more about how your doctor came to this conclusion. Did you have a bad pap? Did you have a colposcopy?


trust me, it caught me wayyyyy of guard when my doctor told me over the phone. when she recieved my std/hiv results, she refused to give them to me over the phone (I too, was trying to avoid copay). then of all matters, she tells me this over the phone! and doesn't even give me time to discuss it with her.

so i barely have any information besides from what she vaguely said to me, but the results were from a pap test.
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dem_greeneyez

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Re: U Can Still Have Kids
Posted: 07-17-07 14:54pm

LADYBUGDRU wrote:
I HAVE CERVICAL CANCER AND I'VE HAD IT SINCE I WAS 18 AND IM 25 NOW..THE LAST SURGERY I WENT THROUGH THEY TOOK PART OF MY CERVICALS AND MY DOCTOR HOLD ME I CAN STILL HAVE KIDS BUT I WILL NOT BE ABLE TO HOLD THE BABY THE FULL 9 MONTHS..WHEN I FOUND OUT I THOUGHT MY LIFE WAS OVER BUT NOW THAT I KNOW I CAN STILL HAVE KIDS ITS NOT SO BAD Smile


I'm glad it all worked out for you.

my doctor didn't give me enough information about my condition. I'm terribly worried I won't be able to have children Sad
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dem_greeneyez

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Posted: 07-17-07 14:57pm

Ingi wrote:
OK, were you diagnosed with Cancer or Dysplasia? It sounds like you have displasia (since they don't diagnose cancer with a pap smear, they do the test it sounds like you are going to get where it tells you if it is precancer or cancer.).

I have had cervical cancer and, sweetie, relax this is just the very begining. Cervical abnormalities are so very common. It sounds like you are turning cervical dysplasia into 'cancer' when it is very, very far from it! In fact, it can take decades for dysplasia to become cancer - if it ever does. It isn't a guarantee that it will become cancer but it can.

That said, you'll now go in for a colposcopy where they numb your cervix, put some stuff on there (similar to vinegar) that turns the 'bad' cells white. Your doctor will take samples of these 'bad' cells and send them off to be tested. When they come back, a decision is made whether they'll be removed or if that is even necessary. Some doctors use a watch and wait approach. Some dysplasia can go away on it's own.

What has caused this? Human Papilloma Virus. It is the high risk type of HPV. The lower risk kind causes genital warts. Neither can be gotten rid of, but they can be controlled by your body.

Cervical abnormalities do not effect your fertility. The only thing that potentially could would be if there was signifcant scarring on your cervix, causing it to close up. Though that is so rare it isn't worth worrying about.


my doctor told me I have cervical cancer (though she didn't specify what level). she told me I would have to go to another gyno for more tests to be done (she didn't specify which tests). and she didn't mention anything to me about HPV, though I've done all my reading on it.
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Ingi

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Posted: 07-17-07 18:10pm

dem_greeneyez wrote:
Ingi wrote:
OK, were you diagnosed with Cancer or Dysplasia? It sounds like you have displasia (since they don't diagnose cancer with a pap smear, they do the test it sounds like you are going to get where it tells you if it is precancer or cancer.).

I have had cervical cancer and, sweetie, relax this is just the very begining. Cervical abnormalities are so very common. It sounds like you are turning cervical dysplasia into 'cancer' when it is very, very far from it! In fact, it can take decades for dysplasia to become cancer - if it ever does. It isn't a guarantee that it will become cancer but it can.

That said, you'll now go in for a colposcopy where they numb your cervix, put some stuff on there (similar to vinegar) that turns the 'bad' cells white. Your doctor will take samples of these 'bad' cells and send them off to be tested. When they come back, a decision is made whether they'll be removed or if that is even necessary. Some doctors use a watch and wait approach. Some dysplasia can go away on it's own.

What has caused this? Human Papilloma Virus. It is the high risk type of HPV. The lower risk kind causes genital warts. Neither can be gotten rid of, but they can be controlled by your body.

Cervical abnormalities do not effect your fertility. The only thing that potentially could would be if there was signifcant scarring on your cervix, causing it to close up. Though that is so rare it isn't worth worrying about.


my doctor told me I have cervical cancer (though she didn't specify what level). she told me I would have to go to another gyno for more tests to be done (she didn't specify which tests). and she didn't mention anything to me about HPV, though I've done all my reading on it.


So you had the colposcopy then? A pap smear does not detect cervical cancer. So I'm confused.
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Santonica

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Posted: 11-15-07 00:04am

A Pap smear can detect cells from mild dysplasia to atypical glandular cells, which are most likely already cancerous. The Pap looks at the cell structure under a microscope; the more atypical these cells are, the more likely it is that they are cancerous. Of course, the confirmation of this diagnosis is done by colposcopy.

I would suggest writing down a list of questions and calling your doctor's office and requesting to talk to a medical assistant, nurse, or doctor with access to your medical file. They can give you the answers on what your Pap smear revealed.

My doctor told me over the phone as well; I was so shocked that I didn't ask a single thing, and I really kicked myself afterwards. I called back a day later with several questions that at least made things slightly clearer.

Good luck!
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meblonde01

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Posted: 11-15-07 11:41am

years ago I pre-cancer cells frozen off my cervix.. I had had normal paps every since. I have a new doctor and yesterday when I had my pap test she said she saw some brownish colored spots on my cervix. She said it might be from pre-cancerous cells that where removed. She said she would let me know when the pap test came back if anything was abnormal or not.
Now I'm confused. If pap doesn't show cancer (as some posted in here) what is it.. And what are they looking for in a pap test? per canerious cells? And does anyone know what these brownshish spots might me.. Slightly worried here..
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nightangel73

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Re: U Can Still Have Kids
Posted: 12-15-07 09:49am

dem_greeneyez wrote:
LADYBUGDRU wrote:
I HAVE CERVICAL CANCER AND I'VE HAD IT SINCE I WAS 18 AND IM 25 NOW..THE LAST SURGERY I WENT THROUGH THEY TOOK PART OF MY CERVICALS AND MY DOCTOR HOLD ME I CAN STILL HAVE KIDS BUT I WILL NOT BE ABLE TO HOLD THE BABY THE FULL 9 MONTHS..WHEN I FOUND OUT I THOUGHT MY LIFE WAS OVER BUT NOW THAT I KNOW I CAN STILL HAVE KIDS ITS NOT SO BAD Smile


I'm glad it all worked out for you.

my doctor didn't give me enough information about my condition. I'm terribly worried I won't be able to have children Sad


If I had cervical cancer and they have to remove my cervix it would hurt my feelings not being able to have children of my own but to be "dead" I much rather live infertile. I would be happy to adopt a baby.
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afisch4595

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Posted: 04-28-08 23:39pm

I have not been offically diagnosed with cervical cancer but i do have it. and my mom did and she has had a hysterectamy... if you need anyone to talk to i am here
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Ingi

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Posted: 04-29-08 12:38pm

afisch4595 wrote:
I have not been offically diagnosed with cervical cancer but i do have it. and my mom did and she has had a hysterectamy... if you need anyone to talk to i am here


How you do know you have cervical cancer if you haven't been diagnosed with it?
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afisch4595

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Posted: 04-29-08 20:16pm

Inherited through genes...
Everywoman has it. literally they all have it in our family
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Ingi

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Posted: 04-30-08 09:41am

You dont' inherit cervical cancer.
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Marianne0558

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Posted: 04-30-08 10:20am

Who told you that you inherit cervical cancer?
If you are pregnant(which you stated in previous posts), they would have given you all whole bunch of tests if you had cervical cancer.....
I'm confused now.
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afisch4595

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Posted: 05-12-08 19:40pm

I only meant that every woman in our family seems to have it. And i havent been to doctor for it in a year so yea
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eeyore46

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*star*
Posted: 05-12-08 20:01pm

How rude to tell someone how to post or not to post their message! I was shocked by your reply. She is reaching out for help on cervical cancer, which she may have, and your first thought was "ALL CAPS"! I normally do not reply to other's posts, I address the person seeking help, but I could not believe what your reply was.

Hopefully, it was just a bad pap test, and the problem can be corrected. If not, you can deal with that after you see the specialist. Sorry you are having to deal with this. My thoughts are with you. How old are you? Since this does seem to be an inheriated pattern, keep seeking doctors until you find one that you feel is right for you, and is reputable.
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afisch4595

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Posted: 05-14-08 23:18pm

Yea see the thing is it normally and usually isnt inherited but it is in our family. i can not literally name one woman who is blood related to me on my mother and fathers side who does not have it or had it.
We are literally a strange family... we have many medical problems...
I barely missed kidney failure a few years ago... and now facing a few other problems but not getting into that.
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