Epilepsy Forum - Going Off Meds ?

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Q: Going Off Meds ?

asked by: amg on July 15th, 2007

New User

I would love to go off my meds and give it a whirl, but want to get some feedback on chances of another seizure.

I had my first grand mal about 15 years ago and my second when I tried to get off my meds 3 years later. The first EEG was abnormal and was put on dilantin and my hair started falling out. Then they put me on depakote which was fine until I got to an appropriate childbearing age and then my doc changed me to lamictal. I had an EEG a couple of years ago and it was normal (awake and asleep). My doc said I could try to go off meds but cant drive for six months.

Just wondering if anyone has any experiences similar or know of any they would like to share and what the outcome or reoccurence was, if any.

Thanks

Replies(3)

CWE

replied on August 5th, 2007

New User

My wife was able to achieve permanent seizure controusing a combination of diet, sleep regimen and eeg neurofeedback. I think the key is, if you are living on the edge of your seizure threshold (either with or without meds), to know your ]seizure triggers and avoid them.

amg

replied on August 9th, 2007

New User

yeah, that is just it... they could never pinpoint what my seizures were from. The best they could tell me is that it was puberty related. I had my first at 13 and my second at 16 and never one since and I am now 29. I only take total 300 mg per day of lamictal, which my doc says is about the lowest dose you could probably even take. I really want to give it a try since everything seems to be normal, but I can't drive for 6 months and that means I would have to have a chauffeur or something to commute to work everyday. I am not sure if insurance might pay for something like that or not, but I guess it is worth asking.

Thanks for your feedback.

amg

replied on January 9th, 2008

New User

So I found out that my insurance won't do anything of the sort. Sad

I was wondering what other types of medications, if anyone knows, there are out there to treat epilepsy so I can research them and if there have been any studies into the long term use side effects of lamictal.

Thanks

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