Living With a Disease Where There Is No Cure Posted: 03-10-04 02:51am
Hello all
i was diagnosed with ic about 2 years ago,
but have been having symptoms for over 10
years. Here recently my symptoms have
been more severe, but mainly because at
this point in my life I am going through
so many things that the stress is causing
my bladder to go on overload. I cannot
tell you the last day that has gone by
when I am not swollen in the middle or
hurting so badly that its difficult to
stand. Recently, when my bladder has
begun to have spasms, my body for some
reason has begun to retain fluid as well.
My hands are swollen so bad I cannot even
wear my wedding band most of the time. My
urologist tells me that I have one of the
more severe cases of ic and that there is
no cure, only trial medication. Not
something I wanted to hear, would you. If
any of you are going through similair
things, please let me know. I would
really like to speak with someone to know
that I am not the only one out here alone.
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goody2
New User, Becoming EHEALTHy
Joined: 12 Mar 2004 Posts: 2
Posted: 03-12-04 02:40am
Hey there
i was disgnosed 2 years ago with ic.
Although I have nothing like what you are
having, I feel so bad for you. But I do
understand the pain, to a certain degree.
I actually went to an eastern medicine
doctor after about year, bc I just
couldnt live with it. He gave me a few
shiatsu treatments. I was fortunte to
have a friend of the family who was an
actual "healer" (kinda like mr. Meogee in
karate kid)
well after a few sessions he new my
bladder/body was very sick and understood.
Within treatments he told me to take
calcium. Actually coral calcium. I dunno
if you take any vitmins, which i'm sur
eyou have tried them all..... But I would
really recomment trying the coral calcium
(the one from okinawa, not hte cheapo ones
they seel in drug stores)
it has helped my body so much. I can tell
you more you are interested.
So anyway that was my 2cents
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purple333
Extremely EHEALTHy
Joined: 01 Dec 2003 Posts: 1420 Location: Sydney
Posted: 03-12-04 03:28am
I don't have this problem but I would
suggest the same sort of thing, homeopathy
would be worth trying rather than being a
guinea pig.
The other thing that might be worth
checking is going to a search engine &
typing in cures or natural cures for ic.
Good luck
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goody2
New User, Becoming EHEALTHy
Joined: 12 Mar 2004 Posts: 2
Posted: 03-12-04 23:48pm
Hey I came acroos this, I guess i'm no
tthe only one who found releif from ic
with coral calcium.
p.S. It also reduced my menstral
cramping majorly, as well as my mood!!
That's always a plus.
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BGirl1988
New User, Becoming EHEALTHy
Joined: 27 May 2005 Posts: 17 Location: New York
Posted: 05-27-05 23:39pm
First let me say i'm sorry. I have a
question for all who hav ic...My doctor
told me that women with medapause (sry for
the spelling) only get it...Is this
true??? They would not test me for it
because it is really rare that young women
have it and that they think I would not be
able to get if because of my age. But is
it true that only people going through
medapause get it???
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purple333
Extremely EHEALTHy
Joined: 01 Dec 2003 Posts: 1420 Location: Sydney
No - Anyone Can Get It.... Posted: 05-28-05 04:59am
Regardless of age or sex you can get ic
for many reasons, infections, stress, etc
- so insist your dr check out what's going
on & also consider whether it's stress
or embarrassment related in which case
perhaps a counsellor, group therapy for
stress/embarassment etc may be the
answer.
Goodluck
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Writer_girl
New User, Becoming EHEALTHy
Joined: 12 Oct 2005 Posts: 20
Posted: 10-12-05 06:25am
I don't have ic but I do have bipolar
disorder and i've been struggling with
that for over 10 years. I understand
what it is like to struggle with your
health and have your life torn apart.
You have my sympathy and I hope you start
feeling better soon.
