I am not aware of the condition you have referred to , but there is a definite link between Dermatitis Herpetiformis and Celiac. They are both caused by the ingesting gluten containing foods. How did they diagnose your dermatitis condition?

Hello, My Mom passed away 4 years ago from complications of DM. She was not given a diagnosis of DM until 3 day before her death. And at that time Celiac Disease was also mentioned. We were never able to know for sure if she had Celiac Disease also. We asked the Drs. if anything could be hereditary, because at the time I was not well, we were told NO. But now 4 years latter I was just diagnosed with Celiac Disease. I personally do feel that there is a connection to CD and DM. I had Gene testing done also and hound that I carry 2 genes for Celiac, and was told that both my Mother and Father carried the genes, so I am pretty sure that my Mom did have CD also. If you have any new info on the two diseases, please let me know and I hope that you get that you start feeling better. Mindy

Hi, my dad had dertmatomyositis and died of complications as well. At the time almost 20 years ago now, they really did not know anything about DM. I was of course never told if this could be hereditary and have always been concerned. What gene did they find? and what specific testing did you have done to determine if you had the gene?

My cousin has now been diagnosed with another disease Scoloderma (may not be spelled correctly) and the symptoms are very similar does anyone know if there is a link between these two?

Thank you. Mary

Hi Mary,

I had gene testing for Celiac Disease, DQ2/DQ8 are the specific genes for CD. The following link is to a report on Celiac Disease. It mentions the different auto-immune disease that are sometimes connected to CD. CD tends to be linked to many symptoms and other diseases, making it very hard to diagnose. You may find it helpful.

http://yourtotalhealth.ivillage.com/gluten -intolerance.html?nlcid=dg|10-29-2008|

Also if you consider getting tested for CD you should have your labs sent to PROMETHEUS. Most labs are not familiar with CD and don't always give a proper reading.

I wish you the best,
Melinda