TN symptoms and treatments Posted: 03-10-08 12:08pm
I was diagnosed 3 years ago with TN. The
pain is SOOOO intense you couldn't touch
my hair, have wind hit your face, lay it
on a pillow or anything that would disturb
the nerves in the left side of my
head/face area. Now I know why they use
to call it the "Suicide Disease". I had
Gamma Knife surgery in December of 2004.
It was wonderful being pain free. I have
been on Trileptal medication, which is an
anti-seizure med; to keep the nerves calm.
Unfortunately late last year the pain
returned and they would like to do the
Gamma Knife surgery again. I was told
less than 1 percent of TN sufferers ever
have to have the surgery again. It's one
day surgery, in & out, but unless you have
insurance you will never be able to afford
it. I managed to qualify for a one-time
thing through NY State. Well, I do not
have insurance so we are trying
alternative medicines added to the
trileptal. I truly hope it works. My
TN was inherited from my mom's side of the
family. Yes it can be an inherited
disease. It flairs up now and then and
sometimes driving can be a bear. Anyone
who has it on the scale I do, my thoughts
and prayers are with you. I met a gal
that has it, but her doctor discovered
that she had MS also. So we all have to
hang in there and pray to be pain free
some day.
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Fairy*Godmother
Supporter
Joined: 11 Oct 2003 Posts: 1404 Location: , Georgia USA
Thanks: 55
Thanked:65
Hi Posted: 07-12-08 14:27pm
Please come back to eHealth? Just came
across your post, I have NO IDEA what TN
stands for. Maybe that is why so many
others did not respond. Please tell us
what this TN is. Very curious. Hope you
find some relief!
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gonetothedogs
New User, Becoming EHEALTHy
Joined: 10 Mar 2008 Posts: 2
TN Posted: 07-14-08 08:03am
I am sorry I was not clearer in my post.
I was on the Trigeminal Neurolgia forum
and that is what TN stands for.
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Fairy*Godmother
Supporter
Joined: 11 Oct 2003 Posts: 1404 Location: , Georgia USA
Thanks: 55
Thanked:65
Okay........ Posted: 07-14-08 16:00pm
Now that I know what this stands for maybe
you could help an ole girl out and kinda
explain it to me? So happy you came back
to eHeatlh!!!!!!
