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Conditions and Diseases > TMJ Forum > TMJ , Pseudotumor Cerebri ?
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Q: TMJ , Pseudotumor Cerebri ?
asked by: lshields on July 22nd, 2009
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I've been to several doctors and all have different opinions as to what is wrong. I have been diagnosed with TMJ and was told I have Pseudotumor Cerebri. I have also had quite a bit of female problems previous to this with severe endometriosis and was on steroids ( danazol and lupron ) for 6 years of my life. I also have a vertibra in my lower back through xrays shows that is slightly to the right. This was after a car accident. I have always felt a constant pressure in my head for years. I feel fluid in my left ear when I bend forward. I feel as though if my 2nd vertebra is pressed inward I can take a deep breath and the pressure feels releaved. the same thing if I move my jaw to where i place my front teeth on top of each other. The pressure is again gone and I feel I can take a much deeper breath. I also feel that the left side is then getting either more blood flow or what have...just feels better. I also feel I am not able to fully turn my head as far as if I turn my head to the right.

Can someone tell me if any of this is connected to one another and if this is something else then what has been told to me? I really do not believe some of the diagnosis. I also believe that some of the doctors i have gone to do not listen or seem to take their job that seriously to take the time to care. I do have a lot of headaches, but I also need to get this resolved as it is affecting my job and family.
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edgaras
replied on July 24th, 2009
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You need to be very specific and noisy and loud to get doctors attention these days as they seem to get many patients with "headaches" and some, if I might argue, do not care to diagnose the cause and write it off as stress or migraine if are lucky. Specifics about pain, location, intensitity, duration, time of pain, impact of the pain on your ability to do SPECIFIC things.


From your post I wasn't sure what is your primary concern, but it appears to be the ability to take care of your family. This is not specific enough for doctors, however, so take notes if you can, buy a recorder, or use cell phone - current generation cells phones allow almost unlimited ammount of voice recording, some include video too.

Yea, the post is understandable, it is hard to trust the diagnosis when doctors do not fully explain as to how to came to a concussion. So question, don't be afraid.

Ed
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edgaras
replied on July 24th, 2009
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It is essential to ask in my opinion, how the doctor comes to a conclusion, I don't think it is rude, and if they seem to get offended I would explain that this condition is having a debilitating impact and enough time ans suffering has passed that it is necessary for you to hear some reassurance and logic behind the diagnosis; doing this not to question doctors authority, his credibility or his sincerity to help you is hard, I know that from my experience. It's a fine line.
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