Medical Questions > Conditions and Diseases > TMJ Forum

TMJ is ruining my life! :( Dizziness 24/7 (Page 1)

I have been diagnosed with tmj after YEARS AND YEARS of doctors telling me all my problems are in my head and brushing me off as a joke. I will quickly list off all my symptoms I experience EVERY DAYYYYYYY for years upon years now. (It is getting worst though)I have been to numerous specialists, including 20 plus general drs, emergency drs, neurologists, ent specialists, opthomologists, etc. Had blood work gallore done, mris, catscans, etc. All came back fine, besides the mri showing nasal polyps in my sinus cavity whihc I am on spray for.

*Non stop dizziness. Everytime I move my head, look up or down or around, turn around, anything it is always there Sad

* I get nauseated very easily

*I have a bump under my left ear which feels like it is connected to my jaw.

*I get headaches behind my eyes and in my sinus area

*My Jaw locks open and clicks all the time, I clench and grind 24/7 too.

*My throat always feels swollen and like there is a lump in it.

*The left side of my face is numb around the area, jaw line and cheek/nose.

*I have fuzzy vision, even though the eye doctors say it is all fine.

*When I lay down to go to bed my ears are ringing super loud, and sometimes I get it even when I am not laying down

*I am exhausted all the time, and I am having BAD anxiety all the time which in turn is now making me depressed.

*There is pain but it is not there all the time it comes and goes in my jaw area.

*The list goes on and on and on...

I went to a specialist for my TMJ a month ago and I am waiting to get in to get fitted for a night gaurd, and than another for the day. It is costing me 3500 dollars though, and I am not sure it will cure my dizziness. I literally feel like I am spaced out, and in a daze/drunk ALL the time with the vertigo/dizzy feeling. Is this normal? My family doctor claims that tmj will not cause dizziness like this, and than the specialist says it can. So which is correct? I am very very very worried because I am getting worst and I have a very young daughter, and this is ruining my life and I want to enjoy time with her and not feel like a gimp all the time! Please let me know if dizziness is a big problem with tmj, and if it is, does it occur 24/7 and will the splints work for it. Thanks!!!
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First Helper hyepod
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replied June 25th, 2012
Tmj
Well choppers girl Welcome to my world.. It is an absolute nitemare to feel like this. I'm trying acupuncture rite now on my 2nd session. Also was diagnosed with TMJ but have minor face pain. The feelings are mutual Pls let me know how the night guard works and I will tell u how acupuncture turns out. Good luck and God bless.
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replied June 25th, 2012
Mouthgaurd is doing nothing, besides causing pain which I didn't have much of. The dizziness is also quite a bit worst. He told me that my SCM muscles are very tight, and in turn causing me to feel dizzy. If you look up SCM they say it pulls on your ear causing vertigo problems with head movements etc. I spent alot on this gaurd and I am quite upset that it hasn't done anything at all. He gave me a prolotherapy shot in my neck to fix the neck, didn't do anything. I am seeing a Chiro again starting tomorrow after my tmj specialist appointment. I went to one 3 years ago and had no success, but they are claiming this guy is great so I will give anything a try. Let me know how the accupunture goes! Thanks for the reply.
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replied June 25th, 2012
Im also doing chiro for the past 6 months, but honestly. Nothing much has changed. You are the first person to explain exactly ehat i go through day in day out. I think im at the depressed stage... But ive also heard it all frim all these doctors! Stay in touch amd ill keep u up to date on acupuncture.. Feel better!!
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replied June 30th, 2012
Me too!!! TMJ symptoms
I have these same symptoms-pain in my jaw/neck but not all the time. Numbness (or more of a pressure sensation) on my jaw, cheek and side of my nose, my jaw clicks really bad and hurts when I've been eating, I've had ringing in my ear and went to an ENT who found nothing. I've also had ear pain. I've thought I'd had a sinus infection for months but it wasn't. I have most recently had dizzy spells. I have severe muscle tension in my neck and shoulder on the same side and even went to physical therapy. It helped a bit. I'm worried I have something horribly wrong like a brain tumor or ms but the Drs all say my neuro tests have come out fine. I have 3 young children and am currently nursing my youngest. I also get very little sleep-the baby is up every hour and a half all night, every night. I just want some relief. It's nice to see someone with my same symptoms.
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replied June 30th, 2012
TMJ on and on and on
Its very difficult to diagnose what we feel, being that all medical practicioners will use stress and anxiety as an excuse. We feel these symtoms!! Hello?? So we go thru all appropiate testing and unfortunately they all come back negative. But hey we still feel the same and even worse. I started acupuncture and some natural herbs to change up the usual dose of pills. The acupuncture has helped, i was not a believer!! But luckily i found the rite person that gave a professional diagnose and is helping me overcome a 10yr problem which has progressed to the point where everything affects me.. Facial pain, ear pressure and pain. Dizziness and etc.. Chiro helped me a little bit also!! Good luck and lets keep helping each other find a solution to this nightmare.
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replied July 8th, 2012
help me my TMJ is just starting stage
can u explain about acupuncture, my tmj is in starting stage and i didn't find a single doctr to cure it.
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User Profile
replied June 30th, 2012
I had eagles syndrome it mimics tmj and I believe Ihave temporal tendinits both of these are misdiagnoised constantly it took me 10 years to get mine diagnoised had my styloid removed and try to move on to temporal tendinits hope this helps I have had ear pressure and a sore throat for 12 years now jaw pain also
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replied July 7th, 2012
OMG I have GREAT sympathy for all of you! I have had TMJ/TMD for 8 years now! It started after getting my braces removed I was diagnosed! That was the worst diagnosis I would learn! I have had root canals, cavities and etc. I had a metal splint that was made for me in Cali when I lived out there that was 3K. Now I had to buy a new one for 1,053.00 just so I can eat and function. Now was just at the dentist today and I may need a root canal. I am at the point where I will be looking into surgery!
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replied July 7th, 2012
I am soooo GLAD that there is finally a support group for TMJ on here. It is so hard to describe to people about TMJ. Mainly no one understands what it is and how it impacts your life! I pretty much never describe to people anymore because they have no clue. I try to work a full time job and it is extremely difficult!
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Users who thank littlejohn for this post: Happylittlebutterfly 

replied July 12th, 2012
This is how I felt in college too. Group work when you're sick is super painful, and no one understands it until they experience it. It's such a huge popular problem but is kept quiet so outsiders never understand it exists or why.
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replied July 16th, 2012
I feel for you, littlejohn. It's caused me to miss work a lot. It's hard for my family to understand the pain TMJ causes. Hang in there!
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replied July 15th, 2012
tmj problems
Hello,

I was reading through these post. I suffer from an onslaught of TMJ issues, which, i've had for over 6 years now. When i first started feeling sick, i have no idea what was causing me to feel bad. I had a cat scan done, and MRI testing-which all came back normal. Recently, i've been told my doctors that this condition is cause by STRESS! It's funny to hear that. I consider myself to be easy going, but, like most of your post i've seen many who have stated the same thing. I consider myself to be a calm and relaxed person; but for some reason i clinch my jaw at night. There is something in my subconscious that his causing me to clinch. Lately i've become very dizzy, and have had trouble with my balance. I figure that it was vertigo that was the culprit. I've found that passionflower, Valerian root, and ginseng all seem to work really well. All are natural herbs that help to calm and sooth. The ginseng is great because it helps to bring your mind back to reality, and helps with the dizziness. Passionflower is great for at night when you want to sleep, the same with Valerian root. Try these! People thought i was nuts when i told them that something was wrong with me. They thought i was crazy! I'm currently a pre-dental student. I'm currently in the process of getting into dental school. One area that i would love to consider and research, would be in the area of TMJ, and other TMJ related diseases.
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replied July 17th, 2012
Hey JNIck, I am also applying to dental school this cycle and have TMJ too Smile Living with it and seeing everyone here go through it makes me want to learn all I can about it. It's not something that is easily treated though, unfortunately. Good luck this cycle, maybe we'll be future classmates!

MC
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replied July 17th, 2012
Hi choppersgirl,
I know how you feel. I have seen numerous practitioners too and still haven't found one that I feel like I can completely trust. I am seeing a physical therapist soon and will update you on how that goes. Physical therapy at least makes sense to me since tight muscles could very well be causing the ear problems and headaches.

Wishing you the best!
MC
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replied July 21st, 2012
Hello everyone... I am new to the TMJ disease experience. I recently began having significant TMJ issues. About two months ago, I noticed "popping" in my right TMJ, and weeks later, pain in that ear. I have always chewed gum all day, every day, but this made me completely stop. In turn, these symptoms nearly disappeared. However, a week ago, SUDDENLY, and for no apparent reason, I started with the jaw muscle tension. Then headaches and light-headedness. Then I noticed that I was constantly and subconsciously sticking my jaw outward or sometimes to the side. At other times, my jaw muscles feel so tense that I am nearly clenching. Sure, I have a "normal" amount of stress in my life, but nothing to warrant this. The constant tremendous tension in the various muscles, and the dizziness, are causing depression and anxiety. I do not believe that depression or anxiety caused this condition. I've already been wearing a night guard for years. I'm going to try acupuncture next. It is recommended that we appy heat to the area, but that seems counterintuitive to me, being a health professional. The heat may possibly loosen the muscles, but also may increase micro swelling and inflammation, in my opinion. Tonight I tried cold packs, and it yielded better results. Anyway, is there anyone out there who had TMJ disease that actually improved or disappeared?! I need hope.
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replied July 21st, 2012
Hi hyepod, I'm sorry you have to go through this too. I too started out with just a pop on one side, but it had slowly progressed to more symptoms. What I really wish I had done sooner, and I'm telling you so that yours is hopefully early on enough that it still has a chance of being helped, is to find a physical therapist that is knowledgable about TMJ to get the muscles lengthened out. The spasms are what's causing the headaches.

My muscle spasms were so bad that they actually pulled my jaw back, making me lose my bite. If I had gotten PT sooner, I might not be dealing with all these symptoms now. I actually haven't gotten PT yet (first session is in two weeks), but I have heard good things about it. Plus, it just makes sense that PT would help. I will definitely be back to let you know how it goes so that you can decide if it's right for you.

As for the heat pad, heat will help relax the muscles. I've found that my symptoms are much better while I'm taking a warm shower. If cold packs work for you, that's great! Keep doing it! My boss (who is a dentist) says either would work.

Before you spend money on acupuncture, I think you should give PT a try. I am seeing a new TMJ specialist who is highly recommended by many dentists in my area and that is what he prescribed me. It sounds like your problem is muscle based too.

Sorry this is such a long post. I will update soon!
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replied July 21st, 2012
mc90, thanks so much for the info. I also have heard good things about PT. I've assumed that it might be cost-prohibitive, though. I will look into this... Don't want to let this problem get completely out of hand. Do let me know how PT works for you.
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replied July 21st, 2012
Hm do you have insurance? If not, you should call around because prices vary a lot by offices. One place I called charged $160 for initial appt and $120 for each one thereafter, while another place charges $100 for the first and $50 for each additional ones.

The TMJ specialist's prescription for me is 12 visits. But yeah don't start yet, I'll let you know asap. No point in wasting money if it isn't going to work. For now, you can massage your jaw muscles yourself by putting your thumb inside your mouth and all your other fingers on the other side of your cheek and rubbing gently to loosen up the knots.
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Users who thank mc90 for this post: hyepod 

replied July 21st, 2012
I have insurance, but with a gigantic deductible. This price range is something I can handle. I'll do my research and stretches. Thanks so much.
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replied July 22nd, 2012
Vertigo is horrible, I have it 24/7 Sad
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replied July 24th, 2012
Hello everyone! Well last 2 weeks have been complicated and unable to post. But, everything is the same. Unfortunately my TMJ is at its hardest! My chiropractor has been working on it and also my acupuncture guy as well. What I can I say! Do I feel better? At times I do, but more bad then good.. I will tell u though that pls be strong and fight it because it will send you into a depressed mood, and then anxiety kicks in and forget it! When I get a bad flare up of symptoms, I just look for a place that is quite and there is no one around, fight it off and act like if nothing is wrong! Remember my symptoms, constant headache, ear pressure, unbalanced, everything is surreal.. Feels like when I walk someone is pulling on me.. I sometimes get so freaked out I think I'm having a stroke! Pain in my left arm, etc....it's hard but I'm planning on having some more tests and hopefully find the best resources to alleviate this outrageous monster that follows me around all day! Sleep test is next! Will let u guys know the results.. Stay in touch! God bless and feel better.
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replied July 24th, 2012
I am suffering horribly!!!!!!!! I dont know if I should go to the neuro ent, or wait on the tmj doctor??????
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replied July 25th, 2012
Horrible TMJ
Very sorry to hear that!! But unfornutately if it is TMJ, well! Start with your dentist, 2 is the chiropractor & 3 while your doing these 2 do acupuncture all together helps alleviate the monster.. Im in the process of using the night guard, chiro and acupuncture! My worst symptom is the feeling of off balance , fatigue and earfullness. But try and let me k ow how it goes! Feel better!!! God bless
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replied July 24th, 2012
I am suffering horribly!!!!!!!! I dont know if I should go to the neuro ent, or wait on the tmj doctor??????
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replied September 4th, 2012
thstrong
I have TMJ . when I put my hands on both sides of the jaw, I can feel something wrong with the lefl jaw joint . I went to the chiropractor for my TMJ. From the beginning, they gave me the treatment plans. If I go with 12 visits, they will stop the pain but it might come back later. If I go with 20 visits, they will stop the pain and It will not come back. After the treatment with 20 visits, I was getting better but not 100%. I still hear some noises when I yawn or open my mouth widely. sometimes, my jaw still hurts. I don't know what to do. it's not like what they promise and I still have to pay everything for my treatment
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replied October 5th, 2012
To All: Ibuprofen, Meditation, Physical Tharapy
Hello everyone. I wanted to share my story. I have suffered from extreme muscle tension and repetitive damage issues from typing. Tension in my shoulders, upper back, arms and hands, pain in my right shoulder and arm and hand at it's worst. 3 years ago I went through physical therapy and it helped, but every year during my busy season (lots of 10key typing) I would get a very pain full flare up. Typing (repetitive damage) is what aggravated these areas. The tension has gotten so bad, that I had to quit my writing job on the side. I started having this pressure in my ears and thought it was another sinus infection. 4 months ago I kept going back on steroids and antibiotics. 6 weeks ago I started having pain in my jaw. Ct scan said sinuses were clear. Introducing TMJ! My shoulder and neck tension is chronic. I believe they are all related. The tension is unreal!

If I could afford a massage every week I believe I could heal this. Can't afford it. I also feel so tense and so EXHAUSTED! Like a heavy cloud is just hanging over me. I thought something was really wrong with me until I read these posts. But it makes sense, if we are so tense, of course we are exhausted. I feel like I literally drag myself though my day, enter depression. They say stress causes this. If that's the case then the the stress that TMJ causes, makes it impossible to get rid of!!!
Enter meditation... necessary...but difficult. Mediation will give you a break from the stress all of this causes you. You need it! You have to take a time out in order to be able to deal with this, bc at times it seems there is no light at the end of the tunnel. Keep persevering!
It will help you learn how to deal with it. I am not promising that it will be easy, but it will help with the stress and the tension.
Caffeine will make the pain and tension worse, which is challenging because we are so tense and tired! I still drink it but in small quantities.
And forget getting anyone to understand what you are going through, enter relationship strain. Hopefully others have a good support system. Getting through TMJ will definitely make you stronger! and value your life when not in pain that's for sure!!!!!

I think it's the muscle tension that is causing this. They say that the shoulders support TMJ, so if you don't take care of them guess what happens?
I have met several people who have had TMJ and they all say the splint helped them. I am getting one from dentist soon, but I just use one from Walgreen's right now. It helps but I clench all the time! Sometimes I think it's the tension in my neck that makes me clench. I am now very conscious of my shoulders, are they hiked up? how is my posture? I consciously have to relax them through out the day, and I stretch as much as I can, and give myself breaks from the computer. And don't forget to breathe. It helps. Take deep breaths as often as possible, helps you relax.

Ibuprofen provides a release of tension and is imperative to take, but it doesn't always help with the pain, it can however keep it at bay. When I take a break from it to give my poor stomach a rest, I am in more pain.
I am going to start physical therapy, with deep heat, trigger points, massage, stretch and exercise. By now you are in so much pain, that your muscles will continue to grow weak. You have to strengthen them again, or you will never get out of this pain. The process isn't easy, but it will help. If you can't afford physical therapy, get a gym member ship, sit in a hot tub and start swimming. Anything to loosen up the muscle and strengthen it.

It may be that it will never go away, but we have to learn how to keep it at bay! If I knew that my chronic muscle tension would lead to this, I would have gotten help much sooner, because this is unbelievable! I can tell you that stress does make it worse however. The more I am worry the more tense I am. I do believe that we have to also be aware of the daily weight we carry, and to give ourselves a break! Stop being so hard on yourself! You're only human. Mediation is hard, but if you can incorporate letting go, it will help you get through this.
Also muscle relaxers may help too. There are also natural anti-inflammatories you can try like turmeric. Visit your health food store. I haven't tried them yet, but they have come recommended
I also forgot to mention the ringing in my ears is so loud, that I have lost some hearing during the day. I just can't hear the same as I used to. I hope this gets better. The dentist told it was the ibuprofen that caused the ringing, but it started way before my daily intake of ibuprofen.
Relax, pray, and make it through another day!
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replied October 5th, 2012
Therapy
Also I have a friend who got rid of her tmj with mental therapy. Grinding her teeth was a habit like biting your nails. She had to learn not to do it with relaxation techniques and becoming conscious of it to stop it.
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replied October 5th, 2012
Also I have a friend who got rid of her tmj with mental therapy. Grinding her teeth was a habit like biting your nails. She had to learn not to do it with relaxation techniques and becoming conscious of it to stop it.
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