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Q: tingling in hands and feet
asked by: suzzi on May 4th, 2008
New User
About five weeks ago woke up in middle of the night with pins and needles in hand and two fingers feeling like hot rods inside them. My arm and shoulder was also aching, hand felt very puffy and numb as well. Got out of bed and it stayed for a couple of hours. The same thing happened every night for a couple of weeks, it than subsided to just the hand, sometimes it would be left hand as well but not as much as right. Still get numb tingling feeling in hands and also in toes. Have experienced dizziness and a real sick feeling which would only last about five minutes. Feel things crawling on right leg. I am quite an active person but have been getting very tired of late. Worked for 6 hours yesterday and felt like I had exercised all day, very sore all over.Today I feel sore from waste down in legs etc. Hands and toes still tingling, knees and ankles get little aches in them.
Went to dictor who took blood tests and did xray on neck, everything fine. Doctor told me to see how I am feeling in couple of weeks. Went to another Doctor who is doing other blood tests and wants me to have CT scan. I feel like I am going mad as I know this is real.
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Dr. Nikola
replied on May 9th, 2008
Doctor
Can you tell me what blood tests both doctors did exactly?
Did doctors examine your thyroid hormones?
Do you still have regular menstruations?
Do you feel those symptoms during the day or only during the night?
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TomsMom
replied on July 24th, 2008
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When I felt the first tingling, numbness in my right foot, I told my husband I knew it was MS. I told my psychiatrist it was MS. I had a sister with MS and I just somehow knew. They told me I was being over-reactive, extrapolating, dramatic. I insisted on an MRI which showed 2 lesions. YOU know your body better than anyone; don't let anyone tell you that what you are feeling isn't real.

The place to start is with an MRI; you can go from there.

Best of luck,
Beverly
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anetamiska
replied on July 30th, 2008
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I know how you feel. You know you body better then doctors. Ask your doctor for Evoke Potential study and spinal tab. Based on those three exams they can tell you if this is MS. Good Luck, Aneta.
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bakergirl
replied on October 4th, 2008
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sill waiting for diagnosis
I have been "not feeling normal" for over a year now .I just know something is not right with me, my husband thinks I am just over tired. But this tired I am having is not your run of the mill feeling, it is an overwhelming feeling of I could drop what I am doing and just lay in the floor where ever I may be and rest. here are some of the things I have been experiencing over the last 12 months, trouble swollowing, speech interuptions,dragging leg, numbness & tinggling(fingers, legs,& toes),pain in hands ,feet and back of the neck,foggy thinking ,trouble thinking clearly,bad memory, feeling off balance, trouble walking without looking intoxicated,feeling wet spots on my legs, pain in my face, feeling like something crawling on my face,muscle weakness, muscles in toes and feet tightening up and painful.One day I could not lift my Right leg into my car without grabbing my pant leg and draging it into the car, then when I made it to the store could not lift it to walk correctly. I finaly went to the Dr. and gave her this list of things I have been experiencing, and I feel as if she is not taking the kind of action I thought she would. Ii has been 2 months since I have told her about these symptoms, and so far she has only done blood work . Is it possible to go directly to a neurologist or do you have to see your primary for a referal? I am tied of feeling "not normal" I need to know if this is MS or not.
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katch
replied on October 4th, 2008
Experienced User
I hear all of you. 4 months after I had my twins, I got sick and very dehydrated. Went to the ER. They said they never saw anything like it and just put me on an antibiotic. 3 days later, my ankles started to swell and they felt like I had sprained them. It has gotten worse since then. My legs fall asleep at night, my neck stiffens up and wakes me, my hands go numb and for about an hour or two after I get up, they are cold. I have had MRI's, x-rays, blood work, cat scans, the works. MS was ruled out , right along with everything else. The Doc. stated that the muscle biopsy is the only abnormal test. She said that it doesn't make sense because my blood is normal. THe biopsy showed that I have myotonic dystophy. But she said that could be wrong because I had the biopsy done in one hopspital and sent to another. ( I wish doctors didn't go by bloodwork because right before I had emergency gallbladder surgery, my blood work was normal. So, in my opinion, my blood is abnormal because it never shows anythng LOL. ) As a matter of fact, when I was pregnant with the twins, it wasn't until 2 months before the blood test stated I was pregnant let alone pregnant with twins. So, I know how you all feel. I can't work at all because I can't sit or stand for a given legnth of time. If I sit "like a lady" with my legs crossed, they go completely numb. If I sit indian style, the go numb. My hands are in a moon shape position most of the time. I also am tied of feeling this way. I don't want to get out of bed. I wear braces on my ankles to keep them from twisting. I am constantly tightening my leg muscles when I sit. I am at the Cleveland Clinic now and they want a DNA test done. SO, that's the next step. I'll let everyone know how it goes in a month. But as far as I know, it too will come back ok. I am not "playing" these symptoms and I am tired of the Docs making me feel that way. I have been on all muscle relaxants, pain meds, ect. Nothing has worked. Well, they work for about a month and then, nothing. I am so uncomfortable. It seems that when a doctor doesn't know what it is, they stop looking. That doesn't help us.
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2liege
replied on October 7th, 2008
New User
SUZZI!

DEMAND an MRI. I'm 19 and the very first thing i came across when i researched my symptoms of numbness, slurred speech, and fatigue, brought me to Multiple Sclerosis. After the second occurrence of numbness and loss of coordination happened in my right arm, I went to the emergency room because i knew that was the fastest way to get things done, and demanded an MRI. AND WHAT DO YOU KNOW.
It wasn't my neck like my business man of a doctor said, it was in fact MS.

Get on top of this, like someone here said, YOU know your body. Don't let other people lead you around in circles when you wanna get to the bottom of this.
'
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zigemyster
replied on October 7th, 2008
Moderator
Spnal Tap not necessary for MS dx
anetamiska wrote:
I know how you feel. You know you body better then doctors. Ask your doctor for Evoke Potential study and spinal tab. Based on those three exams they can tell you if this is MS. Good Luck, Aneta.


Spinal tap is NOT required for a dx of MS. It is not 100% conclusive or inconculsive so it is a waste of your money and time.

Some doctors will still push for a spinal. It's up to you. Some people who have MS will have 'bands' show in their spinal fluid however others will not and have Clinical findings of MS and some who are having an active attack of MS will have 'bands' while others will not. See what I mean...it's not definate one way or another.

Best way for a dx is personal and family history, documentation of what you experience and how long it lasts, MRI of the brain and spine and if these two are negative then your MS dx would be given after a wait and see approach over time to see if your symptoms that come and go, etc are consistent with MS and not another disease that mimics MS or visa-versa.

With some people it can take as little as a few weeks for a dx while others it could take upwards to 20 years. Just depends.

~Zig
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