Symptoms: For 3 years I have had constant tingling in my left hand/arm, left foot/shin, and left cheek/temple. It has not gotten better or worse and is always there. The tingling started in my forefinger and middle finger in my left hand...spread to my arm after two weeks, then my leg within a week, and then my face within a few weeks. The symptoms occurred at the end of a one month trip overseas (mostly in major cities but ended in the Cook Islands at a five star resort). My strength and coordination is fine. There is some disorientation/vertigo when I close my eyes and some frequent fatigue, though life with a 2 and 1/2 year old contributes to the fatigue
Tests: A Harvard trained neurologist at Vanderbilt reviewed two MRIs and an Echo and came up with no diagnosis - he looked for any indication of a serious disease/issue (e.g. MS). All blood test for lyme (4 tests), infectious disease, HIV, others have come back negative. I have tried various alternative approaches Chiropractic care, Acupuncture, supplements, cleanses, but have seen no impact whatsoever on the constant stage of tingling. I have done some chelation of mercury as well.
I'd appreciate any questions/suggestions for what my symptoms might suggest...even if they turn out wrong. I"m 47, if that helps.
I am in no way a doctor or nurse. I was just reading about your situation and it reminded me of a documentary that I saw on T.V. about people having similar symptoms that you have described. Have you been tested for any type of parasites? Hope this helps.
Just came across your post and am amazed at how similar your symptoms sound to mine. I'm 44 and have had the symptoms for a bit longer than you, about 5 years. I've been to 2 different neurologists but haven't had quite as much testing. In addition to the continual tingling, I also have an odd spot in my left eye that is almost like double vision and I sometimes have goose bumps on only the left side of my body. In the last few months I've also started having tingling in my right leg and arm.
The only new idea I've been given is that 15% of MS cases can't be diagnosed through MRIs but only show up in spinal taps. In these cases there are no lesions present, but rather the myleion sheath is affected on the spinal cord. This information was shared with me by the director of our local MS Foundation.
If you'd like to write me we can talk more. I completely understand your frustration. I had one neurologist who basically told me that it was psychosomatic and the other ended the visit with "sometimes these kind of things just come and go and we never can figure out what the problem is." Not very comforting!
have either of you guys been seen/tested by a Rheumatologist? Have you had any patches of small lesions that you may have thought was a rash anywhere mid section of your trunk or behind area? I have fibromyalgia and shingles and although that is what is causing my similar symptoms there are a vast amount of chronic auto immune disorders that have the same symptoms which is why it can be difficult to diagnose. Also anyone tested for parkinsons?
My suggestion is to keep exploring with different Specialist, perhaps starting with a Rheumatologist (find the best in your area) and keep going until you find a Dr that you know understands what you are describing. Again, some of these chronic symptoms can be masked as any number of other disorders so keep trying until something fits.
Also check into support group boards with like patients who can share their issues and what treatments they are using as this is the best way to research.I am personally on MDjunction.com which has helped me a lot in separating the various symptoms into the various ailments that have attacked my body. If anything you will meet some great people that may be able to steer you in the right direction medically.
I have most of these symptoms, pins & needles started in my right leg a year ago and then spread down to my foot. Then a numbness and tingling spread throughout my body. At Christmas I developed a burning sensation with an adrenaline rush. I can handle all the physical discomfort, but the adrenaline rush is like a panic attack that lasts for hours, sometimes days. It is so bad I am unable to function for the last eight weeks. I am a very easy going person normally, but now I feel my life is over. I've had the MRI and seen the doctors they have offered no solution. Please, somebody please offer me hope.
My feet started tingling (pins & needsles) almost a year ago, mostly on my left side and it has spread slightly up my left leg but seems not to have gotten worse over the last several months. It has not stopped since it started, however. I saw a couple of neurologists and after having an MRI of my spine, an EMG, and a neurological physical exam that all checked out ok, they told me that they didn't know what was causing my symptoms but they can't find anything neurolocially wrong with me and I should be happy about that (which I am, but I'd still like an answer). They suggested stress could be the cause, however, I wasn't conciously feeling stressed until after the tingling started and wouldn't stop. Since that time, I've developed random muscle twitches all over my body that come and go (I'm more likely to attribute this to stress since it occurred after I started worrying about the tingling). Much more recently, I've been experiencing anxiety/panic, mostly at night when I'm tryting to fall asleep. I just can't shake the panicky feeling but can't pinpoint the cause of it either. Maybe it's related to my tingling since it's hard not to worry about something you are constantly aware of since the feeling never goes away. I try not to think about it and try to accept that it's just one of those things they'll never know the cause of, but I sure would feel a whole lot better if I had an explanation for it or it would just stop and go away. It's very frustrating when no one can give you an answer. I've had "stress" suggested as a possible cause but I feel like that's because I was a new mom at the time and that was the easy answer. I'd be more likely to believe that was a cause if the tingling fluctuated, but it doesn't. For now, I'm just focusing on the fact that I don't have a serious neurological disorder and trying to be happy about that.
you might want to look into Transverse Myelitis. Many of those symptoms fall under that. THere is a great deal of research out there. You can also go to their forum "Inspire" and read about all the strange things folks are feeling with their bodies and how they got help (in many cases). A good family doctor and neurologist should help find answers. I haven't gotten a definitive diagnosis for the past 3 years, but TM is my most recent. Cleveland Clinic and Johns Hopkins are good starting places. They will do a second opinion on line. Hope you get some answers. It is very hard to have things wrong, they can't be explained, other people don't understand and ou don't know how to cope. God Bless