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thyroid nodules and mass (Page 2)

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December 8th, 2009
I am new to this so I am hoping that someone can help me. I had a CT pylegram done looking for kidney stones and that came back ok but they accidentally found a 3-4mm nodule in my right lower lung. After that they ordered a CT that focused on my lungs. I just got the report back from that and the nodule is still there but there was more. They found shotty lymph nodes in the axilla and an 8mm thyroid nodule. I am really worried! Searching the internet for answers isn't helping because it seems as though there could be many different reasons for any of these. What I find a bit strange is that my FP and pulmonologist neither one has ordered any bloodwork. If this were anything to worry about wouldn't it show up in some sort of bloodwork???? I have a daughter is going to be turning 1 on Christmas day and I want so much to be focused soley on her and I am finding it hard to do anything other than worry! Does anyone have any advise - maybe anything to help me get through this?
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replied December 9th, 2009
Extremely eHealthy
First thing: stay calm. You don't know what it is yet. I know it's so easy to assume the worst, but the nodules may be benign.

Did your doctors say anything about getting a biopsy done of either nodule? If not, you need to call them and ask about it.

It would probably be good for you to ask them to refer you to either an Ear, Nose, and Throat doctor or an Endocrinologist who specializes in thyroid nodules and cancer. You could also try to find a cancer specialist who has experience with thyroid cancer. Just make sure if you do get a referral that you go go someone who is a surgeon because if you do need to have it removed, you don't want to have to go to yet another doctor. Your pulmonologist probably doesn't have experience treating thyroid issues, so you need someone who does. If he wants to biopsy the lung nodule, that's fine, but for your thyroid, I think you need to see an experienced specialist as soon as possible.

As for bloodwork, not all thyroid nodules alter the levels of thyroid hormone and altered levels may not mean anything in terms of whether the nodules are cancerous or not. A Fine Needle Aspiration biopsy (FNA) would be better. Since your nodule is so small, they may have to do the biopsy with help of an ultrasound. However, even that isn't perfect because it gives some false-negatives and false-positives and sometimes, inconclusive results (which is what happened to me).

I realize that specialists can be hard to get into sometimes, but keep pushing to get into an ENT or an Endocrinologist or even a cancer specialist (again, making sure they have experience in thyroid cancer specifically). Push to get into someone as soon as you can.

After they found the nodule on my thyroid, I was really scared, too. Doing research actually made me feel better because I saw that if it was cancer, thyroid cancer is one of the best types to have because they have what's called radioactive iodine that specifically targets it. I ended up having a very rare type called Hurthle Cell carcinoma. It's almost three years after treatment and I'm still cancer-free.

I would mainly advise you to do your research and ask your doctor as many questions as you have (make a list before you see the doctor) so you can more fully participate in making decisions about your own care. You don't want to just nod and go along with what they say without knowing what you are agreeing to or what your other options are.

Please keep us posted on what your doctors say and how things are going. We are all here to support each other. I wish you all the best. Smile
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replied June 6th, 2010
I am finding this tyroid stuff so confusing...A MRI for a pain in my neck detecting tyroid nodules. All the doctors involved seemed to think that is was not that serious until the ultrasound showed 2 solid nodules. Suddenly, everyone was concerned and I am being sent to a surgeon for a biopsy. However, he is so 'popular' that he wont even see me until I go to a seminar on the thyroid. Everyone out there worrying...I understand! We know most are fine, but someone is always in the 15 - 20 % that isn't.
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replied June 16th, 2010
Extremely eHealthy
Does he get any money from this seminar? Is he affiliated with it in any way? If so, my personal opinion is that it sounds like a racket. I could be wrong, but do research on this doctor and make sure he's not some crook or alternative medicine guru or something. Just be careful. This sounds fishy to me.

There are a lot of doctors out there you can see who won't make you go to some seminar. Find a good ENT, or an Endocrinologist that is also a surgeon, or an Oncologist that has experience with thyroid issues. I know it's not definitely cancer, but you need someone who is reachable, down-to-earth and who has experience with this if it is something more serious.

Please let me know how it goes. I wish you the very best.

--Myrah
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replied October 6th, 2010
thyroid mass
can someone help? i have a large mass behind my thyroid indenting into my trachea. i am due to have a sonogram and followed by a biopsy. has anyone had anything simimlar?
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replied November 19th, 2012
Experienced User
What are thyroid cancer systems ??
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replied December 11th, 2012
someone help thyriod question
Hi i have ultrasound done thyriod right side moderately enlarge with 2.5 cm noduleanother 7 just down from it another four left side largest been 9 mm saw my local dr sent me two specialist as she said it was nasty looking and it was bigger than she thought aftrer reading i think its all good i also dont know family history as im adopted help please
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replied December 11th, 2012
Hi i have ultrasound done thyriod right side moderately enlarge with 2.5 cm noduleanother 7 just down from it another four left side largest been 9 mm saw my local dr sent me two specialist as she said it was nasty looking and it was bigger than she thought aftrer reading i think its all good i also dont know family history as im adopted help please
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replied March 28th, 2013
Hi my mom was just diagnosed with a cyst and a complex mass 2.5cm and was wondering if you received your results and what kind of treatment you went through. Thanks.
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replied April 10th, 2013
My doctor noticed a small lump in my thyroid , she sent me for an ultrasound when theultrasound results came back she sent me for a radio active scan. She got the results of the scan and sent me to an ENT specialist who done a biopsy on my thyroid. I am waiting for those results now. Is it common to have all 3 tests done? Should I be worried that the doctors wanted a biopsy After already having an ultrasound and scan? Does that mean the doctors think its cancer?
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