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Q: Thyroid cancer surgery rceommendation
asked by: sunny101 on June 24th, 2009
New User
In 1999 when my husband was 43 a nodule was found on his thyroid and an ultrasound and FNA was done with benign results. The nodule was recorded to be 2.1 x 2.6 x 1.9 CM.
He had follow up appointments with his primary care physician from that time until 2005 when he began seeing another doctor. That doctor referred him to an endocrinologist that repeated the ultrasound and FNA with again benign results. The nodule size was recorded as 3.2 x 2.5 x 2.5 CM and his thyroid levels were recorded as normal. The doctor recommended no treatment. In 2006 he was again referred to the endocrinologist with no testing done and no recommendation for treatment.The size of the nodule was recorded as 4 x 2.5 CM In 2007 my husband told his PCP he would like to have the nodule removed. An ultrasound was ordered and surgery was scheduled. After the surgery the surgeon told my husband the nodule was a minimally invasive follicular carcinoma and recommended no further treatment. My husband saw another endocrinologist after the surgery who looked at the pathology report and told him he would need the other half of his thyroid removed and radio iodine treatment. The surgery was completed in May of 2008 and the RI body scan following surgery showed the cancer had metastasized to two places in the bone. One in his spine and one in his lower trocanter.
Can you tell me why surgery was not recommended earlier when the nodule was growing?
I went to PubMed online and to WebMD and found articles that indicate surgery is recommended if the nodule is growing , solitary, and in a male. Shouldn't the endocrinologist he saw in 2005 and 2006 have known that?
My husband has now had two RI treatments with numerous PT, PET-CT, MRI and CAT scans including a technetium bone scan with more to follow if his thyroglobulin levels increase. He has another blood draw scheduled to check the levels next month July 2009.
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kdlee
replied on June 25th, 2009
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OMG I am so sorry to read this..hy in the world did they not do someting sooner..Why idn't they do a needle biospy? A scan would have shown if the tumor had any cold spots..
(I would go get these reports or better still now that everyhting is downloaded onto CD discs get copies of everything for yourself) I am not suit happy but when this kind of thing occurs I say make sure then attack back..
I only know about scans showing cold spots as I had a large thyroid tumor that went from each side of neck..The scan showed a small cold spot but once removed it was much larger than scan showed and doc was very surprized..Thankfully it was removed before it changed which it was close to doing having atypical cells if I am remembering right..

I am here if you want to talk..
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sunny101
replied on June 25th, 2009
New User
Thanks for your support and reply. They did two fine needle biopsies one in 1999 and one in 2005 with benign results, and all his lab work for TSH and thyroid levels came back normal. I'm hoping a doctor will reply to my post. I thought I had posted it in the Ask a Doctor area on the site but couldn't find it there afterwards.
I hope you're doing well since your surgery.
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