Hello Shania,
I wish I could help you, however, I have not experienced the pain that you have described. I hope someone else will be able to help.
Shania, have you gotten second and third opinions from other doctors outside of the pain clinic you are going to? Hope so. If not I would suggest that you seek out the best neurologist that you can find in your area.
Something isn't right and you know it. Now to find a doctor who listens to you and understands and KNOWS what to do so he/she can help you.
Take care.
RichT