Multiple Sclerosis Forum - Tegretol withdraw

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Q: Tegretol withdraw

asked by: h22alude317 on June 9th, 2009

New User

Hi I'm Craig, Im eighteen, No one around me my age has ms.
I have relapse-remitting MS
Well i'll get to the point I have withdrawn from tegretol twice. I had bad side effects both times, First i withdrew on my own, second my doctors agreed on the withdraw.

I have read that tegretol wont work after withdraws, is this true?
Im starting tegretol again, getting off nerurontin, Hasnt done anything for me for four months.
Eighty Percent of my body is numb, I just want relief.

Im trying acupuncture therapy
I have gone once
nothing yet
If any one can help I would greatly appreciate it.

Replies(2)

zigemyster

replied on June 14th, 2009

Moderator

I couldn't take tegretol...horrible reaction. I'm uncertain if it would or would not work the second time around.

You speak of neurontin...I found that my pain / numbness were increasing so my neuro at the time would also increase neurontin and come to find out it was the neurontin that was the culprit. Weaned myself off that particular drug.

How is your B12 level? Not having enough of this can cause numbness / tingling. Even though I have MS I have times of intense numbness and then OK however when my B12 is low it gets worse.

If you are taking other medication; check to make sure that side effects do not include numbness / tingling.

Best Wishes,

Zig

TaskMaster

replied on November 23rd, 2009

New User

MS and tegretol

h22alude317 and zigemyster, could you please elaborate on what the 'bad' side effects were that caused you to stop tegretol. I am 66 with MS and took epitol (tegretol generic) for one day. The next day I was so weak I did not take it again.

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