Joined: 27 Aug 2007 Posts: 13 Location: lancaster,ohio
Syncope/Epilepsy ? Posted: 04-09-08 13:53pm
I have had this condition for over 20 yrs,
I have admitted my self to the hospital 2
times over this condition, ( because it
scared me this much).
The first time they checked me out it was
like , no big deal to them it seemed, they
did an EKG, sonagram, and had me wear a
halter monitor for like 2 days, with no
avail, they didnt even say what they
thought was wrong with me and discharged
me. The 2nd time was alot better it seemed
i admitted my self because of the
(episodes) that happened to me
it seems like each time that i have an
event (seizure) it takes me longer and
longer to come around, Very disoriented,
sweating,vomiting like bile fluids, With
loss of vision, and usually i go all the
way out and fall over, it feel like i am
dying when it happens. I have expressed
this to the hospitals i have been to with
no avail, This last time i was at the
hospital they did blood work, EEG,EKG,
Sonogram, They had me on the Cardio floor
checking my heart, (found it was inlarged)
and they said no need to worrie about
it.They also found that while i was up and
moving my heart rate dropped below 50bpm.
I thought an inlarged heart meant
something wasn't right?I also had an
nurologist check me out, and he said i
either had epilepsy or syncope , and that
was all that was said, because i have no
medical insurance (i think) and they didnt
want to proceed with out insurance. so
when it was over the checking me out they
said we are gonna release you, I asked
whats wrong with me and they said
Syncope/epilepsy either or. and then i
said should i drive? the nurse said fi
you want to, with my condition i don' t
ever know when i am going to have an
attack they are that sudden, it might
happen 3 or 4 times in a week and then
again it might not happen for a month or
several months. this condition is really
freaking me out, why doesn't any one want
to diagnose me for sure? Also my family
has a history of heart/stroke problems.
can anyone help with any better ideas for
me to do? already been to 2 hospitals,
what next? Its not a good feeling , when
it happens, it's like i am dying! please
help if you can.
|
antigone
Moderator
Joined: 27 Jan 2008 Posts: 803 Location: IL
Thanks: 34
Thanked:12
Posted: 04-09-08 23:35pm
Go see a cardiologist and have them assess
for long QT syndrome. This is an
arrhythmia that occurs and causes syncopal
episodes. Not all cardiologist check
carefully for this syndrome. Go to www.sads.org and try
to find a cardiologist in your area that
is familiar with LQT syndrome.
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