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Symptoms of Ehlers Danlo syndrome

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January 22nd, 2009
My current pain medication isn't helping (the cold weather is worsening symptoms). I wonder if I might have fibromyalgia and if the medications to treat fibromyalgia may help more than the pain medications would or if a combination may work better than the pain medications alone. Are there any treatments other than medication for fibromyalgia?


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replied January 23rd, 2009
General Q and A Answer A5483


List of other diseases, conditions, or injuries and their treatment: Ehlers-Danlos Syndrome (truly unknown but type 7 is the closest genetic docs have come up with); arthritis, tendinitis, bursitis, tmj, lbp, chronic birth defects include dislocated radial heads of both arms & hips; hx of dislocating patella (fixed through surgery); surgery on right hip x 2 (osteotomy); asthma; outgrown a heart murmur; acid reflux; also had gallbladder removed ~2 years ago.
Current medical status: Pain in most joints with tender points in feet (especially right), hips (mostly left), hands, elbows, shoulders, lower back, & neck. Pain is worse at night (especially when it gets colder). Has affected ability to do minimal household chores.



All the symptoms you described can be related to the Ehlers-Danlos Syndrome. Fibromyalgia is a disorder that is characterized with chronic pain and increased painful sensitivity. The diagnostic criteria for fibromyalgia are not established yet.


You might want to see a rheumatologist. Analgesics, antidepressants or anti-seizure medications might be recommended.


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