Yes, I am trying your diet. There have been a few slips, but not many. Total carbs from about 60 to 100. Felt pretty good in first week, 2nd was terrible, some improvement in the 3rd, 4th was down. Really since then, I have had some good days, but it hasn't been too promising lately. The best days are when I drop the carbs for a few days to 60 or so, and I feel better initially, but then when I start to get nauseated I add carbs and feel decent for a day or two then start up the cycle of more severe adrenal/neuroglycopenic symptoms. Last week was the 7th week and it was terrible, this week is trending that same way.
I learned that the ketosis dramatically reduces the insulin response, thus the reason I feel better when ketones are in the blood. In fact, this is a treatment approach for some similar conditions like glucagon storage disease.
Aside from a Ketogenic Diet, the only other thing that has given me a break is exercise, but I have been paying the price afterwards. In fact before the diet, I would feel normal for just about the entire day following exercise, but one or two days later I would feel terrible. This would slowly improve as the week went on.
This past Sunday, I had a good breakfast, had mid morning snack, had a large protein rich lunch with limited carbs, two hours later I had some cheese and a few strawberries, and 15 mins after that I did about an hour of high intensity biking with about 3 oz of juice mixed with a 2 liters of water. Afterwards I had an apple and some almonds, and then went on to have dinner and snacks that were slightly higher in carbs. The last snack was all protein. Woke up Monday morning shaky and weak, and havent' been very good since then. I can't make it 2 hours without eating, but if I miss that window in the morning, the day is pretty much over.
It is becoming clear that when I miss the window of opportunity and eat just a bit late then this insulin response is combining with the rebound response following the inital drop, so you can pretty much guarantee a bad reaction the next time. There is a margin for error in the evening when blood sugars are higher due to automatic hormonal response, but in the morning I have no margin. I think this is what is so difficult when you are getting that rebound so soon after eating because you basically have to eat continuously.
Sometimes I feel better just riding out the drops and waiting four hours between meals, presumably because I'm not pairing the insulin rebound from the first meal with the insulin response from the second. Also, as I think you probably discovered, the more frequently you eat the less flexibility you have. Conversely, if you don't break the cycle, you can't make any progress.
I think as I have seen others mention, the very low blood sugar is not fun, but I can think when it is low. It seems to be those blasts of adrenalin that are causing such havoc with my ability to think. I think I have probably had the hypoglycemia for years and was largely unaware of the symptoms of going low, but once you start having the adrenal symptoms, you don't have amnesia for these.
Any thoughts on timing of the meals or how I can exercise without such adverse consequences? Do you have any knowledge or experience with glycerine oil..I need something in midmorning and early afternoon to boost my blood sugar without triggering insulin. I pieced together some different threads about things to take to lower insulin, but I wasn't sure about your recommendation for vitamin C and olive oil. Should I take the olive oil with each meal..before, during or after? Also, you say it gets worse before it gets better, but were you having severe symptoms when you first started a diet? Before trying to fix this thing were you basically on a high carb/low fat diet? Was moderate to intense exercise something that triggered your symptoms?
On the bright side, there are many positive benefits from your diet: more energy, I'm sure my lipid profile is much improved, fewer allergy symptoms, sleep better, less likely to wake up with headache.
(I don't remember if this is on your list, but onions most definitely lower blood sugar--I stay away from them.)
I appreciate any advice you can offer!