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Conditions and Diseases > Vision and Eye Disorders Forum > Swollen eye lid + vision loss
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Q: Swollen eye lid + vision loss
asked by: HayasakaErika on March 22nd, 2009
Experienced User
Hello, my name is Jessie and I have had a problem with my left eye for a few years now. I was 17 when my left eye began to twitch...like REALLY twitch. So much so that sleeping was virtually impossible. Then I woke up one morning and the twitching was gone and I thought I was just dandy. Except I wasn't, my left eye lid is...droopy and feels kind of puffy. I cannot even force my lid to raise any higher. My right eye can become wide (think of a shocked face) but my left eye stays the same. Ever since then my eye sight has been getting progressively worse, and that shocked me because I had ALWAYS had perfect vision. (Please note I am now 21, turning 22 in August.)

When I was 18 my dad finally had some health care I would be covered on and I went to see an optometrist. He is a very knowledgeable one at that to be fair. He performed the tear duct surgery on my brother and he has had perfect vision ever since.

He told the name for my condition, he called it blepheroschalasis....at least that is how he pronounced it. I was supposed to get an MRI or something like that done to rule out myocenia(sp?)but my insurance lapsed before I had a chance to even be seen. He said he was 99% certain it was not that but since a sudden eye lid droop is a classic indicator he just wanted to be sure.

My problem is that I have not been able to find ANYTHING related to the condition he told me...in any way, shape or spelling. Have any of you heard of it? Or do you know of anything else that could cause this?

I would love to know what I am dealing with but I have ZERO health coverage and do not qualify for state Medi-Cal. Thanks in advance!
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eclair10
replied on August 30th, 2009
New User
I don't know much about the eye condition you were told you had, but droopy eyelid is a common sign for myasthenia gravis. This may be what you heard as "myocenia." It is important to rule out myasthenia gravis as it is a serious but treatable condition. Usually an MRI is not required to diagnose it; the test for MG typically involves giving a drug to see if the droopiness is temporarily reversed. A neurologist could probably perform this test, and he/she could tell you if your problems are related to a nerve disorder. If you can get insurance through your school or work, it would probably be a good idea to see a primary care provider who can refer you to the right specialist soon.
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