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Conditions and Diseases > Psoriasis Forum > Suffering after Raptiva Recall
Anyone Suffering more after Raptiva Recall?
Yes, very much
Yes, a little
Nothing noticeable
No
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Q: Suffering after Raptiva Recall
asked by: higbee on October 14th, 2009
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I have had severe PS for over 40 years and have taken methotrexate (about 15 years before it nearly killed me), & Enbrel (about 3 years) each with moderate results from each medication. Then I "downgraded" (according to my DR.) to Raptiva. Well, it worked wonderfully for me!!! I had hardly any place on my body with PS. What a relief after all those years of suffering, with the psoriasis getting worse the older I got.

Now the medication that has finally worked for me has been recalled and I am into about my 10th week of Humira. I now have no part of my body that does not have psoriasis that hurts, itches or bleeds. My dermatologist has given me methotrexate injections the last two weeks, and while it is not quite as uncomfortable as before, I am still covered in areas I never has psoriasis before.

Is there no medication out there that has the active ingredients that were contained in Raptiva? I think I would rather take the chance on having the reportedly rare brain infection. This is not living well.
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iowaal
replied on November 15th, 2009
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I have been on humira for the last 3 years as a part of the test group and now that it is approved I inject weekly. I had about 33 percent coverage when I began the test and started on a two week schedule at first it cleared me almost 100% (I can't recall how long it took to clear)..but then it began returning and was started on the once a week schedule and it cleared and stayed clear since then. I don't like what it does to your immune system...although I haven't taken either the H1N1 or flue shot yet....I sincerely hope it helps clear you and really think it will if you give it a little more time. Good luck and I will say a prayer for your healing.
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higbee
replied on November 15th, 2009
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Thank you for the prayer and personal report! I am much more comfortable now, thank you! This has been such a scary experience for me since I was used to being nearly 100% clear on Raptive, then being totally covered and in pain everywhere except my face! Thank God I have a husband who loves me enough to be very supportive!

This is my first week of not taking the methotrexate injections along with bi-weekly Humira. With H1N1 not be offered to people in my age group, I have become a bit paranoid about becoming sick. I came very close to dying in 2000 after being on weekly methotrexate injections for about 15 years. (lost all my hair, had terrible blisters from my lips all the way through my digestive system, and bleeding everywhere) So, I'm washing my hands a lot and using sanitizers even during church!

Sorry for the rambling. I think I am venting because you can relate so well. I very much hope you continue to do well with your treatment!!
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