I was wondering if others having CLL and been through Chemo, have experienced strokes in the brain not related to heart problems and issues?
Have any patients having gone through RFC expereinced problems physically and continued chronic pain?
I am not trying to find blame with my treatment selection, just curious if others have gone through similar developments.
RFC-FCR is a Chemo-Therapy combined treatment Rituxan, Fludara and Cytoxin. It was suggested by my team to me they gave me way to much Chemo and they in the practice prefer not to use this combination as it is very hard on patients. They explained difficult results that were expereinced by patients
I suffered from a stroke which I call congested stroke. This stroke is unique in that blood vessels in the brain are constantly becoming congested with white blood cells. There is a reduction of oxygen to the brain as a result of either white blood cells blocking blood flow or excess amounts of white blood cells or both. This combination of blockage and oxygen deprivation is always present for my CLL issue. The severity may be directly proportional to white cell amounts, as I experienced greater effects of the stroke as my white blood cell count increased. The result (over time) can be the same as any sudden stroke or mini stroke, depending upon the severity of blockage or oxygen deprivation. The effects I experienced were not unlike having a continuous mini stroke. I’m not a doctor, but I am a survivor, so I know what this is like first hand. .
What was your lymphocyte count at the time of your stroke? My grandmother has been diagnosed with CLL and her lymphocyte count is steadily increasing. She is asymptomatic but the doctor says she could have a stroke in a month.