I'm 23 and found out last year I've endometriosis. Had a polyp removed and the endometriosis lasered off. Been bleeding brown and bright red blood for the last week however my period is not due for another 2 weeks and my pill packet has another 7 days in it. Getting random period like cramps that come and go and are quite bad. I'm getting stitch like pains in my right side (had my appendix out 4 years ago) and my temperature is up and down, mostly up. Really bad night sweats and trouble getting asleep. Then waking up really early and not able to get back asleep. Getting small clots with the bleeding and this morning something weird like transperant skin came out, was about an inch long and had a clot in it. Had a smear 4 months ago and it came back clear.
Also getting lower back pain and nausous tummy. Woke up the other night and threw up everywhere. Getting random headaches. If I put pressure on my right side it REALLY hurts.
I am 23 years old and just found out that I have Endometriosis as well. I have had every symptom you talked about the bleeding and the pain, even the night sweats. My doctor kept me on a continuous birth control so that i do not get my period, eliminating the chance of my endometriosis to return. i have 3 incisions from my surgery. I ended up getting the bleeding to stop by taking warm baths every night for about a week, it defiantly helps sooth the cramping and i think helps get some of that tissue out.
I have been dealing with Endometriosis since I was 15 years old. I am now 33. After 4 unsuccessful surgeries and more visits to the Emergency Room than I will ever remember I finally found someone who knows what they are doing and actually treated me properly. I wish I had found this doctor 19 years ago!!! If you are dealing with Endometriosis the ONLY place that will get you better is the Center for Endometriosis in Atlanta. They are the most amazing doctors I have ever met and believe me... I have met a LOT. The staff there is the most compassionate, caring group of people I have ever met in my life. If you have any questions you can email me. I would be happy to answer any questions you might have!!
The doctors tried to treat my endometriosis with Depo, but the end result was worse bleeding so I stopped it. I was regular for a month and then the bleeding started and hasnt stopped for almost four months. I dont feel well. My pelvic came back clean so my doctor wont listen to me. Bleeding this much cant be healthy, right? I think i need surgery, I dont know if I can handle more birth control experiments, especially after what the depo did to me. Have you ever heard of anything like this? Im used to irregular periods, but nonstop is kinda scary. As stupid as it sounds, im afraid im going to bleed to death.
I was diagnosed with endometriosis about 12 years ago now, and I too have had a similar experience with the whole 'try this' then 'try this' when one after another didn't work. I was on Depo for a while after numerous types of the pill would continuously give me headaches, so I thought I would give it a try. At first it was great, no periods, and then I had a bit of spotting, which eventually lasted as a period for over 3 months too. I have had laporoscopic surgery twice now, and am actually waiting for the date of my third go round. I have been on the Ortho Evra patch, and take it continuously so as to skip my period, and it has literally been a God send. No side effects, like I was experiencing with the pill, and Depo, and other than having to remember to switch it every week, there's nothing to it. I usually keep it going for 8 weeks, then take the week break, and restart it again, just so I don't get too built up... unfortunately that week off is awful, but while it's on, it is great! It has been the only form of birth control that has actually helped and I haven't had issues with it. Ultimately I find that having surgery is always my best fix, because my gynecologist usually removes everything he finds and 'cleans it up', and the lack of pain after all is healed is the best feeling! I'd check into surgery if I were you, as it has helped me tremendously.
I had endometriosis for many years. Many surgeries. Went dormant for years then came back. Last surgery took care of it. Everyone is different. Some have lots of pain, others no pain at all. You need a ob/gyn that specializes in lazer surgery for endometriosis. It is very small and if they don't get it all it will come back very easily. Heating pad works good for pain. I used one for back and one for stomach. I wish I could help more, I know how you feel. Hang in there.