Hello, I am new to this. I have an enlarged spleen and I am in constant discomfort/pain. My doctor doesn't seem to think the pain is coming from my spleen, but it is directly where the spleen is located. Does any one else have pain/discomfort with spleen and does anything help. I have been hurting since July!! I was diagnosed with MDS 5Q- as well. Look forward to reading replies!!!
Hello I have polycythemia and I too have pain on/off and a feeling of fullness and can only eat very little.My stomach is very swollen, today was the worst day, typical my doc on holiday!it helps with a hot water bottle but think I will have to go to dod,I have had a screening but it didnt show anything.I am going to persevere with this though because I am so fed up with it. I hope you get somewhere.Anna.